The University of Southampton
University of Southampton Institutional Repository
Warning ePrints Soton is experiencing an issue with some file downloads not being available. We are working hard to fix this. Please bear with us.

The networks of care surrounding cancer palliative care patients

The networks of care surrounding cancer palliative care patients
The networks of care surrounding cancer palliative care patients
Objectives
This paper explicates the nature and extent of the networks of care surrounding patients with cancer palliative care needs.

Method
Twenty-four patients with 15 different types/sites of cancer were recruited in one city in England, UK. During one in-depth interview patients identified who was ‘involved in their care’ and any known pathways of communication between them. One hundred of these people (35 doctors, 32 nurses, 17 professions allied to medicine, 8 family members and 8 others) were also interviewed. Maps of people/teams and the connections between them for each patient were then reconstructed using social networking software (PAJEK).

Results
The 24 patients identified a total of 619 people or teams (mean 26, median 22, range 9–45 per patient) contributing to their care. Selected care network maps are displayed, illustrating the extent and nature of the care networks supporting palliative care patients. Common members of care networks for patients with palliative care needs are revealed, but their individual and unique nature is also apparent.

Conclusions
The possible clinical utility and challenges of mapping care networks are discussed. Exploring the care networks surrounding individual patients can be useful for illuminating the extent and complexity of individual patient's care networks; clarifying who is involved and who they communicate with; providing opportunities to see interaction routes that may otherwise be hidden, revealing potentially missing or weak connections; and highlighting overlaps or gaps in provision.
435-442
Jarrett, N.
2127f54c-9a95-4b04-a7f4-c1da8b21b378
Porter, K.
461d2468-38d4-4d20-ae03-ddc0d62ca834
Davis, C.
b98148c3-cb02-4943-91a4-7ae0a23c681e
Addington-Hall, J.
87560cc4-7562-4f9b-b908-81f3b603fdd8
Duke, S.
f0dc024d-f940-4f43-b5f9-adab34833ce7
Corner, J.
eddc9d69-aa12-4de5-8ab0-b20a6b5765fa
Lathlean, J.
98a74375-c265-47d2-b75b-5f0f3e14c1a9
Jarrett, N.
2127f54c-9a95-4b04-a7f4-c1da8b21b378
Porter, K.
461d2468-38d4-4d20-ae03-ddc0d62ca834
Davis, C.
b98148c3-cb02-4943-91a4-7ae0a23c681e
Addington-Hall, J.
87560cc4-7562-4f9b-b908-81f3b603fdd8
Duke, S.
f0dc024d-f940-4f43-b5f9-adab34833ce7
Corner, J.
eddc9d69-aa12-4de5-8ab0-b20a6b5765fa
Lathlean, J.
98a74375-c265-47d2-b75b-5f0f3e14c1a9

Jarrett, N., Porter, K., Davis, C., Addington-Hall, J., Duke, S., Corner, J. and Lathlean, J. (2015) The networks of care surrounding cancer palliative care patients. BMJ Supportive & Palliative Care, 5, 435-442. (doi:10.1136/bmjspcare-2014-000782).

Record type: Article

Abstract

Objectives
This paper explicates the nature and extent of the networks of care surrounding patients with cancer palliative care needs.

Method
Twenty-four patients with 15 different types/sites of cancer were recruited in one city in England, UK. During one in-depth interview patients identified who was ‘involved in their care’ and any known pathways of communication between them. One hundred of these people (35 doctors, 32 nurses, 17 professions allied to medicine, 8 family members and 8 others) were also interviewed. Maps of people/teams and the connections between them for each patient were then reconstructed using social networking software (PAJEK).

Results
The 24 patients identified a total of 619 people or teams (mean 26, median 22, range 9–45 per patient) contributing to their care. Selected care network maps are displayed, illustrating the extent and nature of the care networks supporting palliative care patients. Common members of care networks for patients with palliative care needs are revealed, but their individual and unique nature is also apparent.

Conclusions
The possible clinical utility and challenges of mapping care networks are discussed. Exploring the care networks surrounding individual patients can be useful for illuminating the extent and complexity of individual patient's care networks; clarifying who is involved and who they communicate with; providing opportunities to see interaction routes that may otherwise be hidden, revealing potentially missing or weak connections; and highlighting overlaps or gaps in provision.

Text
Networks of care.pdf - Version of Record
Restricted to Repository staff only
Request a copy

More information

Accepted/In Press date: 11 March 2015
e-pub ahead of print date: 26 March 2015
Published date: 1 December 2015
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 380558
URI: http://eprints.soton.ac.uk/id/eprint/380558
PURE UUID: ad0a7aae-06f9-4cfd-80fd-1aed9edf9f76
ORCID for N. Jarrett: ORCID iD orcid.org/0000-0003-2513-8113
ORCID for S. Duke: ORCID iD orcid.org/0000-0002-4058-8086

Catalogue record

Date deposited: 16 Sep 2015 13:21
Last modified: 12 Nov 2021 17:24

Export record

Altmetrics

Contributors

Author: N. Jarrett ORCID iD
Author: K. Porter
Author: C. Davis
Author: S. Duke ORCID iD
Author: J. Corner
Author: J. Lathlean

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×