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Burden of treatment in the light of the international classification of functioning, disability and health: a “best fit” framework synthesis

Burden of treatment in the light of the international classification of functioning, disability and health: a “best fit” framework synthesis
Burden of treatment in the light of the international classification of functioning, disability and health: a “best fit” framework synthesis
Purpose: This systematic literature review aimed to (1) summarize and explain the concept of Burden of Treatment (BoT) using the International Classification of Functioning, Disability and Health (ICF) terminology, and (2) inform the development of a future Comprehensive ICF Core Set for BoT.

Method: Searches on EMbase, Medline, CINAHL and PsycINFO were conducted. Only qualitative studies were considered for inclusion. The screening and data extraction stages were followed by a “Best-fit” framework synthesis and content analysis, using the established ICF linking rules. Screening, data extraction, quality appraisal and data analysis were performed by two independent researchers.

Results: Seventeen studies were included in this review. The “Best–fit” framework synthesis generated 179 subthemes which identified that BoT impacts negatively on body functions and structures, restricts valued activities and participation and influences contextual factors through life roles, self-identify and relationships. The identified subthemes were linked to 77 ICF categories.

Conclusions: This study is part of the preparatory phase of a Comprehensive ICF Core Set for BoT and our findings will inform the further needed studies on this phase. The use of ICF terminology to describe BoT provides an accessible route for understanding this complex concept, which is pivotal for rethinking clinical practice.
0963-8288
1253-1261
Vieira Gonçalves, Ana-Carolina
ecb4863c-186b-4ecd-abac-3745fa5fcf30
Oliveira Jácome, Cristina Isabel
8040cfe2-c6c3-4f2b-8c55-c8569293e446
Holtum Demain, Sara
09b1124d-750a-4eb1-90c7-91f5f222fc31
Hunt, Katherine J.
5eab8123-1157-4d4e-a7d9-5fd817218c6e
Pires de Dias Marques, Alda Sofia
d8990c23-6d85-4379-ae44-01002b5b9cd4
Vieira Gonçalves, Ana-Carolina
ecb4863c-186b-4ecd-abac-3745fa5fcf30
Oliveira Jácome, Cristina Isabel
8040cfe2-c6c3-4f2b-8c55-c8569293e446
Holtum Demain, Sara
09b1124d-750a-4eb1-90c7-91f5f222fc31
Hunt, Katherine J.
5eab8123-1157-4d4e-a7d9-5fd817218c6e
Pires de Dias Marques, Alda Sofia
d8990c23-6d85-4379-ae44-01002b5b9cd4

Vieira Gonçalves, Ana-Carolina, Oliveira Jácome, Cristina Isabel, Holtum Demain, Sara, Hunt, Katherine J. and Pires de Dias Marques, Alda Sofia (2017) Burden of treatment in the light of the international classification of functioning, disability and health: a “best fit” framework synthesis. Disability and Rehabilitation, 39 (13), 1253-1261. (doi:10.1080/09638288.2016.1194898).

Record type: Article

Abstract

Purpose: This systematic literature review aimed to (1) summarize and explain the concept of Burden of Treatment (BoT) using the International Classification of Functioning, Disability and Health (ICF) terminology, and (2) inform the development of a future Comprehensive ICF Core Set for BoT.

Method: Searches on EMbase, Medline, CINAHL and PsycINFO were conducted. Only qualitative studies were considered for inclusion. The screening and data extraction stages were followed by a “Best-fit” framework synthesis and content analysis, using the established ICF linking rules. Screening, data extraction, quality appraisal and data analysis were performed by two independent researchers.

Results: Seventeen studies were included in this review. The “Best–fit” framework synthesis generated 179 subthemes which identified that BoT impacts negatively on body functions and structures, restricts valued activities and participation and influences contextual factors through life roles, self-identify and relationships. The identified subthemes were linked to 77 ICF categories.

Conclusions: This study is part of the preparatory phase of a Comprehensive ICF Core Set for BoT and our findings will inform the further needed studies on this phase. The use of ICF terminology to describe BoT provides an accessible route for understanding this complex concept, which is pivotal for rethinking clinical practice.

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More information

Accepted/In Press date: 24 May 2016
e-pub ahead of print date: 3 June 2016
Published date: 2017
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 395314
URI: http://eprints.soton.ac.uk/id/eprint/395314
ISSN: 0963-8288
PURE UUID: fc702d07-2962-43d9-9099-50a0e54a5acd
ORCID for Ana-Carolina Vieira Gonçalves: ORCID iD orcid.org/0000-0003-4055-0894
ORCID for Katherine J. Hunt: ORCID iD orcid.org/0000-0002-6173-7319

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Date deposited: 27 May 2016 09:06
Last modified: 25 Jun 2024 04:01

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Contributors

Author: Ana-Carolina Vieira Gonçalves ORCID iD
Author: Cristina Isabel Oliveira Jácome
Author: Alda Sofia Pires de Dias Marques

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