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Positioning children’s voice in clinical trials research: A new model for planning, collaboration, and reflection

Positioning children’s voice in clinical trials research: A new model for planning, collaboration, and reflection
Positioning children’s voice in clinical trials research: A new model for planning, collaboration, and reflection
Following the United Nations Convention on the Rights of the Child, there has been considerable growth in research with children about health and services that affect them. Creative methods to engage with children have also been developed. One area where progress has been slower is the inclusion of children’s perspectives in qualitative research in the context of clinical trials or feasibility studies. Addressing this gap, this article discusses experiences of, and reflections on, the process of researching children’s views as part of a clinical feasibility study. The article considers what worked well and highlights remaining dilemmas. A new continuum of children’s engagement in research is presented, designed to assist researchers to make explicit the contingent demands on their research, and to suggest a range of techniques from within the broader fields of health, childhood studies, and education research that could be used to forward qualitative research in clinical contexts.
children, illness and disease, LIVED EXPERIENCE, Methodology, RESEARCH DESIGN, QUALITATIVE, SEMI-STRUCTURED INTERVIEWS, United Kingdom
1049-7323
Lees, Amanda
280a1876-2e23-477f-a770-70d46ff70040
Payler, Jane K.
9e0243a7-5eb7-4c89-a764-6ef6013a1e28
Ballinger, Claire
1495742c-90aa-4074-920e-95e6cc3d5380
Lawrence, Penny
0e523807-987d-4d71-9cd5-1fda19a92697
Faust, Saul N.
f97df780-9f9b-418e-b349-7adf63e150c1
Meads, Geoffrey
6d2f965c-5c64-467f-a288-d163da067d62
Lees, Amanda
280a1876-2e23-477f-a770-70d46ff70040
Payler, Jane K.
9e0243a7-5eb7-4c89-a764-6ef6013a1e28
Ballinger, Claire
1495742c-90aa-4074-920e-95e6cc3d5380
Lawrence, Penny
0e523807-987d-4d71-9cd5-1fda19a92697
Faust, Saul N.
f97df780-9f9b-418e-b349-7adf63e150c1
Meads, Geoffrey
6d2f965c-5c64-467f-a288-d163da067d62

Lees, Amanda, Payler, Jane K., Ballinger, Claire, Lawrence, Penny, Faust, Saul N. and Meads, Geoffrey (2017) Positioning children’s voice in clinical trials research: A new model for planning, collaboration, and reflection. Qualitative Health Research. (doi:10.1177/1049732317726760).

Record type: Article

Abstract

Following the United Nations Convention on the Rights of the Child, there has been considerable growth in research with children about health and services that affect them. Creative methods to engage with children have also been developed. One area where progress has been slower is the inclusion of children’s perspectives in qualitative research in the context of clinical trials or feasibility studies. Addressing this gap, this article discusses experiences of, and reflections on, the process of researching children’s views as part of a clinical feasibility study. The article considers what worked well and highlights remaining dilemmas. A new continuum of children’s engagement in research is presented, designed to assist researchers to make explicit the contingent demands on their research, and to suggest a range of techniques from within the broader fields of health, childhood studies, and education research that could be used to forward qualitative research in clinical contexts.

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More information

Accepted/In Press date: 25 July 2017
e-pub ahead of print date: 24 August 2017
Keywords: children, illness and disease, LIVED EXPERIENCE, Methodology, RESEARCH DESIGN, QUALITATIVE, SEMI-STRUCTURED INTERVIEWS, United Kingdom

Identifiers

Local EPrints ID: 415022
URI: https://eprints.soton.ac.uk/id/eprint/415022
ISSN: 1049-7323
PURE UUID: 61be3751-8513-4f6d-9e82-6d0fd6a40390
ORCID for Saul N. Faust: ORCID iD orcid.org/0000-0003-3410-7642

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Date deposited: 20 Oct 2017 16:31
Last modified: 10 Dec 2019 01:43

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Contributors

Author: Amanda Lees
Author: Jane K. Payler
Author: Claire Ballinger
Author: Penny Lawrence
Author: Saul N. Faust ORCID iD
Author: Geoffrey Meads

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