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Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health

Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health
Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health
Objectives: To investigate how contextual factors, as described by the World Health Organisation’s International Classification of Functioning, Disability and Health (ICF), impact on stroke survivors’ functioning and how needs are perceived in the long term after stroke.

Methods: Semi-structured interviews were conducted with 35 participants between 1 and 11 years after stroke. Data were analysed thematically using the ICF conceptual framework.

Results: Long-term needs related to activities of daily living, social participation, mobility aids, home adaptations, housing, financial support, rehabilitation, information and transport. Participants identified a range of ICF environmental and personal factors including ‘support and relationships,’ ‘products and technology,’ ‘services, systems and policies,’ ‘attitudes,’ life experiences, social position and personal attitudes. Interactions between these contextual factors shaped functioning and how long-term needs were perceived. Social support from family and friends was a key facilitator of functioning for most participants, buffering the impact of disabilities and mediating perceived needs. Needs were not always stroke specific as many participants experienced other health problems.

Discussion: The ICF framework was useful to investigate how contextual factors shaped functioning and mediated perceived long-term needs. Development of services to meet long-term needs among stroke survivors should consider the range of environmental and personal factors affecting how needs are perceived.
1742-3953
31-44
Sumathipala, Kethakie
f7ee35f1-2e3b-4180-975b-7a3e8b055d58
Radcliffe, Eloise
4bbec31f-dadd-4b7d-95c4-7d96a5ec8659
Sadler, Euan
e5891abe-c97b-4e74-b9b3-6d7c43435360
Wolfe, Charles D.A.
1fbac47d-38aa-466c-8703-460021974878
McKevitt, Christopher
4ff3bb8f-7931-4402-b68d-53aae1cd5570
Sumathipala, Kethakie
f7ee35f1-2e3b-4180-975b-7a3e8b055d58
Radcliffe, Eloise
4bbec31f-dadd-4b7d-95c4-7d96a5ec8659
Sadler, Euan
e5891abe-c97b-4e74-b9b3-6d7c43435360
Wolfe, Charles D.A.
1fbac47d-38aa-466c-8703-460021974878
McKevitt, Christopher
4ff3bb8f-7931-4402-b68d-53aae1cd5570

Sumathipala, Kethakie, Radcliffe, Eloise, Sadler, Euan, Wolfe, Charles D.A. and McKevitt, Christopher (2012) Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health. Chronic Illness, 8 (1), 31-44. (doi:10.1177/1742395311423848).

Record type: Article

Abstract

Objectives: To investigate how contextual factors, as described by the World Health Organisation’s International Classification of Functioning, Disability and Health (ICF), impact on stroke survivors’ functioning and how needs are perceived in the long term after stroke.

Methods: Semi-structured interviews were conducted with 35 participants between 1 and 11 years after stroke. Data were analysed thematically using the ICF conceptual framework.

Results: Long-term needs related to activities of daily living, social participation, mobility aids, home adaptations, housing, financial support, rehabilitation, information and transport. Participants identified a range of ICF environmental and personal factors including ‘support and relationships,’ ‘products and technology,’ ‘services, systems and policies,’ ‘attitudes,’ life experiences, social position and personal attitudes. Interactions between these contextual factors shaped functioning and how long-term needs were perceived. Social support from family and friends was a key facilitator of functioning for most participants, buffering the impact of disabilities and mediating perceived needs. Needs were not always stroke specific as many participants experienced other health problems.

Discussion: The ICF framework was useful to investigate how contextual factors shaped functioning and mediated perceived long-term needs. Development of services to meet long-term needs among stroke survivors should consider the range of environmental and personal factors affecting how needs are perceived.

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More information

e-pub ahead of print date: 24 October 2011
Published date: March 2012

Identifiers

Local EPrints ID: 427542
URI: http://eprints.soton.ac.uk/id/eprint/427542
ISSN: 1742-3953
PURE UUID: b7240dea-6d5d-4f86-b6e1-7867acc6c3e0

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Date deposited: 23 Jan 2019 17:30
Last modified: 25 Jun 2019 16:30

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Contributors

Author: Kethakie Sumathipala
Author: Euan Sadler
Author: Charles D.A. Wolfe
Author: Christopher McKevitt

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