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Disease-specific health-related quality of life (HRQL) instruments for food allergy: protocol for a systematic review

Disease-specific health-related quality of life (HRQL) instruments for food allergy: protocol for a systematic review
Disease-specific health-related quality of life (HRQL) instruments for food allergy: protocol for a systematic review
BACKGROUND: The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter-linked evidence syntheses that are being undertaken in order to provide a state-of-the-art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health-related quality of life.

METHODS: Seven bibliographic databases were searched from their inception to September 30, 2012 for disease-specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross-cultural and linguistic adaptation, using a previously reported quality assessment tool.

DISCUSSION: Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps.
food allergy, ige-mediated, qol, quality of life
1-4
Salvilla, Sarah A.
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Panesar, Sukhmeet S.
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Patel, Shyamal
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Rader, Tamara
28b4f10b-3aed-46c2-a8bf-8acec33985e3
Muraro, Antonella
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Roberts, Graham
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de-Blok, Bertine Flokstra
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Dubois, Anthony
74a4e3df-6c9d-4fd0-b870-da2c29f35aea
Sheikh, Aziz
5b7eb24b-0820-4bd6-8304-cc46bbe561a8
Salvilla, Sarah A.
0926b5d6-eaa8-44b9-a26b-cc9de36a409d
Panesar, Sukhmeet S.
ef7e7e0b-8999-4d52-9b0e-80f08e765725
Patel, Shyamal
a416bdb3-6d8a-468f-a38e-8293d239e8ee
Rader, Tamara
28b4f10b-3aed-46c2-a8bf-8acec33985e3
Muraro, Antonella
c554bef5-502b-4540-a6f0-a3f7c37f0075
Roberts, Graham
ea00db4e-84e7-4b39-8273-9b71dbd7e2f3
de-Blok, Bertine Flokstra
7769b0da-8305-440b-ab20-a55e7a33513e
Dubois, Anthony
74a4e3df-6c9d-4fd0-b870-da2c29f35aea
Sheikh, Aziz
5b7eb24b-0820-4bd6-8304-cc46bbe561a8

Salvilla, Sarah A., Panesar, Sukhmeet S., Patel, Shyamal, Rader, Tamara, Muraro, Antonella, Roberts, Graham, de-Blok, Bertine Flokstra, Dubois, Anthony and Sheikh, Aziz (2013) Disease-specific health-related quality of life (HRQL) instruments for food allergy: protocol for a systematic review. Clinical and Translational Allergy, 3 (15), 1-4. (doi:10.1186/2045-7022-3-15). (PMID:23635302)

Record type: Article

Abstract

BACKGROUND: The European Academy of Allergy and Clinical Immunology is in the process of developing its Guideline for Food Allergy and Anaphylaxis, and this systematic review is one of seven inter-linked evidence syntheses that are being undertaken in order to provide a state-of-the-art synopsis of the current evidence base in relation to epidemiology, prevention, diagnosis and clinical management, and impact on quality of life, which will be used to inform clinical recommendations. The aim of this systematic review will be to determine which validated instruments can be employed to enable assessment of the impact of, and investigations and interventions for, food allergy on health-related quality of life.

METHODS: Seven bibliographic databases were searched from their inception to September 30, 2012 for disease-specific HRQL questionnaires that were specifically designed for use with patients/carers and any articles relating to the description, development and/or the validation of the above identified HRQLs. There were no language or geographic restrictions. We will assess the development of the instruments identified and their performance properties including: validity; generalizability; responsiveness; managing missing data; how variation in patient demography was managed; and cross-cultural and linguistic adaptation, using a previously reported quality assessment tool.

DISCUSSION: Using appropriately developed and validated instruments is critical to the accurate evaluation of HRQL in people with food allergy. This review will systematically appraise the evidence on the subject and help to identify any gaps.

Text
SALVILLA Disease specific HRQL Clin Trans Allergy 2013.pdf - Version of Record
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More information

Accepted/In Press date: 11 April 2013
Published date: 1 May 2013
Keywords: food allergy, ige-mediated, qol, quality of life
Organisations: Human Development & Health

Identifiers

Local EPrints ID: 388701
URI: http://eprints.soton.ac.uk/id/eprint/388701
PURE UUID: a1c0006c-0e3d-4eef-8527-1c6eab05fa7a
ORCID for Graham Roberts: ORCID iD orcid.org/0000-0003-2252-1248

Catalogue record

Date deposited: 02 Mar 2016 11:17
Last modified: 28 Oct 2023 01:54

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Contributors

Author: Sarah A. Salvilla
Author: Sukhmeet S. Panesar
Author: Shyamal Patel
Author: Tamara Rader
Author: Antonella Muraro
Author: Graham Roberts ORCID iD
Author: Bertine Flokstra de-Blok
Author: Anthony Dubois
Author: Aziz Sheikh

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