The University of Southampton
University of Southampton Institutional Repository

Living with chronic illness scale: international validation of a new self-report measure in Parkinson’s disease

Living with chronic illness scale: international validation of a new self-report measure in Parkinson’s disease
Living with chronic illness scale: international validation of a new self-report measure in Parkinson’s disease
Understanding how a person lives with a chronic illness, such as Parkinson’s disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean±s.d.) 66.67±10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach’s alpha values were 0.68–0.88; item-total correlation was >0.30, except for two items; item homogeneity index was >0.30, and inter-item correlation values 0.14–0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d.=18.57). EC-PC presented strong correlation with social support (rS=0.61) and moderate correlation with life satisfaction (rS=0.46). Weak and negligible correlations were found with the other scales. Internal validity correlations ranged from 0.46 to 0.78. EC-PC total scores were significantly different for each severity level based on Hoehn and Yahr and Clinical Impression of Severity Index, but not for Patient Global Impression of Severity. The EC-PC has satisfactory acceptability, reliability, precision, and validity to evaluate living with PD.
2373-8057
1-6
Ambrosio, Leire
a968da8b-afdb-4ed5-bcf2-7742110a048d
Portillo Vega, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Rodríguez-Blázquez, Carmen
3bb0d8ce-90cd-4b90-b4e4-a5cd82e711ec
Rodriguez-Violante, Mayela
bc3ca43e-bb7b-459a-82b4-2c9bf7a5ecb5
Castrillo, Juan Carlos Martínez
c688af77-9d58-4dd4-b8e3-096470a3be8e
Arillo, Víctor Campos
387d8c71-2998-44ce-8a62-7ecb27f702f8
Garretto, Nélida Susana
1c2c089d-f609-4351-810a-63cd7f8fecfc
Arakaki, Tomoko
6310f127-e6a9-42c1-ba8a-ef236f393c0f
Dueñas, Marcos Serrano
15a4134d-625e-4617-88bc-77ab01e85794
Álvarez, Mario
8577b84e-9a18-499e-b93f-62b11c80ae02
Ibáñez, Ivonne Pedroso
90999432-aac4-4f25-81ec-341b2f54b6dc
Carvajal, Ana
6011e3ca-3566-4c16-9bfb-cdef932147ee
Martínez-Martín, Pablo
7ff5d863-b049-4e05-ae48-854029b7e3f2
Ambrosio, Leire
a968da8b-afdb-4ed5-bcf2-7742110a048d
Portillo Vega, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Rodríguez-Blázquez, Carmen
3bb0d8ce-90cd-4b90-b4e4-a5cd82e711ec
Rodriguez-Violante, Mayela
bc3ca43e-bb7b-459a-82b4-2c9bf7a5ecb5
Castrillo, Juan Carlos Martínez
c688af77-9d58-4dd4-b8e3-096470a3be8e
Arillo, Víctor Campos
387d8c71-2998-44ce-8a62-7ecb27f702f8
Garretto, Nélida Susana
1c2c089d-f609-4351-810a-63cd7f8fecfc
Arakaki, Tomoko
6310f127-e6a9-42c1-ba8a-ef236f393c0f
Dueñas, Marcos Serrano
15a4134d-625e-4617-88bc-77ab01e85794
Álvarez, Mario
8577b84e-9a18-499e-b93f-62b11c80ae02
Ibáñez, Ivonne Pedroso
90999432-aac4-4f25-81ec-341b2f54b6dc
Carvajal, Ana
6011e3ca-3566-4c16-9bfb-cdef932147ee
Martínez-Martín, Pablo
7ff5d863-b049-4e05-ae48-854029b7e3f2

Ambrosio, Leire, Portillo Vega, Mari Carmen, Rodríguez-Blázquez, Carmen, Rodriguez-Violante, Mayela, Castrillo, Juan Carlos Martínez, Arillo, Víctor Campos, Garretto, Nélida Susana, Arakaki, Tomoko, Dueñas, Marcos Serrano, Álvarez, Mario, Ibáñez, Ivonne Pedroso, Carvajal, Ana and Martínez-Martín, Pablo (2016) Living with chronic illness scale: international validation of a new self-report measure in Parkinson’s disease. npj Parkinson's Disease, 2 (16022), 1-6. (doi:10.1038/npjparkd.2016.22).

Record type: Article

Abstract

Understanding how a person lives with a chronic illness, such as Parkinson’s disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean±s.d.) 66.67±10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach’s alpha values were 0.68–0.88; item-total correlation was >0.30, except for two items; item homogeneity index was >0.30, and inter-item correlation values 0.14–0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d.=18.57). EC-PC presented strong correlation with social support (rS=0.61) and moderate correlation with life satisfaction (rS=0.46). Weak and negligible correlations were found with the other scales. Internal validity correlations ranged from 0.46 to 0.78. EC-PC total scores were significantly different for each severity level based on Hoehn and Yahr and Clinical Impression of Severity Index, but not for Patient Global Impression of Severity. The EC-PC has satisfactory acceptability, reliability, precision, and validity to evaluate living with PD.

Text
Living with chronic illness scale.pdf - Version of Record
Available under License Creative Commons Attribution.
Download (342kB)

More information

Accepted/In Press date: 23 August 2016
e-pub ahead of print date: 20 October 2016
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 403680
URI: http://eprints.soton.ac.uk/id/eprint/403680
ISSN: 2373-8057
PURE UUID: deba4e6b-e9de-4e9d-8a11-3519c5c36d76
ORCID for Mari Carmen Portillo Vega: ORCID iD orcid.org/0000-0003-1583-6612

Catalogue record

Date deposited: 07 Dec 2016 16:48
Last modified: 06 Jun 2018 12:21

Export record

Altmetrics

Contributors

Author: Leire Ambrosio
Author: Carmen Rodríguez-Blázquez
Author: Mayela Rodriguez-Violante
Author: Juan Carlos Martínez Castrillo
Author: Víctor Campos Arillo
Author: Nélida Susana Garretto
Author: Tomoko Arakaki
Author: Marcos Serrano Dueñas
Author: Mario Álvarez
Author: Ivonne Pedroso Ibáñez
Author: Ana Carvajal
Author: Pablo Martínez-Martín

University divisions

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×