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Development of an e-supported illness management and recovery programme for consumers with severe mental illness using intervention mapping, and design of an early cluster randomized controlled trial

Development of an e-supported illness management and recovery programme for consumers with severe mental illness using intervention mapping, and design of an early cluster randomized controlled trial
Development of an e-supported illness management and recovery programme for consumers with severe mental illness using intervention mapping, and design of an early cluster randomized controlled trial
BACKGROUND: E-mental health is a promising medium to keep mental health affordable and accessible. For consumers with severe mental illness the evidence of the effectiveness of e-health is limited. A number of difficulties and barriers have to be addressed concerning e-health for consumers with severe mental illness. One possible solution might be to blend e-health with face-to-face delivery of a recovery-oriented treatment, like the Illness Management & Recovery (IMR) programme. This paper describes the development of an e-health application for the IMR programme and the design of an early clustered randomized controlled trial.

METHOD/DESIGN: We developed the e-IMR intervention according to the six-step protocol of Intervention Mapping. Consumers joined the development group to address important and relevant issues for the target group. Decisions during the six-step development process were based on qualitative evaluations of the Illness Management & Recovery programme, structured interviews, discussion in the development group, and literature reviews on qualitative papers concerning consumers with severe mental illness, theoretical models, behavioural change techniques, and telemedicine for consumers with severe mental illness. The aim of the e-IMR intervention is to help consumers with severe mental illness to involve others, manage achieving goals, and prevent relapse. The e-IMR intervention consists of face-to-face delivery of the Illness Management & Recovery programme and an e-health application containing peer-testimonials on videos, follow up on goals and coping strategies, monitoring symptoms, solving problems, and communication opportunities. We designed an early cluster randomized controlled trial that will evaluate the e-IMR intervention. In the control condition the Illness Management & Recovery programme is provided. The main effect-study parameters are: illness management, recovery, psychiatric symptoms severity, self-management, quality of life, and general health. The process of the IMR program will be evaluated on fidelity and feasibility in semi-structured interviews with participants and trainers.

DISCUSSION: Intervention Mapping provided a systematic procedure for the development of this e-health intervention for consumers with severe mental illness and the preparation of an early randomized controlled trial.

TRIAL REGISTRATION: The trial is registered in the Dutch Trial Register: NTR4772
severe mental illness, e-mental health, illness management and recovery, intervention mapping, early randomized controlled trial
1472-6963
1-9
Beentjes, Titus A.A.
c63c6d96-48da-4c79-865e-747a2f125c0d
van Gaal, Betsie G.I.
1638dc4b-976d-4351-a790-efd1e7809965
Goossens, Peter J.J.
2dfd1443-774c-4011-9b22-4ed2dca3a343
Schoonhoven, Lisette
46a2705b-c657-409b-b9da-329d5b1b02de
Beentjes, Titus A.A.
c63c6d96-48da-4c79-865e-747a2f125c0d
van Gaal, Betsie G.I.
1638dc4b-976d-4351-a790-efd1e7809965
Goossens, Peter J.J.
2dfd1443-774c-4011-9b22-4ed2dca3a343
Schoonhoven, Lisette
46a2705b-c657-409b-b9da-329d5b1b02de

Beentjes, Titus A.A., van Gaal, Betsie G.I., Goossens, Peter J.J. and Schoonhoven, Lisette (2016) Development of an e-supported illness management and recovery programme for consumers with severe mental illness using intervention mapping, and design of an early cluster randomized controlled trial. BMC Health Services Research, 16 (20), 1-9. (doi:10.1186/s12913-016-1267-z). (PMID:26782620)

Record type: Article

Abstract

BACKGROUND: E-mental health is a promising medium to keep mental health affordable and accessible. For consumers with severe mental illness the evidence of the effectiveness of e-health is limited. A number of difficulties and barriers have to be addressed concerning e-health for consumers with severe mental illness. One possible solution might be to blend e-health with face-to-face delivery of a recovery-oriented treatment, like the Illness Management & Recovery (IMR) programme. This paper describes the development of an e-health application for the IMR programme and the design of an early clustered randomized controlled trial.

METHOD/DESIGN: We developed the e-IMR intervention according to the six-step protocol of Intervention Mapping. Consumers joined the development group to address important and relevant issues for the target group. Decisions during the six-step development process were based on qualitative evaluations of the Illness Management & Recovery programme, structured interviews, discussion in the development group, and literature reviews on qualitative papers concerning consumers with severe mental illness, theoretical models, behavioural change techniques, and telemedicine for consumers with severe mental illness. The aim of the e-IMR intervention is to help consumers with severe mental illness to involve others, manage achieving goals, and prevent relapse. The e-IMR intervention consists of face-to-face delivery of the Illness Management & Recovery programme and an e-health application containing peer-testimonials on videos, follow up on goals and coping strategies, monitoring symptoms, solving problems, and communication opportunities. We designed an early cluster randomized controlled trial that will evaluate the e-IMR intervention. In the control condition the Illness Management & Recovery programme is provided. The main effect-study parameters are: illness management, recovery, psychiatric symptoms severity, self-management, quality of life, and general health. The process of the IMR program will be evaluated on fidelity and feasibility in semi-structured interviews with participants and trainers.

DISCUSSION: Intervention Mapping provided a systematic procedure for the development of this e-health intervention for consumers with severe mental illness and the preparation of an early randomized controlled trial.

TRIAL REGISTRATION: The trial is registered in the Dutch Trial Register: NTR4772

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More information

Accepted/In Press date: 12 January 2016
Published date: 19 January 2016
Keywords: severe mental illness, e-mental health, illness management and recovery, intervention mapping, early randomized controlled trial
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 388437
URI: http://eprints.soton.ac.uk/id/eprint/388437
ISSN: 1472-6963
PURE UUID: e74d7122-7ff0-41ac-b06a-ed6756d8d27e
ORCID for Lisette Schoonhoven: ORCID iD orcid.org/0000-0002-7129-3766

Catalogue record

Date deposited: 25 Feb 2016 15:17
Last modified: 10 Dec 2019 01:37

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