Caregivers Burnout Study by Pilar Callaby of Southampton University: review of the results of a Focus Group of Carers of Patients with Dementia

Abstract

Caregiver burnout in dementia is concerned with physical and emotional exhaustion, involving the development of a negative self-concept and an unhealthy or resentful attitude toward the caregiving role (Haley, Brown & Levine, 1987). Carers generally spend the majority of their time in very close contact with the dependent and have limited associations with the outside world making the situation a crisis and encouraging residential care. Chenoweth and Kilstoff (1998) first explored the prevention of caregiver burnout through the role of mediation over a decade ago, having noticed an increase in overburdened relationships. Grounding research in its day, their idea was to rebuild relations through communication and support, improving motivation and encouraging re-conceptualisation of the dementia care role. On reflection, it seemed unfeasible that little had been uncovered on the role of repressed emotion, or in developing interventions so important to their release. Both studies had documented these predictors as amenable to interventions that helped diffuse challenging situations, but few researchers followed their lead in reconstructing suitable models, despite claims that Schofield's claims that findings were conclusive. Even fewer studies have attempted to address mediation despite psychological demands placed on empowerment and identity. In order to establish supportive interventions, it was important that tools were utilised that accurately reflected the needs of the carer situation, while encouraging a more optimistic and productive approach to the care role (Haley et al., 1987, Brodaty & Green, 1996). In order to support the carer appropriately, it was imperative that interventions reflected the seriousness of the issue, while reducing the burden of care. Ideas drawn upon in the following chapter represent key concepts involved in the facilitation of behavioural change, promoting emotional growth through self-expression cumulating in a better quality of care for the dependent

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