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Feasibility trial for primary stroke prevention in children with sickle cell anemia in Nigeria (SPIN trial)

Feasibility trial for primary stroke prevention in children with sickle cell anemia in Nigeria (SPIN trial)
Feasibility trial for primary stroke prevention in children with sickle cell anemia in Nigeria (SPIN trial)

The vast majority of children with sickle cell anemia (SCA) live in Africa, where evidence-based guidelines for primary stroke prevention are lacking. In Kano, Nigeria, we conducted a feasibility trial to determine the acceptability of hydroxyurea therapy for primary stroke prevention in children with abnormal transcranial Doppler (TCD) measurements. Children with SCA and abnormal non-imaging TCD measurements (≥200 cm/s) received moderate fixed-dose hydroxyurea therapy (∼20 mg/kg/day). A comparison group of children with TCD measurements <200 cm/s was followed prospectively. Approximately 88% (330 of 375) of families agreed to be screened, while 87% (29 of 33) of those with abnormal TCD measurements, enrolled in the trial. No participant elected to withdraw from the trial. The average mean corpuscular volume increased from 85.7 fl at baseline to 95.5 fl at 24 months (not all of the children who crossed over had a 24 month visit), demonstrating adherence to hydroxyurea. The comparison group consisted of initially 210 children, of which four developed abnormal TCD measurements, and were started on hydroxyurea. None of the monthly research visits were missed (n = total 603 visits). Two and 10 deaths occurred in the treatment and comparison groups, with mortality rates of 2.69 and 1.81 per 100 patient-years, respectively (P = .67). Our results provide strong evidence, for high family recruitment, retention, and adherence rates, to undertake the first randomized controlled trial with hydroxyurea therapy for primary stroke prevention in children with SCA living in Africa.

Anemia, Sickle Cell, Antisickling Agents, Child, Child, Preschool, Female, Follow-Up Studies, Hospitalization, Humans, Hydroxyurea, Incidence, Male, Medication Adherence, Nigeria, Reproducibility of Results, Sensitivity and Specificity, Stroke, Treatment Outcome, Ultrasonography, Doppler, Transcranial, Clinical Trial, Phase III, Journal Article
0361-8609
780-788
Galadanci, Najibah A.
80dec9f8-31bc-4f08-886f-bd4e8477a671
Umar Abdullahi, Shehu
16db6610-f79c-467b-804f-2a9f196c7453
Vance, Leah D.
78901d1e-ffd1-4624-b5f5-3f13fca8c496
Musa Tabari, Abdulkadir
ea92007a-faa7-45fa-a209-6ba7d116cc4f
Ali, Shehi
b68014bc-740f-44c2-877e-35f668f850fc
Belonwu, Raymond
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Salihu, Auwal
b53aac95-0ceb-4f11-90eb-bd257e4144e5
Amal Galadanci, Aisha
95e6bb34-a1aa-4b35-a69c-a3f4f5208c59
Wudil Jibir, Binta
c7af54c1-2150-43e5-8de8-fc32e1c9d1ae
Bello-Manga, Halima
1c27c17a-c818-46ed-9925-709763ad0e23
Neville, Kathleen
f072b96f-234e-4152-9456-e6547930a628
Kirkham, Fenella J
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Shyr, Yu
cc4a2b20-95f5-4329-ac05-27046d025c6a
Phillips, Sharon
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Covert, Brittany V.
fe5cd779-28e7-4822-93d7-bd2c0b7bc505
Kassim, Adetola A.
5cb6d6cb-8ec6-4ffb-b939-f3c10f1599ee
Jordan, Lori C.
a9c77505-fc6e-4ab7-bba2-eed55c93bbb1
Aliyu, Muktar H.
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DeBaun, Michael R.
76559153-80c6-4642-bdf8-672a75570dfe
Galadanci, Najibah A.
80dec9f8-31bc-4f08-886f-bd4e8477a671
Umar Abdullahi, Shehu
16db6610-f79c-467b-804f-2a9f196c7453
Vance, Leah D.
78901d1e-ffd1-4624-b5f5-3f13fca8c496
Musa Tabari, Abdulkadir
ea92007a-faa7-45fa-a209-6ba7d116cc4f
Ali, Shehi
b68014bc-740f-44c2-877e-35f668f850fc
Belonwu, Raymond
672fa7bc-e7d4-41b0-bd18-6eec42703d10
Salihu, Auwal
b53aac95-0ceb-4f11-90eb-bd257e4144e5
Amal Galadanci, Aisha
95e6bb34-a1aa-4b35-a69c-a3f4f5208c59
Wudil Jibir, Binta
c7af54c1-2150-43e5-8de8-fc32e1c9d1ae
Bello-Manga, Halima
1c27c17a-c818-46ed-9925-709763ad0e23
Neville, Kathleen
f072b96f-234e-4152-9456-e6547930a628
Kirkham, Fenella J
1dfbc0d5-aebe-4439-9fb2-dac6503bcd58
Shyr, Yu
cc4a2b20-95f5-4329-ac05-27046d025c6a
Phillips, Sharon
4179f31b-f66b-4f25-a1c8-7c9c44f196ac
Covert, Brittany V.
fe5cd779-28e7-4822-93d7-bd2c0b7bc505
Kassim, Adetola A.
5cb6d6cb-8ec6-4ffb-b939-f3c10f1599ee
Jordan, Lori C.
a9c77505-fc6e-4ab7-bba2-eed55c93bbb1
Aliyu, Muktar H.
8acd6d5a-d6f7-4560-8fbf-76fd616ef2b7
DeBaun, Michael R.
76559153-80c6-4642-bdf8-672a75570dfe

Galadanci, Najibah A., Umar Abdullahi, Shehu, Vance, Leah D., Musa Tabari, Abdulkadir, Ali, Shehi, Belonwu, Raymond, Salihu, Auwal, Amal Galadanci, Aisha, Wudil Jibir, Binta, Bello-Manga, Halima, Neville, Kathleen, Kirkham, Fenella J, Shyr, Yu, Phillips, Sharon, Covert, Brittany V., Kassim, Adetola A., Jordan, Lori C., Aliyu, Muktar H. and DeBaun, Michael R. (2017) Feasibility trial for primary stroke prevention in children with sickle cell anemia in Nigeria (SPIN trial). American Journal of Hematology, 92 (8), 780-788. (doi:10.1002/ajh.24770).

Record type: Article

Abstract

The vast majority of children with sickle cell anemia (SCA) live in Africa, where evidence-based guidelines for primary stroke prevention are lacking. In Kano, Nigeria, we conducted a feasibility trial to determine the acceptability of hydroxyurea therapy for primary stroke prevention in children with abnormal transcranial Doppler (TCD) measurements. Children with SCA and abnormal non-imaging TCD measurements (≥200 cm/s) received moderate fixed-dose hydroxyurea therapy (∼20 mg/kg/day). A comparison group of children with TCD measurements <200 cm/s was followed prospectively. Approximately 88% (330 of 375) of families agreed to be screened, while 87% (29 of 33) of those with abnormal TCD measurements, enrolled in the trial. No participant elected to withdraw from the trial. The average mean corpuscular volume increased from 85.7 fl at baseline to 95.5 fl at 24 months (not all of the children who crossed over had a 24 month visit), demonstrating adherence to hydroxyurea. The comparison group consisted of initially 210 children, of which four developed abnormal TCD measurements, and were started on hydroxyurea. None of the monthly research visits were missed (n = total 603 visits). Two and 10 deaths occurred in the treatment and comparison groups, with mortality rates of 2.69 and 1.81 per 100 patient-years, respectively (P = .67). Our results provide strong evidence, for high family recruitment, retention, and adherence rates, to undertake the first randomized controlled trial with hydroxyurea therapy for primary stroke prevention in children with SCA living in Africa.

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Accepted/In Press date: 18 April 2017
e-pub ahead of print date: 15 June 2017
Published date: August 2017
Keywords: Anemia, Sickle Cell, Antisickling Agents, Child, Child, Preschool, Female, Follow-Up Studies, Hospitalization, Humans, Hydroxyurea, Incidence, Male, Medication Adherence, Nigeria, Reproducibility of Results, Sensitivity and Specificity, Stroke, Treatment Outcome, Ultrasonography, Doppler, Transcranial, Clinical Trial, Phase III, Journal Article

Identifiers

Local EPrints ID: 417628
URI: http://eprints.soton.ac.uk/id/eprint/417628
ISSN: 0361-8609
PURE UUID: d6f3ae14-b3f6-4a94-8bc4-6177a844ff6f
ORCID for Fenella J Kirkham: ORCID iD orcid.org/0000-0002-2443-7958

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Date deposited: 07 Feb 2018 17:30
Last modified: 16 Mar 2024 06:10

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Contributors

Author: Najibah A. Galadanci
Author: Shehu Umar Abdullahi
Author: Leah D. Vance
Author: Abdulkadir Musa Tabari
Author: Shehi Ali
Author: Raymond Belonwu
Author: Auwal Salihu
Author: Aisha Amal Galadanci
Author: Binta Wudil Jibir
Author: Halima Bello-Manga
Author: Kathleen Neville
Author: Yu Shyr
Author: Sharon Phillips
Author: Brittany V. Covert
Author: Adetola A. Kassim
Author: Lori C. Jordan
Author: Muktar H. Aliyu
Author: Michael R. DeBaun

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