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'The ICECAP-SCM tells you more about what I'm going through: a think-aloud study measuring quality of life among patients receiving supportive and palliative care

'The ICECAP-SCM tells you more about what I'm going through: a think-aloud study measuring quality of life among patients receiving supportive and palliative care
'The ICECAP-SCM tells you more about what I'm going through: a think-aloud study measuring quality of life among patients receiving supportive and palliative care
Background: The ICECAP-Supportive Care Measure is a self-complete questionnaire developed to aid economic evaluation of supportive care interventions.

Aim: To determine the feasibility of completing ICECAP–Supportive Care Measure alongside EQ-5D-5L and ICECAP-A (generic measures used in economic evaluation) among patients receiving hospice care, close persons and healthcare professionals.

Design: Participants were asked to ‘think aloud’ while completing ICECAP-Supportive Care Measure and two other generic measures used in economic evaluation, EQ-5D-5L and ICECAP-A, and then participate in a semi-structured interview. From verbatim transcripts, five raters identified the frequency of errors in comprehension, retrieval, judgement and response. Qualitative data were analysed using constant comparison.

Setting/participants: Eligible patients were identified from one UK hospice by a research nurse. Close persons and healthcare professionals were identified by the patient. In all, 72 semi-structured interviews were conducted with patients (n?=?33), close persons (n?=?22) and healthcare professionals (n?=?17).

Results: Patients and close persons reported that the ICECAP-Supportive Care Measure was most appropriate for measuring their quality of life. It appeared more meaningful, easier to complete and had fewest errors (3.9% among patients, 4.5% among close persons) compared to EQ-5D-5L (9.7% among patients, 5.5% among close persons). Healthcare professionals acknowledged the value of the ICECAP-Supportive Care Measure but had fewer errors in completing the EQ-5D-5L (3.5% versus 6.7%). They found it easier to complete because it focuses on observable health states.

Conclusions: The ICECAP-Supportive Care Measure is feasible to use and perceived as appropriate for evaluating palliative care interventions. Healthcare professionals with limited knowledge of the patient who act as proxy completers may find the measure difficult to complete.
0269-2163
642-652
Bailey, C.
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Kinghorn, P.
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Orlando, R.
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Armour, K.
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Perry, R.
40cdf881-b9da-4bac-a76a-89c6fcf156a5
Jones, L.
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Coast, J.
f0fb778e-1ce7-4dbc-a339-f0d4a9280a5d
Bailey, C.
e4c10869-bc21-42d7-b5fb-829bd810dbc2
Kinghorn, P.
74ee1a61-bcd9-43b4-a811-9ad77911d10c
Orlando, R.
cc20c869-ca7f-4518-ad2d-0fa56caa3c86
Armour, K.
d7a1c4ef-1880-4356-bfca-ff98ac0272f0
Perry, R.
40cdf881-b9da-4bac-a76a-89c6fcf156a5
Jones, L.
b873ef7a-7df0-4411-9287-b35c45663770
Coast, J.
f0fb778e-1ce7-4dbc-a339-f0d4a9280a5d

Bailey, C., Kinghorn, P., Orlando, R., Armour, K., Perry, R., Jones, L. and Coast, J. (2016) 'The ICECAP-SCM tells you more about what I'm going through: a think-aloud study measuring quality of life among patients receiving supportive and palliative care. Palliative Medicine, 30 (7), 642-652. (doi:10.1177/0269216315624890).

Record type: Article

Abstract

Background: The ICECAP-Supportive Care Measure is a self-complete questionnaire developed to aid economic evaluation of supportive care interventions.

Aim: To determine the feasibility of completing ICECAP–Supportive Care Measure alongside EQ-5D-5L and ICECAP-A (generic measures used in economic evaluation) among patients receiving hospice care, close persons and healthcare professionals.

Design: Participants were asked to ‘think aloud’ while completing ICECAP-Supportive Care Measure and two other generic measures used in economic evaluation, EQ-5D-5L and ICECAP-A, and then participate in a semi-structured interview. From verbatim transcripts, five raters identified the frequency of errors in comprehension, retrieval, judgement and response. Qualitative data were analysed using constant comparison.

Setting/participants: Eligible patients were identified from one UK hospice by a research nurse. Close persons and healthcare professionals were identified by the patient. In all, 72 semi-structured interviews were conducted with patients (n?=?33), close persons (n?=?22) and healthcare professionals (n?=?17).

Results: Patients and close persons reported that the ICECAP-Supportive Care Measure was most appropriate for measuring their quality of life. It appeared more meaningful, easier to complete and had fewest errors (3.9% among patients, 4.5% among close persons) compared to EQ-5D-5L (9.7% among patients, 5.5% among close persons). Healthcare professionals acknowledged the value of the ICECAP-Supportive Care Measure but had fewer errors in completing the EQ-5D-5L (3.5% versus 6.7%). They found it easier to complete because it focuses on observable health states.

Conclusions: The ICECAP-Supportive Care Measure is feasible to use and perceived as appropriate for evaluating palliative care interventions. Healthcare professionals with limited knowledge of the patient who act as proxy completers may find the measure difficult to complete.

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More information

Accepted/In Press date: 8 December 2015
e-pub ahead of print date: 28 January 2016
Published date: 1 July 2016
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 404448
URI: https://eprints.soton.ac.uk/id/eprint/404448
ISSN: 0269-2163
PURE UUID: b53f8d62-a5b4-4569-b3a7-c65f0bdfe137
ORCID for R. Orlando: ORCID iD orcid.org/0000-0002-7097-5431

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Date deposited: 10 Jan 2017 13:54
Last modified: 15 Aug 2019 00:33

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