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Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end of life care in England

Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end of life care in England
Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end of life care in England
The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have died, regardless of cause and setting, and made publicly available informing palliative and end-of-life policy, service provision and development, and practice. This paper describes the development of the questionnaire used in the survey, VOICES-SF, a short-form of the VOICES (Views Of Informal Carers—Evaluation of Services) questionnaire, adapted specifically to address the aims of the national survey. The pilot study to refine methods for the national survey is also described. The paper also reports on the development of the retrospective, after-death or mortality follow-back method in palliative and end-of-life care, and reviews its strengths and weaknesses.
2045-435X
Hunt, Katherine
5eab8123-1157-4d4e-a7d9-5fd817218c6e
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962
Addington-Hall, Julia
87560cc4-7562-4f9b-b908-81f3b603fdd8
Hunt, Katherine
5eab8123-1157-4d4e-a7d9-5fd817218c6e
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Darlington, Anne-Sophie
472fcfc9-160b-4344-8113-8dd8760ff962
Addington-Hall, Julia
87560cc4-7562-4f9b-b908-81f3b603fdd8

Hunt, Katherine, Richardson, Alison, Darlington, Anne-Sophie and Addington-Hall, Julia (2017) Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end of life care in England. BMJ Supportive & Palliative Care. (doi:10.1136/bmjspcare-2016-001288).

Record type: Article

Abstract

The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have died, regardless of cause and setting, and made publicly available informing palliative and end-of-life policy, service provision and development, and practice. This paper describes the development of the questionnaire used in the survey, VOICES-SF, a short-form of the VOICES (Views Of Informal Carers—Evaluation of Services) questionnaire, adapted specifically to address the aims of the national survey. The pilot study to refine methods for the national survey is also described. The paper also reports on the development of the retrospective, after-death or mortality follow-back method in palliative and end-of-life care, and reviews its strengths and weaknesses.

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Developing the methods and questionnaire - VOICES-SF - Accepted Manuscript
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Accepted/In Press date: 15 September 2017
e-pub ahead of print date: 3 November 2017

Identifiers

Local EPrints ID: 414852
URI: http://eprints.soton.ac.uk/id/eprint/414852
ISSN: 2045-435X
PURE UUID: 428f4a3f-589d-4673-b273-c3f8e78a1329
ORCID for Katherine Hunt: ORCID iD orcid.org/0000-0002-6173-7319
ORCID for Alison Richardson: ORCID iD orcid.org/0000-0003-3127-5755

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Date deposited: 12 Oct 2017 16:31
Last modified: 25 Jun 2024 01:43

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