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Psychological well-being of mothers and siblings in families of girls and women with Rett syndrome

Psychological well-being of mothers and siblings in families of girls and women with Rett syndrome
Psychological well-being of mothers and siblings in families of girls and women with Rett syndrome
Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters’ behavioral phenotype, current health, and behavior problems, and their own and a sibling’s well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters’ RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters’ current health problems predicted more maternal perceptions of positive gain.
Rett syndrome, Siblings, Mothers, Maternal depression, Strengths and Difficulties Questionnaire, Families
0162-3257
2939-2946
Cianfaglione, Rina
bf9b4507-4a79-4f72-b7e2-7244b9dea9ef
Hastings, Richard P.
9eed39c0-206c-4027-8b29-e7c78bfb27b7
Felce, David
b4cdedfb-100b-4c53-b01c-363606db0d19
Clarke, Angus
30f3d3dd-3caa-4465-82e8-a8c4316dfaa1
Kerr, Michael P.
d86f91d7-842f-4a95-b056-0923db4b1719
Cianfaglione, Rina
bf9b4507-4a79-4f72-b7e2-7244b9dea9ef
Hastings, Richard P.
9eed39c0-206c-4027-8b29-e7c78bfb27b7
Felce, David
b4cdedfb-100b-4c53-b01c-363606db0d19
Clarke, Angus
30f3d3dd-3caa-4465-82e8-a8c4316dfaa1
Kerr, Michael P.
d86f91d7-842f-4a95-b056-0923db4b1719

Cianfaglione, Rina, Hastings, Richard P., Felce, David, Clarke, Angus and Kerr, Michael P. (2015) Psychological well-being of mothers and siblings in families of girls and women with Rett syndrome. Journal of Autism and Developmental Disorders, 45 (9), 2939-2946. (doi:10.1007/s10803-015-2457-y).

Record type: Article

Abstract

Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters’ behavioral phenotype, current health, and behavior problems, and their own and a sibling’s well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters’ RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters’ current health problems predicted more maternal perceptions of positive gain.

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More information

e-pub ahead of print date: 25 April 2015
Published date: September 2015
Keywords: Rett syndrome, Siblings, Mothers, Maternal depression, Strengths and Difficulties Questionnaire, Families

Identifiers

Local EPrints ID: 420283
URI: http://eprints.soton.ac.uk/id/eprint/420283
ISSN: 0162-3257
PURE UUID: 1bfae84d-e9c2-4716-8751-2f395a9e1371
ORCID for Rina Cianfaglione: ORCID iD orcid.org/0000-0001-8739-0598

Catalogue record

Date deposited: 03 May 2018 16:30
Last modified: 16 Mar 2024 04:29

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Contributors

Author: Richard P. Hastings
Author: David Felce
Author: Angus Clarke
Author: Michael P. Kerr

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