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Experiences of dementia caregivers in Pakistan

Experiences of dementia caregivers in Pakistan
Experiences of dementia caregivers in Pakistan
In Pakistan there is very little awareness of dementia and its symptoms, a lack of formal services and no government policy to support the growing problem. This leads to family caregivers of people with dementia (PwD) not recognising the symptoms, delaying seeking help and being burdened by the care. Furthermore, existing knowledge and attitudes of dementia are heavily influenced by religious and cultural norms. To gain a better understanding of the perceptions of dementia and recognise gaps in services, the present study explored the experiences of family caregivers of PwD. This was part of a larger project funded by Age International in London, conducted in Pakistan about the understandings of dementia among PwD, their family caregivers, the general population, and key stakeholders. Semi-structured interviews were carried out on
20 caregivers of PwD in Lahore and Karachi. Thematic analysis was performed on interview transcripts interpreted from Urdu to English. The themes that emerged were in relation to the caregivers’ experiences, dementia knowledge,
impact of dementia on their lives, coping skills and support needed. Barriers to seeking help included a lack of awareness about dementia and its symptoms – many attributing the symptoms to stress. Family play a significant role in the care of PwD and the belief that this is the families’ duty is evident. Caregivers highlighted a need for more day centres to keep PwD active and to provide
caregivers with some respite. Campaigns to raise awareness of dementia and targeted dementia policies in Pakistan are urgently needed.
Balouch, Sara
d833ba85-7f11-4297-acf2-88c1b78a86cf
Farina, Nicolas
0b8e0c3e-5aa2-4d88-ace9-3745937c73ac
Zaidi, Asghar
c0e9133f-e3da-47ed-8cd6-2473386bddf4
Willis, Rosalind
dd2e5e10-58bf-44ca-9c04-f355f3af26ba
Balouch, Sara
d833ba85-7f11-4297-acf2-88c1b78a86cf
Farina, Nicolas
0b8e0c3e-5aa2-4d88-ace9-3745937c73ac
Zaidi, Asghar
c0e9133f-e3da-47ed-8cd6-2473386bddf4
Willis, Rosalind
dd2e5e10-58bf-44ca-9c04-f355f3af26ba

Balouch, Sara, Farina, Nicolas, Zaidi, Asghar and Willis, Rosalind (2018) Experiences of dementia caregivers in Pakistan. BSG 2018: The British Society of Gerontology 47th Annual Conference. 04 - 06 Jul 2018.

Record type: Conference or Workshop Item (Poster)

Abstract

In Pakistan there is very little awareness of dementia and its symptoms, a lack of formal services and no government policy to support the growing problem. This leads to family caregivers of people with dementia (PwD) not recognising the symptoms, delaying seeking help and being burdened by the care. Furthermore, existing knowledge and attitudes of dementia are heavily influenced by religious and cultural norms. To gain a better understanding of the perceptions of dementia and recognise gaps in services, the present study explored the experiences of family caregivers of PwD. This was part of a larger project funded by Age International in London, conducted in Pakistan about the understandings of dementia among PwD, their family caregivers, the general population, and key stakeholders. Semi-structured interviews were carried out on
20 caregivers of PwD in Lahore and Karachi. Thematic analysis was performed on interview transcripts interpreted from Urdu to English. The themes that emerged were in relation to the caregivers’ experiences, dementia knowledge,
impact of dementia on their lives, coping skills and support needed. Barriers to seeking help included a lack of awareness about dementia and its symptoms – many attributing the symptoms to stress. Family play a significant role in the care of PwD and the belief that this is the families’ duty is evident. Caregivers highlighted a need for more day centres to keep PwD active and to provide
caregivers with some respite. Campaigns to raise awareness of dementia and targeted dementia policies in Pakistan are urgently needed.

Full text not available from this repository.

More information

Published date: 4 July 2018
Venue - Dates: BSG 2018: The British Society of Gerontology 47th Annual Conference, 2018-07-04 - 2018-07-06

Identifiers

Local EPrints ID: 424537
URI: http://eprints.soton.ac.uk/id/eprint/424537
PURE UUID: 43e41b90-0438-496e-9b8b-628ee6f2500d
ORCID for Rosalind Willis: ORCID iD orcid.org/0000-0001-6687-5799

Catalogue record

Date deposited: 05 Oct 2018 11:38
Last modified: 21 May 2019 00:33

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Contributors

Author: Sara Balouch
Author: Nicolas Farina
Author: Asghar Zaidi
Author: Rosalind Willis ORCID iD

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