The University of Southampton
University of Southampton Institutional Repository

The development of a screening questionnaire for obstructive sleep apnea in children with Down Syndrome

The development of a screening questionnaire for obstructive sleep apnea in children with Down Syndrome
The development of a screening questionnaire for obstructive sleep apnea in children with Down Syndrome
Obstructive sleep apnea is a condition which affects an estimated 50% of children with Down syndrome, particularly in their early years. It can cause serious sequelae in affected children but may not be recognized by parents or health professionals. Routine screening has been recommended in some countries, but is not standard practice. There are no validated questionnaire-based tools available to screen this population of children for this particular sleep-related disorder. Using existing validated sleep questionnaire items, we have developed a questionnaire to screen children with Down syndrome up to 6 years of age for obstructive sleep apnea, which corresponds with the recommendations made in UK national guidelines. This paper describes these first steps in demonstrating content validity for a new questionnaire, which will be subject to further in-depth psychometric analysis. Relevance, clarity, and age appropriateness were rated for 33 items using a content review questionnaire by a group of 18 health professionals with expertise in respiratory pediatrics, neurodevelopmental pediatrics, and sleep physiology. The content validity index was calculated for individual items and contributed to decisions about item inclusion. Scale level content validity index for the modified questionnaire of 14 items was at an accepted level of 0.78. Two parents of children with Down syndrome took part in cognitive interviews after completing the modified questionnaire. We describe the development of this 14 item questionnaire to screen for OSA in children with DS from infancy to 6 years.
1664-0640
1-9
Sanders, Emma
653df2ce-fcce-4bd0-adcb-2438668e7e30
Hill, Catherine Mary
867cd0a0-dabc-4152-b4bf-8e9fbc0edf8d
Evans, Hazel Jean
b852cf27-9c11-403b-8e70-c54967c5c089
Tuffrey, Catherine
2262e4ee-1f62-4530-95ea-bf3e8cedd622
Sanders, Emma
653df2ce-fcce-4bd0-adcb-2438668e7e30
Hill, Catherine Mary
867cd0a0-dabc-4152-b4bf-8e9fbc0edf8d
Evans, Hazel Jean
b852cf27-9c11-403b-8e70-c54967c5c089
Tuffrey, Catherine
2262e4ee-1f62-4530-95ea-bf3e8cedd622

Sanders, Emma, Hill, Catherine Mary, Evans, Hazel Jean and Tuffrey, Catherine (2015) The development of a screening questionnaire for obstructive sleep apnea in children with Down Syndrome. Frontiers in Psychiatry, 6, 1-9. (doi:10.3389/fpsyt.2015.00147).

Record type: Article

Abstract

Obstructive sleep apnea is a condition which affects an estimated 50% of children with Down syndrome, particularly in their early years. It can cause serious sequelae in affected children but may not be recognized by parents or health professionals. Routine screening has been recommended in some countries, but is not standard practice. There are no validated questionnaire-based tools available to screen this population of children for this particular sleep-related disorder. Using existing validated sleep questionnaire items, we have developed a questionnaire to screen children with Down syndrome up to 6 years of age for obstructive sleep apnea, which corresponds with the recommendations made in UK national guidelines. This paper describes these first steps in demonstrating content validity for a new questionnaire, which will be subject to further in-depth psychometric analysis. Relevance, clarity, and age appropriateness were rated for 33 items using a content review questionnaire by a group of 18 health professionals with expertise in respiratory pediatrics, neurodevelopmental pediatrics, and sleep physiology. The content validity index was calculated for individual items and contributed to decisions about item inclusion. Scale level content validity index for the modified questionnaire of 14 items was at an accepted level of 0.78. Two parents of children with Down syndrome took part in cognitive interviews after completing the modified questionnaire. We describe the development of this 14 item questionnaire to screen for OSA in children with DS from infancy to 6 years.

Other
pubmed-zip/versions/2/pdf - Version of Record
Available under License Creative Commons Attribution.
Download (172kB)

More information

Accepted/In Press date: 24 September 2015
Published date: 20 October 2015
Organisations: Clinical & Experimental Sciences

Identifiers

Local EPrints ID: 401649
URI: https://eprints.soton.ac.uk/id/eprint/401649
ISSN: 1664-0640
PURE UUID: 29aaee3c-1aad-42b6-bd51-8a70bacdb250
ORCID for Catherine Mary Hill: ORCID iD orcid.org/0000-0003-2372-5904

Catalogue record

Date deposited: 19 Oct 2016 09:05
Last modified: 20 Jul 2019 01:10

Export record

Altmetrics

Contributors

Author: Emma Sanders
Author: Hazel Jean Evans
Author: Catherine Tuffrey

University divisions

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of https://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×