The Italian register for diffuse infiltrative lung disorders (RIPID): a four-year report
The Italian register for diffuse infiltrative lung disorders (RIPID): a four-year report
INTRODUCTION: RIPID (Italian register for diffuse infiltrative lung disorders) is a register aimed to create a national database of diffuse infiltrative lung disorders, also known as interstitial lung diseases.
MATERIAL AND METHODS: The RIPID register collected prevalent data on patients affected by infiltrative diffuse lung disorders. The data form contains socio-demographic information (sex, age, years of education), existence in life, smoking habits, clinical data, diagnostic procedures (chest high resolution computed tomography (HRCT), bronchoalveolar lavage (BAL), transbronchial biopsies (TBB), surgical biopsies) and respiratory function tests at the time of diagnosis.
RESULTS: Up to 18/01/2005 a total of 3152 patients had been included in the register. Seventy-nine centers and 138 physicians in all 20 regions of Italy contributed to patient enrolment. The vast majority of cases were from Northern Italy (2343 cases, 75%). The most frequently reported diagnoses were Sarcoidosis (1063 patients) and Idiopathic Pulmonary Fibrosis (IPF, 864 patients).
DISCUSSION: The data in the RIPID confirm that epidemiological registries can be useful tools to investigate rare or relatively rare disorders (e.g. Sarcoidosis and IPF), in order to design multicentric clinical studies of adequate sample size, aimed at providing standardized diagnostic, management and follow up criteria with a particular regard to outcome.
S4-S8
Tinelli, Carmine
0db695d0-58c3-4ec9-b18e-4714b186df9b
De Silvestri, Annalisa
45db1244-83fa-4fb6-97f1-94e94279aca6
Richeldi, Luca
47177d9c-731a-49a1-9cc6-4ac8f6bbbf26
Oggionni, Tiberio
277b02a2-717a-4bd5-a63c-bedf25f80eb7
December 2005
Tinelli, Carmine
0db695d0-58c3-4ec9-b18e-4714b186df9b
De Silvestri, Annalisa
45db1244-83fa-4fb6-97f1-94e94279aca6
Richeldi, Luca
47177d9c-731a-49a1-9cc6-4ac8f6bbbf26
Oggionni, Tiberio
277b02a2-717a-4bd5-a63c-bedf25f80eb7
Tinelli, Carmine, De Silvestri, Annalisa, Richeldi, Luca and Oggionni, Tiberio
(2005)
The Italian register for diffuse infiltrative lung disorders (RIPID): a four-year report.
Sarcoidosis, Vasculitis and Diffuse Lung Diseases, 22, supplement 1, .
(PMID:16457011)
Abstract
INTRODUCTION: RIPID (Italian register for diffuse infiltrative lung disorders) is a register aimed to create a national database of diffuse infiltrative lung disorders, also known as interstitial lung diseases.
MATERIAL AND METHODS: The RIPID register collected prevalent data on patients affected by infiltrative diffuse lung disorders. The data form contains socio-demographic information (sex, age, years of education), existence in life, smoking habits, clinical data, diagnostic procedures (chest high resolution computed tomography (HRCT), bronchoalveolar lavage (BAL), transbronchial biopsies (TBB), surgical biopsies) and respiratory function tests at the time of diagnosis.
RESULTS: Up to 18/01/2005 a total of 3152 patients had been included in the register. Seventy-nine centers and 138 physicians in all 20 regions of Italy contributed to patient enrolment. The vast majority of cases were from Northern Italy (2343 cases, 75%). The most frequently reported diagnoses were Sarcoidosis (1063 patients) and Idiopathic Pulmonary Fibrosis (IPF, 864 patients).
DISCUSSION: The data in the RIPID confirm that epidemiological registries can be useful tools to investigate rare or relatively rare disorders (e.g. Sarcoidosis and IPF), in order to design multicentric clinical studies of adequate sample size, aimed at providing standardized diagnostic, management and follow up criteria with a particular regard to outcome.
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Published date: December 2005
Organisations:
Clinical & Experimental Sciences
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Local EPrints ID: 368962
URI: http://eprints.soton.ac.uk/id/eprint/368962
ISSN: 1124-0490
PURE UUID: a5b74da0-95e9-42e9-978d-3791948bd73f
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Date deposited: 10 Oct 2014 12:58
Last modified: 08 Jan 2022 06:12
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Contributors
Author:
Carmine Tinelli
Author:
Annalisa De Silvestri
Author:
Luca Richeldi
Author:
Tiberio Oggionni
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