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"It's like we don't exist": Tailoring education for young women undergoing surgery for early-stage breast cancer

"It's like we don't exist": Tailoring education for young women undergoing surgery for early-stage breast cancer
"It's like we don't exist": Tailoring education for young women undergoing surgery for early-stage breast cancer

PURPOSE: The implications of a diagnosis and consequent surgical treatment for breast cancer may be different for young women compared to older women. This study investigated the information requirements of young women to support their treatment decision making at diagnosis. PARTICIPANTS & SETTING: A purposeful sample of 20 women diagnosed with breast cancer aged 40 years or younger who had undergone surgery and had participated in a large cohort study in the United Kingdom. METHODOLOGIC APPROACH: Audio recordings of semistructured interviews were used to reveal information received at the time of surgical treatment. FINDINGS: Themes identified were types of breast cancer, surgical treatments, nonsurgical treatments, fertility, and surgery and after surgery. Participants felt that information required throughout treatment was influenced by individual life circumstances, such as children or plans for children, relationships, and career intentions. Participants felt information was lacking on the effects of treatment on body image, reconstructive surgery, and genetic predisposition to breast cancer. IMPLICATIONS FOR NURSING: Knowledge of the information requirements of young women diagnosed with breast cancer allows nursing staff to provide tailored support at times identified as most useful.

Breast cancer, Breast cancer surgery, Decision making, Information needs, Young women
0190-535X
165-175
Recio-Saucedo, Alejandra
d05c4e43-3399-466d-99e0-01403a04b467
Gilbert, Anthony W.
0ec83f00-f9e1-4616-a69f-1b69a9b5a894
Gerty, Sue
bb09ed22-15f9-431a-a251-4e9ab551eac5
Cutress, Ramsey I.
68ae4f86-e8cf-411f-a335-cdba51797406
Eccles, Diana
5b59bc73-11c9-4cf0-a9d5-7a8e523eee23
Foster, Claire
00786ac1-bd47-4aeb-a0e2-40e058695b73
Recio-Saucedo, Alejandra
d05c4e43-3399-466d-99e0-01403a04b467
Gilbert, Anthony W.
0ec83f00-f9e1-4616-a69f-1b69a9b5a894
Gerty, Sue
bb09ed22-15f9-431a-a251-4e9ab551eac5
Cutress, Ramsey I.
68ae4f86-e8cf-411f-a335-cdba51797406
Eccles, Diana
5b59bc73-11c9-4cf0-a9d5-7a8e523eee23
Foster, Claire
00786ac1-bd47-4aeb-a0e2-40e058695b73

Recio-Saucedo, Alejandra, Gilbert, Anthony W., Gerty, Sue, Cutress, Ramsey I., Eccles, Diana and Foster, Claire (2018) "It's like we don't exist": Tailoring education for young women undergoing surgery for early-stage breast cancer. Oncology Nursing Forum, 45 (2), 165-175. (doi:10.1188/18.ONF.165-175).

Record type: Article

Abstract

PURPOSE: The implications of a diagnosis and consequent surgical treatment for breast cancer may be different for young women compared to older women. This study investigated the information requirements of young women to support their treatment decision making at diagnosis. PARTICIPANTS & SETTING: A purposeful sample of 20 women diagnosed with breast cancer aged 40 years or younger who had undergone surgery and had participated in a large cohort study in the United Kingdom. METHODOLOGIC APPROACH: Audio recordings of semistructured interviews were used to reveal information received at the time of surgical treatment. FINDINGS: Themes identified were types of breast cancer, surgical treatments, nonsurgical treatments, fertility, and surgery and after surgery. Participants felt that information required throughout treatment was influenced by individual life circumstances, such as children or plans for children, relationships, and career intentions. Participants felt information was lacking on the effects of treatment on body image, reconstructive surgery, and genetic predisposition to breast cancer. IMPLICATIONS FOR NURSING: Knowledge of the information requirements of young women diagnosed with breast cancer allows nursing staff to provide tailored support at times identified as most useful.

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“It’s Like We Don’t Exist”: Tailoring Education for Young Women Undergoing Surgery for Early-Stage Breast Cancer - Version of Record
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More information

Accepted/In Press date: 3 September 2017
e-pub ahead of print date: 1 March 2018
Published date: 1 March 2018
Keywords: Breast cancer, Breast cancer surgery, Decision making, Information needs, Young women

Identifiers

Local EPrints ID: 421344
URI: https://eprints.soton.ac.uk/id/eprint/421344
ISSN: 0190-535X
PURE UUID: 1e599817-885b-4a89-81ec-935244343e3a
ORCID for Alejandra Recio-Saucedo: ORCID iD orcid.org/0000-0003-2823-4573
ORCID for Claire Foster: ORCID iD orcid.org/0000-0002-4703-8378

Catalogue record

Date deposited: 01 Jun 2018 16:31
Last modified: 14 Mar 2019 01:43

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