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State of diabetes self-management education in the European Union member states and Non-EU countries: The Diabetes Literacy Project

State of diabetes self-management education in the European Union member states and Non-EU countries: The Diabetes Literacy Project
State of diabetes self-management education in the European Union member states and Non-EU countries: The Diabetes Literacy Project
Background. Diabetes self-management education (DSME) is considered essential for improving the prevention and care of diabetes through empowering patients to increase agency in their own health and care processes. However, existing evidence regarding DSME in the EU Member States (EU MS) is insufficient to develop an EU-wide strategy. Objectives. This study presents the state of DSME in the 28 EU MS and contrasts it with 3 non-EU countries with comparable Human Development Index score: Israel, Taiwan, and the USA (ITU). Because type 2 diabetes mellitus (T2DM) disproportionately affects minority and low-income groups, we paid particular attention to health literacy aspects of DSME for vulnerable populations. Methods. Data from multiple stakeholders involved in diabetes care were collected from Feb 2014 to Jan 2015 using an online Diabetes Literacy Survey (DLS). Of the 379 respondents (249 from EU MS and 130 from ITU), most were people with diabetes (33% in the EU MS, 15% in ITU) and care providers (47% and 72%). These data were supplemented by an expert survey (ES) administered to 30 key informants. Results. Access to DSME varies greatly in the EU MS: an average of 29% (range 21% to 50%) of respondents report DSME programs are tailored for people with limited literacy, educational attainment, and language skills versus 63% in ITU. More than half of adult T2DM patients and children/adolescents participate in DSME in EU MS; in ITU, participation of T1DM patients and older people is lower. Prioritization of DSME (6.1 ± 2.8 out of 10) and the level of satisfaction with the current state of DSME (5.0 ± 2.4 out of 10) in the EU MS were comparable with ITU. Conclusion. Variation in availability and organization of DSME in the EU MS presents a clear rationale for developing an EU-wide diabetes strategy to improve treatment and care for people with diabetes.
2314-6745
Riemenschneider, Henna
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Saha, Sarama
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Van Den Broucke, Stephan
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Terkildsen Mainda, Helle
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Doyle, Gerardine
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Levin-Zamir, Diane
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Muller, Ingrid
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Ganahl, Kristin
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Sorensen, Kristine
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Chang, Peter
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Schillinger, Dean
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Schwarz, Peter
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Müller, Gabriele
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Riemenschneider, Henna
aef4ccb9-95aa-44d8-bb95-f11de12f64fa
Saha, Sarama
80b97c39-936d-4f7f-a9ed-735fffb79915
Van Den Broucke, Stephan
d5f8b478-5d79-4cd6-8534-a6f684429122
Terkildsen Mainda, Helle
e25eaff1-3888-409e-bb75-394269f8b3b5
Doyle, Gerardine
0b04b50b-eda9-4e43-ab46-ac77fb930e0e
Levin-Zamir, Diane
6aa5604e-a390-473c-a55f-d34cf6bc8886
Muller, Ingrid
2569bf42-51bd-40da-bbfd-dd4dbbd62cad
Ganahl, Kristin
4347e868-9694-48e8-8ad1-75b6e5378121
Sorensen, Kristine
9414c26d-3be4-42c9-a118-882ef5a1da83
Chang, Peter
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Schillinger, Dean
c3e88480-07b9-493f-903c-c9b7b5e06d18
Schwarz, Peter
46b8ec53-c04c-4a0d-99d5-a362175eddc2
Müller, Gabriele
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Riemenschneider, Henna, Saha, Sarama, Van Den Broucke, Stephan, Terkildsen Mainda, Helle, Doyle, Gerardine, Levin-Zamir, Diane, Muller, Ingrid, Ganahl, Kristin, Sorensen, Kristine, Chang, Peter, Schillinger, Dean, Schwarz, Peter and Müller, Gabriele (2018) State of diabetes self-management education in the European Union member states and Non-EU countries: The Diabetes Literacy Project. Journal of Diabetes Research, 2018, [1467171]. (doi:10.1155/2018/1467171).

Record type: Article

Abstract

Background. Diabetes self-management education (DSME) is considered essential for improving the prevention and care of diabetes through empowering patients to increase agency in their own health and care processes. However, existing evidence regarding DSME in the EU Member States (EU MS) is insufficient to develop an EU-wide strategy. Objectives. This study presents the state of DSME in the 28 EU MS and contrasts it with 3 non-EU countries with comparable Human Development Index score: Israel, Taiwan, and the USA (ITU). Because type 2 diabetes mellitus (T2DM) disproportionately affects minority and low-income groups, we paid particular attention to health literacy aspects of DSME for vulnerable populations. Methods. Data from multiple stakeholders involved in diabetes care were collected from Feb 2014 to Jan 2015 using an online Diabetes Literacy Survey (DLS). Of the 379 respondents (249 from EU MS and 130 from ITU), most were people with diabetes (33% in the EU MS, 15% in ITU) and care providers (47% and 72%). These data were supplemented by an expert survey (ES) administered to 30 key informants. Results. Access to DSME varies greatly in the EU MS: an average of 29% (range 21% to 50%) of respondents report DSME programs are tailored for people with limited literacy, educational attainment, and language skills versus 63% in ITU. More than half of adult T2DM patients and children/adolescents participate in DSME in EU MS; in ITU, participation of T1DM patients and older people is lower. Prioritization of DSME (6.1 ± 2.8 out of 10) and the level of satisfaction with the current state of DSME (5.0 ± 2.4 out of 10) in the EU MS were comparable with ITU. Conclusion. Variation in availability and organization of DSME in the EU MS presents a clear rationale for developing an EU-wide diabetes strategy to improve treatment and care for people with diabetes.

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Accepted/In Press date: 21 February 2018
e-pub ahead of print date: 17 April 2018
Published date: 2018

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Local EPrints ID: 420203
URI: http://eprints.soton.ac.uk/id/eprint/420203
ISSN: 2314-6745
PURE UUID: f8a35149-106a-4026-894c-d33b89152b9c

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Date deposited: 02 May 2018 16:30
Last modified: 16 Dec 2019 18:16

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Contributors

Author: Henna Riemenschneider
Author: Sarama Saha
Author: Stephan Van Den Broucke
Author: Helle Terkildsen Mainda
Author: Gerardine Doyle
Author: Diane Levin-Zamir
Author: Ingrid Muller
Author: Kristin Ganahl
Author: Kristine Sorensen
Author: Peter Chang
Author: Dean Schillinger
Author: Peter Schwarz
Author: Gabriele Müller

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