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Researching scabies outbreaks among people in residential care and lacking capacity to consent: a case study

Researching scabies outbreaks among people in residential care and lacking capacity to consent: a case study
Researching scabies outbreaks among people in residential care and lacking capacity to consent: a case study
Infectious disease outbreaks in residential care are complex to manage and difficult to control. Research in this setting that includes individuals who lack capacity must conform to national legislation (specifically in England and Wales, the Mental Capacity Act 2005). We report here on our study that is investigating outbreaks of scabies, an itchy skin infection, in the residential care setting in the southeast of England. There appears to be a gap in legislative advice regarding the inclusion of people who lack capacity in research that takes place during time-limited acute scenarios such as outbreaks. We received inconsistent advice from experts regarding, in particular, the role of nominated consultees. There is a potential inequality for vulnerable populations who cannot themselves provide informed consent in terms of their access to participation in a range of health-related research.
1754-9973
1-6
Head, M.G.
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Walker, S.L.
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Nalabanda, A.
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Bostock, J.
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Cassell, J.A.
983c46ee-6ec3-49cb-aac3-d5c29e97b80b
Head, M.G.
67ce0afc-2fc3-47f4-acf2-8794d27ce69c
Walker, S.L.
c037e7e6-95e3-43da-a376-ed61faba0f24
Nalabanda, A.
51ef6ef2-8570-4652-ad47-7c16de87770c
Bostock, J.
b061a0f3-0d6b-4e04-837d-d670a7bfe286
Cassell, J.A.
983c46ee-6ec3-49cb-aac3-d5c29e97b80b

Head, M.G., Walker, S.L., Nalabanda, A., Bostock, J. and Cassell, J.A. (2015) Researching scabies outbreaks among people in residential care and lacking capacity to consent: a case study. Public Health Ethics, 1-6. (doi:10.1093/phe/phv011).

Record type: Article

Abstract

Infectious disease outbreaks in residential care are complex to manage and difficult to control. Research in this setting that includes individuals who lack capacity must conform to national legislation (specifically in England and Wales, the Mental Capacity Act 2005). We report here on our study that is investigating outbreaks of scabies, an itchy skin infection, in the residential care setting in the southeast of England. There appears to be a gap in legislative advice regarding the inclusion of people who lack capacity in research that takes place during time-limited acute scenarios such as outbreaks. We received inconsistent advice from experts regarding, in particular, the role of nominated consultees. There is a potential inequality for vulnerable populations who cannot themselves provide informed consent in terms of their access to participation in a range of health-related research.

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e-pub ahead of print date: 16 April 2015
Organisations: Clinical & Experimental Sciences

Identifiers

Local EPrints ID: 386500
URI: https://eprints.soton.ac.uk/id/eprint/386500
ISSN: 1754-9973
PURE UUID: 752a02a9-8fdd-456f-bdcc-aec009021455
ORCID for M.G. Head: ORCID iD orcid.org/0000-0003-1189-0531

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Date deposited: 01 Feb 2016 16:39
Last modified: 16 Nov 2018 01:29

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