Development and psychometric evaluation of the ICIQ-LTCqol: a self-report quality of life questionnaire for long-term indwelling catheter users
Development and psychometric evaluation of the ICIQ-LTCqol: a self-report quality of life questionnaire for long-term indwelling catheter users
Aims: Long-term indwelling catheterisation may affect health related quality of life, but clinical assessment and monitoring of people with indwelling catheters is poorly recorded because there are no validated measures to capture these criteria. In this paper, we describe the development of the ICIQ-Long Term Catheter quality of life (ICIQ-LTCqol), one of the modules of the ICIQ series, an international project to standardise assessment of lower pelvic dysfunction: www.iciq.net.
Methods: In-depth interviews were conducted with 27 catheter-users and 4 informal carers and cognitive debriefing with a further 31 catheter-users and clinical experts to evaluate clarity and comprehensiveness. The draft 44 item questionnaire was then sent by post to 893 long-term catheter-users; the 370 completed questionnaires were used to test content validity, test re-test reliability and internal consistency (Cronbach ? coefficient). Factor analysis alongside expert opinion was used to formulate the final questionnaire of 16 items. This was then sent by post to another 438 long-term catheter-users to evaluate domain scores.
Results: The final questionnaire consists of two scored domains: catheter function and concern (9 items) and lifestyle impact (3 items) and four standalone items, relating to pads, pain, sexual activity and bladder spasm. Levels of missing data are good (mean 3.6%) with moderate to good agreement and acceptable internal consistency (Cronbach's alpha 0.76 and 0.74 for each domain respectively), suggesting acceptability and stability of the questionnaire.
Conclusion: The ICIQ-LTCqol is a psychometrically robust self-report questionnaire for the clinical assessment and evaluation of health related quality of life for long-term catheter users. Neurourol. Urodynam. 9999:XX–XX, 2015. © 2015 Wiley Periodicals, Inc.
psychometrics, questionnaires, urinary incontinence, catheter, quality of life
423-428
Cotterill, Nikki
c0ef5dfc-a9ae-4ebb-a3ed-5afb7805ff92
Fowler, Sarah
44dc4ae1-861c-4803-a9b9-4d72c58e3695
Avery, Miriam
a678263d-a1de-486a-8553-e84c831f9149
Cottenden, Alan M.
1582dd28-06d0-46d8-819e-5e5fd38cbe07
Wilde, Mary
51f1f95b-ea36-4a45-8ff7-28b4571b45f2
Long, Adele
64ec09a9-bf12-43bc-b93e-48636d04e4e6
Fader, Mandy J.
c318f942-2ddb-462a-9183-8b678faf7277
March 2016
Cotterill, Nikki
c0ef5dfc-a9ae-4ebb-a3ed-5afb7805ff92
Fowler, Sarah
44dc4ae1-861c-4803-a9b9-4d72c58e3695
Avery, Miriam
a678263d-a1de-486a-8553-e84c831f9149
Cottenden, Alan M.
1582dd28-06d0-46d8-819e-5e5fd38cbe07
Wilde, Mary
51f1f95b-ea36-4a45-8ff7-28b4571b45f2
Long, Adele
64ec09a9-bf12-43bc-b93e-48636d04e4e6
Fader, Mandy J.
c318f942-2ddb-462a-9183-8b678faf7277
Cotterill, Nikki, Fowler, Sarah, Avery, Miriam, Cottenden, Alan M., Wilde, Mary, Long, Adele and Fader, Mandy J.
(2016)
Development and psychometric evaluation of the ICIQ-LTCqol: a self-report quality of life questionnaire for long-term indwelling catheter users.
Neurourology and Urodynamics, 35 (3), .
(doi:10.1002/nau.22729).
(PMID:25663120)
Abstract
Aims: Long-term indwelling catheterisation may affect health related quality of life, but clinical assessment and monitoring of people with indwelling catheters is poorly recorded because there are no validated measures to capture these criteria. In this paper, we describe the development of the ICIQ-Long Term Catheter quality of life (ICIQ-LTCqol), one of the modules of the ICIQ series, an international project to standardise assessment of lower pelvic dysfunction: www.iciq.net.
Methods: In-depth interviews were conducted with 27 catheter-users and 4 informal carers and cognitive debriefing with a further 31 catheter-users and clinical experts to evaluate clarity and comprehensiveness. The draft 44 item questionnaire was then sent by post to 893 long-term catheter-users; the 370 completed questionnaires were used to test content validity, test re-test reliability and internal consistency (Cronbach ? coefficient). Factor analysis alongside expert opinion was used to formulate the final questionnaire of 16 items. This was then sent by post to another 438 long-term catheter-users to evaluate domain scores.
Results: The final questionnaire consists of two scored domains: catheter function and concern (9 items) and lifestyle impact (3 items) and four standalone items, relating to pads, pain, sexual activity and bladder spasm. Levels of missing data are good (mean 3.6%) with moderate to good agreement and acceptable internal consistency (Cronbach's alpha 0.76 and 0.74 for each domain respectively), suggesting acceptability and stability of the questionnaire.
Conclusion: The ICIQ-LTCqol is a psychometrically robust self-report questionnaire for the clinical assessment and evaluation of health related quality of life for long-term catheter users. Neurourol. Urodynam. 9999:XX–XX, 2015. © 2015 Wiley Periodicals, Inc.
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Accepted/In Press date: 1 December 2014
e-pub ahead of print date: 8 February 2015
Published date: March 2016
Keywords:
psychometrics, questionnaires, urinary incontinence, catheter, quality of life
Organisations:
Faculty of Health Sciences
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Local EPrints ID: 385754
URI: http://eprints.soton.ac.uk/id/eprint/385754
ISSN: 0733-2467
PURE UUID: e134a081-af40-439f-86de-421c61a48878
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Date deposited: 21 Jan 2016 16:34
Last modified: 14 Mar 2024 22:22
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Contributors
Author:
Nikki Cotterill
Author:
Sarah Fowler
Author:
Miriam Avery
Author:
Alan M. Cottenden
Author:
Mary Wilde
Author:
Adele Long
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