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Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1
Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

1753-6561
Halbeisen, Florian
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Hogg, Claire
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Alanin, Mikkel C.
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Bukowy-Bieryllo, Zuzanna
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Dasi, Francisco
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Duncan, Julie
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Friend, Amanda
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Goutaki, Myrofora
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Jackson, Claire
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Keenan, Victoria
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Harris, Amanda
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Hirst, Robert A.
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Latzin, Philipp
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Marsh, Gemma
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Nielsen, Kim
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Norris, Dominic
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Pellicer, Daniel
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Reula, Ana
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Rubbo, Bruna
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Rumman, Nisreen
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Shoemark, Amelia
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Walker, Woolf T.
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Kuehni, Claudia E.
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Lucas, Jane S.
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Halbeisen, Florian
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Hogg, Claire
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Alanin, Mikkel C.
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Bukowy-Bieryllo, Zuzanna
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Dasi, Francisco
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Duncan, Julie
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Friend, Amanda
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Goutaki, Myrofora
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Jackson, Claire
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Keenan, Victoria
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Harris, Amanda
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Hirst, Robert A.
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Latzin, Philipp
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Marsh, Gemma
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Nielsen, Kim
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Pellicer, Daniel
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Reula, Ana
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Rubbo, Bruna
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Rumman, Nisreen
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Shoemark, Amelia
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Walker, Woolf T.
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Kuehni, Claudia E.
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Lucas, Jane S.
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Halbeisen, Florian, Hogg, Claire, Alanin, Mikkel C., Bukowy-Bieryllo, Zuzanna, Dasi, Francisco, Duncan, Julie, Friend, Amanda, Goutaki, Myrofora, Jackson, Claire, Keenan, Victoria, Harris, Amanda, Hirst, Robert A., Latzin, Philipp, Marsh, Gemma, Nielsen, Kim, Norris, Dominic, Pellicer, Daniel, Reula, Ana, Rubbo, Bruna, Rumman, Nisreen, Shoemark, Amelia, Walker, Woolf T., Kuehni, Claudia E. and Lucas, Jane S. (2018) Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1. BMC Proceedings, 12, [1]. (doi:10.1186/s12919-018-0098-9).

Record type: Article

Abstract

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

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e-pub ahead of print date: 5 March 2018

Identifiers

Local EPrints ID: 418741
URI: http://eprints.soton.ac.uk/id/eprint/418741
ISSN: 1753-6561
PURE UUID: 2fb29705-4a46-4c6f-a342-38e54a30265b
ORCID for Bruna Rubbo: ORCID iD orcid.org/0000-0002-1629-8601

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Date deposited: 21 Mar 2018 17:30
Last modified: 26 Nov 2021 03:04

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Contributors

Author: Florian Halbeisen
Author: Claire Hogg
Author: Mikkel C. Alanin
Author: Zuzanna Bukowy-Bieryllo
Author: Francisco Dasi
Author: Julie Duncan
Author: Amanda Friend
Author: Myrofora Goutaki
Author: Claire Jackson
Author: Victoria Keenan
Author: Amanda Harris
Author: Robert A. Hirst
Author: Philipp Latzin
Author: Gemma Marsh
Author: Kim Nielsen
Author: Dominic Norris
Author: Daniel Pellicer
Author: Ana Reula
Author: Bruna Rubbo ORCID iD
Author: Nisreen Rumman
Author: Amelia Shoemark
Author: Woolf T. Walker
Author: Claudia E. Kuehni
Author: Jane S. Lucas

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