Foster, C., Calman, L., Grimmett, C., Breckons, M., Cotterell, P., Yardley, L., Joseph, J., Hughes, S., Jones, R., Leonidou, C., Armes, J., Batehup, L., Corner, J., Fenlon, D., Lennan, E., Morris, C., Neylon, A., Ream, E., Turner, L. and Richardson, A. (2015) Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management. Psycho-Oncology, 24 (8), 940-949. (doi:10.1002/pon.3747). (PMID:25648410)
Abstract
Objective: the aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment.
Methods: a nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.
Results: key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.
Conclusions: it is feasible to systematically ‘co-create’ an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted
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