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Parental perceptions of hypothermia treatment for neonatal hypoxic- ischaemic encephalopathy

Parental perceptions of hypothermia treatment for neonatal hypoxic- ischaemic encephalopathy
Parental perceptions of hypothermia treatment for neonatal hypoxic- ischaemic encephalopathy
Aims: hypothermia Treatment (HT) is now the standard of care for neonatal hypoxic-ischemic encephalopathy (HIE). We conducted a survey to explore parental perceptions of HT as there is little information about this in the current literature.

Methods: postal questionnaire survey including families (n=51) whose babies received HT at Princess Anne Hospital, Southampton, UK , with 23 questions covering communication, clinical management, follow-up, and care in general. Statistical analysis of descriptive and analytical tests were done using Minitab 16.

Results: the response rate was 60.8%. All parents had concerns amongst which perceptions of pain and distress were described by 41%. Temporary concerns about bonding were common (83.8%), more so in babies transferred from other hospitals (p=0.04). Only 61.3% felt they had a good understanding of HT. The need for improvements in the quality (71%) and frequency of communication (48.3%) were also highlighted.

Conclusion: parents were worried about pain and distress, bonding and about outcomes after HT. Consistency in communication, regular updates, involvement of parents in decision making, strong support mechanisms and balanced discussions about long term outcomes at an early stage are of high importance to families whose babies undergo HT.
1-7
Thyagarajan, Balamurugan
35ab1c17-1caf-442b-b4cc-c2dfb5b8a7ac
Baral, Vijay
f3a17558-034e-4e67-a1f0-69b4e58d4979
Gunda, Ranjit
665a63e3-a8d3-4d11-96d9-580c2d65faea
Hart, Denise
b0beb551-4d07-46b5-bfce-9f3f759aa97b
Leppard, Lisa
f8b94d39-9894-41f8-a0bc-92a214e305b9
Vollmer, Brigitte
044f8b55-ba36-4fb2-8e7e-756ab77653ba
Thyagarajan, Balamurugan
35ab1c17-1caf-442b-b4cc-c2dfb5b8a7ac
Baral, Vijay
f3a17558-034e-4e67-a1f0-69b4e58d4979
Gunda, Ranjit
665a63e3-a8d3-4d11-96d9-580c2d65faea
Hart, Denise
b0beb551-4d07-46b5-bfce-9f3f759aa97b
Leppard, Lisa
f8b94d39-9894-41f8-a0bc-92a214e305b9
Vollmer, Brigitte
044f8b55-ba36-4fb2-8e7e-756ab77653ba

Thyagarajan, Balamurugan, Baral, Vijay, Gunda, Ranjit, Hart, Denise, Leppard, Lisa and Vollmer, Brigitte (2017) Parental perceptions of hypothermia treatment for neonatal hypoxic- ischaemic encephalopathy. The Journal of Maternal-Fetal & Neonatal Medicine, 1-7. (doi:10.1080/14767058.2017.1346074).

Record type: Article

Abstract

Aims: hypothermia Treatment (HT) is now the standard of care for neonatal hypoxic-ischemic encephalopathy (HIE). We conducted a survey to explore parental perceptions of HT as there is little information about this in the current literature.

Methods: postal questionnaire survey including families (n=51) whose babies received HT at Princess Anne Hospital, Southampton, UK , with 23 questions covering communication, clinical management, follow-up, and care in general. Statistical analysis of descriptive and analytical tests were done using Minitab 16.

Results: the response rate was 60.8%. All parents had concerns amongst which perceptions of pain and distress were described by 41%. Temporary concerns about bonding were common (83.8%), more so in babies transferred from other hospitals (p=0.04). Only 61.3% felt they had a good understanding of HT. The need for improvements in the quality (71%) and frequency of communication (48.3%) were also highlighted.

Conclusion: parents were worried about pain and distress, bonding and about outcomes after HT. Consistency in communication, regular updates, involvement of parents in decision making, strong support mechanisms and balanced discussions about long term outcomes at an early stage are of high importance to families whose babies undergo HT.

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23_06_2017_Parental p - Accepted Manuscript
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More information

Accepted/In Press date: 19 June 2017
e-pub ahead of print date: 11 July 2017
Organisations: Clinical & Experimental Sciences

Identifiers

Local EPrints ID: 411763
URI: https://eprints.soton.ac.uk/id/eprint/411763
PURE UUID: 9aa23c65-8047-4378-92ea-ce3fbecaf289
ORCID for Brigitte Vollmer: ORCID iD orcid.org/0000-0003-4088-5336

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Date deposited: 23 Jun 2017 16:31
Last modified: 10 Dec 2019 05:57

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