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GUILD: GUidance for Information about Linking Data sets

GUILD: GUidance for Information about Linking Data sets
GUILD: GUidance for Information about Linking Data sets
Record linkage of administrative and survey data is increasingly used to generate evidence to inform policy and services. Although a powerful and efficient way of generating new information from existing data sets, errors related to data processing before, during and after linkage can bias results. However, researchers and users of linked data rarely have access to information that can be used to assess these biases or take them into account in analyses. As linked administrative data are increasingly used to provide evidence to guide policy and services, linkage error, which disproportionately affects disadvantaged groups, can undermine evidence for public health. We convened a group of researchers and experts from government data providers to develop guidance about the information that needs to be made available about the data linkage process, by data providers, data linkers, analysts and the researchers who write reports. The guidance goes beyond recommendations for information to be included in research reports. Our aim is to raise awareness of information that may be required at each step of the linkage pathway to improve the transparency, reproducibility, and accuracy of linkage processes, and the validity of analyses and interpretation of results.
Gilbert, Ruth
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Lafferty, Rosemary
a075fa1f-ee43-443a-bfa4-edc8eccade26
Hagger-Johnson, Gareth
c43ca196-15aa-4777-b225-2ea30cb69baf
Harron, Katie
12926f77-bc77-49fb-a92a-aaba4c726806
Zhang, Li-Chun
a5d48518-7f71-4ed9-bdcb-6585c2da3649
Smith, Peter
961a01a3-bf4c-43ca-9599-5be4fd5d3940
Dibben, Chris
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Goldstein, Harvey
2dbd6fb2-6cd0-4364-84c3-80440bcc6558
Gilbert, Ruth
52d0021a-1ed2-4021-a11a-b3a344095a6e
Lafferty, Rosemary
a075fa1f-ee43-443a-bfa4-edc8eccade26
Hagger-Johnson, Gareth
c43ca196-15aa-4777-b225-2ea30cb69baf
Harron, Katie
12926f77-bc77-49fb-a92a-aaba4c726806
Zhang, Li-Chun
a5d48518-7f71-4ed9-bdcb-6585c2da3649
Smith, Peter
961a01a3-bf4c-43ca-9599-5be4fd5d3940
Dibben, Chris
fd69f5d0-e346-4609-84d6-eb2bfcbfa4b7
Goldstein, Harvey
2dbd6fb2-6cd0-4364-84c3-80440bcc6558

Gilbert, Ruth, Lafferty, Rosemary, Hagger-Johnson, Gareth, Harron, Katie, Zhang, Li-Chun, Smith, Peter, Dibben, Chris and Goldstein, Harvey (2017) GUILD: GUidance for Information about Linking Data sets. Journal of Public Health. (doi:10.1093/pubmed/fdx037).

Record type: Article

Abstract

Record linkage of administrative and survey data is increasingly used to generate evidence to inform policy and services. Although a powerful and efficient way of generating new information from existing data sets, errors related to data processing before, during and after linkage can bias results. However, researchers and users of linked data rarely have access to information that can be used to assess these biases or take them into account in analyses. As linked administrative data are increasingly used to provide evidence to guide policy and services, linkage error, which disproportionately affects disadvantaged groups, can undermine evidence for public health. We convened a group of researchers and experts from government data providers to develop guidance about the information that needs to be made available about the data linkage process, by data providers, data linkers, analysts and the researchers who write reports. The guidance goes beyond recommendations for information to be included in research reports. Our aim is to raise awareness of information that may be required at each step of the linkage pathway to improve the transparency, reproducibility, and accuracy of linkage processes, and the validity of analyses and interpretation of results.

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Accepted/In Press date: 14 February 2017
e-pub ahead of print date: 28 March 2017

Identifiers

Local EPrints ID: 413702
URI: http://eprints.soton.ac.uk/id/eprint/413702
PURE UUID: 383963dd-c0dd-41bf-8c5e-9a4781a9d90b
ORCID for Li-Chun Zhang: ORCID iD orcid.org/0000-0002-3944-9484
ORCID for Peter Smith: ORCID iD orcid.org/0000-0003-4423-5410

Catalogue record

Date deposited: 31 Aug 2017 16:31
Last modified: 16 Mar 2024 04:13

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Contributors

Author: Ruth Gilbert
Author: Rosemary Lafferty
Author: Gareth Hagger-Johnson
Author: Katie Harron
Author: Li-Chun Zhang ORCID iD
Author: Peter Smith ORCID iD
Author: Chris Dibben
Author: Harvey Goldstein

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