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Development and field testing of a consumer shared decision-making training program for adults with low literacy

Development and field testing of a consumer shared decision-making training program for adults with low literacy
Development and field testing of a consumer shared decision-making training program for adults with low literacy
Objective

Given the scarcity of shared decision-making (SDM) interventions for adults with low literacy, we created a SDM training program tailored to this population to be delivered in adult education settings.
Methods

Formative evaluation during program development included a review of the problem and previous efforts to address it, qualitative interviews with the target population, program planning and field testing.

Results

A comprehensive SDM training program was developed incorporating core SDM elements. The program aimed to improve students’ understanding of SDM and to provide them with the necessary skills (understanding probabilistic risks and benefits, personal values and preferences) and self-efficacy to use an existing set of questions (the AskShareKnow questions) as a means to engage in SDM during healthcare interactions.

Conclusions

There is an ethical imperative to develop SDM interventions for adults with lower literacy. Generic training programs delivered direct-to-consumers in adult education settings offer promise in a national and international environment where too few initiatives exist.

Practice implications

Formative evaluation of the program offers practical insights into developing consumer-focused SDM training. The content of the program can be used as a guide for future efforts to engage consumers in SDM.
shared decision making, training, consumers, low literacy, health literacy, patient-centred healthcare, intervention, development, AskShareKnow, question asking
0738-3991
1180-1188
Muscat, Danielle M.
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Morony, Suzanne
50869fb8-577e-4f71-9e30-12c752e82629
Shepherd, Heather L.
ca63f964-ceec-4011-b120-2d02ae68921b
Smith, Sian K.
ee5f6382-fa72-445a-8688-356b2d47d681
Dhillon, Haryana M.
20638ca6-7d8b-4ca4-a144-05f552c3a5ba
Trevena, Lyndal
0eeb2f6f-e14f-4a33-aa2b-ac7922562217
Hayen, Andrew
02b2313a-46d3-4cfb-a5bb-90c56edb6cfb
Luxford, Karen
b5f60658-ccc6-48dc-9497-31f29621273d
Nutbeam, Don
352dc808-9160-42e7-8b52-b8cac02ad486
McCaffery, Kirsten
57a6624b-dc7a-49f3-98ab-c3eda522c809
Muscat, Danielle M.
0bf42a6a-8689-49e6-8e91-66e6e05d0a8a
Morony, Suzanne
50869fb8-577e-4f71-9e30-12c752e82629
Shepherd, Heather L.
ca63f964-ceec-4011-b120-2d02ae68921b
Smith, Sian K.
ee5f6382-fa72-445a-8688-356b2d47d681
Dhillon, Haryana M.
20638ca6-7d8b-4ca4-a144-05f552c3a5ba
Trevena, Lyndal
0eeb2f6f-e14f-4a33-aa2b-ac7922562217
Hayen, Andrew
02b2313a-46d3-4cfb-a5bb-90c56edb6cfb
Luxford, Karen
b5f60658-ccc6-48dc-9497-31f29621273d
Nutbeam, Don
352dc808-9160-42e7-8b52-b8cac02ad486
McCaffery, Kirsten
57a6624b-dc7a-49f3-98ab-c3eda522c809

Muscat, Danielle M., Morony, Suzanne, Shepherd, Heather L., Smith, Sian K., Dhillon, Haryana M., Trevena, Lyndal, Hayen, Andrew, Luxford, Karen, Nutbeam, Don and McCaffery, Kirsten (2015) Development and field testing of a consumer shared decision-making training program for adults with low literacy. [in special issue: Communication in Healthcare: Best papers from the International Conference on Communication in Healthcare, Amsterdam, The Netherlands, 28 September - 1 October 2014] Patient Education and Counseling, 98 (10), 1180-1188. (doi:10.1016/j.pec.2015.07.023). (PMID:26277281)

Record type: Article

Abstract

Objective

Given the scarcity of shared decision-making (SDM) interventions for adults with low literacy, we created a SDM training program tailored to this population to be delivered in adult education settings.
Methods

Formative evaluation during program development included a review of the problem and previous efforts to address it, qualitative interviews with the target population, program planning and field testing.

Results

A comprehensive SDM training program was developed incorporating core SDM elements. The program aimed to improve students’ understanding of SDM and to provide them with the necessary skills (understanding probabilistic risks and benefits, personal values and preferences) and self-efficacy to use an existing set of questions (the AskShareKnow questions) as a means to engage in SDM during healthcare interactions.

Conclusions

There is an ethical imperative to develop SDM interventions for adults with lower literacy. Generic training programs delivered direct-to-consumers in adult education settings offer promise in a national and international environment where too few initiatives exist.

Practice implications

Formative evaluation of the program offers practical insights into developing consumer-focused SDM training. The content of the program can be used as a guide for future efforts to engage consumers in SDM.

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More information

Accepted/In Press date: 20 July 2015
e-pub ahead of print date: 28 July 2015
Published date: October 2015
Keywords: shared decision making, training, consumers, low literacy, health literacy, patient-centred healthcare, intervention, development, AskShareKnow, question asking

Identifiers

Local EPrints ID: 382851
URI: http://eprints.soton.ac.uk/id/eprint/382851
ISSN: 0738-3991
PURE UUID: 58877115-7897-448e-95e9-956801d2f163

Catalogue record

Date deposited: 22 Oct 2015 14:02
Last modified: 09 Dec 2019 19:49

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Contributors

Author: Danielle M. Muscat
Author: Suzanne Morony
Author: Heather L. Shepherd
Author: Sian K. Smith
Author: Haryana M. Dhillon
Author: Lyndal Trevena
Author: Andrew Hayen
Author: Karen Luxford
Author: Don Nutbeam
Author: Kirsten McCaffery

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