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Quality and efficacy of educational materials on cancer-related fatigue: views of patients from two European countries

Quality and efficacy of educational materials on cancer-related fatigue: views of patients from two European countries
Quality and efficacy of educational materials on cancer-related fatigue: views of patients from two European countries
Cancer-related fatigue is a symptom with great implications for the quality of life of those that experience it. It is regarded as one of the most distressing symptoms that people with cancer develop. Its aetiology is complex, and although the mechanisms underlying fatigue have not been fully clarified it is evident that it is exacerbated by treatments intended to cure or palliate the disease.

Patients at risk of cancer-related fatigue need access to information that will enable them to manage it effectively. There are a growing number of materials available to patients in different European countries on this topic, but it is unclear how useful patients find these. This study was undertaken to explore this through conducting focus groups with patients in the United Kingdom and Switzerland. One focus group was conducted in each country. Findings from these determined that individuals voiced common concerns: fatigue had not been addressed in the clinical setting – individuals surmised why this occurred; participants had not accessed materials on cancer-related fatigue previously; they made recommendations for future resources for patients. However, what was evident was that unless patients can access materials on this topic, their quality becomes purely an academic issue.
1462-3889
99-109
Ream, E.
8f79582d-e1c0-4cc9-ae71-14b543567d63
Campling (nee Browne), N.
0e0410b0-a9cd-486d-a51f-20d80df04791
Glaus, A.
bcf1b82a-96ab-4bd2-944d-076e1c2ebf80
Knipping, C.
f33b244c-1600-4c4b-b535-5c4869773f28
Frei, I.
f7ebc49f-370d-4720-84a5-d526ab5f3e46
Ream, E.
8f79582d-e1c0-4cc9-ae71-14b543567d63
Campling (nee Browne), N.
0e0410b0-a9cd-486d-a51f-20d80df04791
Glaus, A.
bcf1b82a-96ab-4bd2-944d-076e1c2ebf80
Knipping, C.
f33b244c-1600-4c4b-b535-5c4869773f28
Frei, I.
f7ebc49f-370d-4720-84a5-d526ab5f3e46

Ream, E., Campling (nee Browne), N., Glaus, A., Knipping, C. and Frei, I. (2003) Quality and efficacy of educational materials on cancer-related fatigue: views of patients from two European countries. European Journal of Oncology Nursing, 7 (2), 99-109. (doi:10.1016/S1462-3889(03)00003-6). (PMID:12849563)

Record type: Article

Abstract

Cancer-related fatigue is a symptom with great implications for the quality of life of those that experience it. It is regarded as one of the most distressing symptoms that people with cancer develop. Its aetiology is complex, and although the mechanisms underlying fatigue have not been fully clarified it is evident that it is exacerbated by treatments intended to cure or palliate the disease.

Patients at risk of cancer-related fatigue need access to information that will enable them to manage it effectively. There are a growing number of materials available to patients in different European countries on this topic, but it is unclear how useful patients find these. This study was undertaken to explore this through conducting focus groups with patients in the United Kingdom and Switzerland. One focus group was conducted in each country. Findings from these determined that individuals voiced common concerns: fatigue had not been addressed in the clinical setting – individuals surmised why this occurred; participants had not accessed materials on cancer-related fatigue previously; they made recommendations for future resources for patients. However, what was evident was that unless patients can access materials on this topic, their quality becomes purely an academic issue.

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More information

e-pub ahead of print date: 27 May 2003
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 376772
URI: http://eprints.soton.ac.uk/id/eprint/376772
ISSN: 1462-3889
PURE UUID: 002ea64e-b5ca-4256-bf21-cd784305c817
ORCID for N. Campling (nee Browne): ORCID iD orcid.org/0000-0002-4158-7894

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Date deposited: 12 May 2015 11:16
Last modified: 15 Mar 2024 03:52

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Contributors

Author: E. Ream
Author: A. Glaus
Author: C. Knipping
Author: I. Frei

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