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Experiences of people living with dementia in Pakistan

Experiences of people living with dementia in Pakistan
Experiences of people living with dementia in Pakistan
Stigma around dementia acts as a barrier to timely diagnosis, treatment, and support. The public understanding of dementia has been improving in the UK due to initiatives like Dementia Friends and other national policies. Dementia is less well-recognised in many developing countries, even though the largest future projected increase in dementia is expected to occur in these contexts. In Pakistan there is limited awareness about dementia, and it is often misunderstood to be part of the normal ageing process, caused by lifetime stress, or reflects neglect on the part of family members. Although specialist health services for dementia do exist in Pakistan, they are few in number. This presentation reports on a part of a larger project conducted in Pakistan about understandings of dementia among people who have a diagnosis of mild dementia, their family carers, the general population, and key stakeholders. In this presentation, qualitative data from 20 people with dementia, supported in the interviews by their family carers, will be discussed. It will present their understanding of the condition, the experience of help seeking, and the reactions of family and wider community members. The impact of dementia symptoms on religious obligations will be discussed, drawing out features of dementia that may cause particular distress to Muslims. Recommendations for development of awareness campaigns and policies in Pakistan will be made.
Willis, Rosalind
dd2e5e10-58bf-44ca-9c04-f355f3af26ba
Zaidi, Asghar
c0e9133f-e3da-47ed-8cd6-2473386bddf4
Farina, Nicolas
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Balouch, Sara
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Willis, Rosalind
dd2e5e10-58bf-44ca-9c04-f355f3af26ba
Zaidi, Asghar
c0e9133f-e3da-47ed-8cd6-2473386bddf4
Farina, Nicolas
da505a3a-936d-4117-8058-3ae116b4776e
Balouch, Sara
7b55ba4e-9d56-4c30-b8cb-8594abe4d6ee

Willis, Rosalind, Zaidi, Asghar, Farina, Nicolas and Balouch, Sara (2018) Experiences of people living with dementia in Pakistan. British Society of Gerontology 2018, University of Manchester, Manchester, United Kingdom. 04 - 06 Jul 2018.

Record type: Conference or Workshop Item (Paper)

Abstract

Stigma around dementia acts as a barrier to timely diagnosis, treatment, and support. The public understanding of dementia has been improving in the UK due to initiatives like Dementia Friends and other national policies. Dementia is less well-recognised in many developing countries, even though the largest future projected increase in dementia is expected to occur in these contexts. In Pakistan there is limited awareness about dementia, and it is often misunderstood to be part of the normal ageing process, caused by lifetime stress, or reflects neglect on the part of family members. Although specialist health services for dementia do exist in Pakistan, they are few in number. This presentation reports on a part of a larger project conducted in Pakistan about understandings of dementia among people who have a diagnosis of mild dementia, their family carers, the general population, and key stakeholders. In this presentation, qualitative data from 20 people with dementia, supported in the interviews by their family carers, will be discussed. It will present their understanding of the condition, the experience of help seeking, and the reactions of family and wider community members. The impact of dementia symptoms on religious obligations will be discussed, drawing out features of dementia that may cause particular distress to Muslims. Recommendations for development of awareness campaigns and policies in Pakistan will be made.

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More information

Published date: 5 July 2018
Venue - Dates: British Society of Gerontology 2018, University of Manchester, Manchester, United Kingdom, 2018-07-04 - 2018-07-06

Identifiers

Local EPrints ID: 424538
URI: http://eprints.soton.ac.uk/id/eprint/424538
PURE UUID: e0763a04-d45d-4dea-9286-ff91bfc80648
ORCID for Rosalind Willis: ORCID iD orcid.org/0000-0001-6687-5799

Catalogue record

Date deposited: 05 Oct 2018 11:38
Last modified: 12 Dec 2021 03:49

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Contributors

Author: Rosalind Willis ORCID iD
Author: Asghar Zaidi
Author: Nicolas Farina
Author: Sara Balouch

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