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Charity financial support to motor neurone disease (MND) patients in Greater London: the impact of patients’ socio-economic status – a cross-sectional study

Charity financial support to motor neurone disease (MND) patients in Greater London: the impact of patients’ socio-economic status – a cross-sectional study
Charity financial support to motor neurone disease (MND) patients in Greater London: the impact of patients’ socio-economic status – a cross-sectional study
Objective: there is an immense socioeconomic burden for both the patients with motor neuron disease (MND) and their families. The aim of this study is to evaluate the extent to which the provision offered by the Motor Neurone Disease Association is distributed among patients with MND living in the ethnically and socially diverse area of Greater London, according to the patients’ socioeconomic situation and needs.

Setting: Greater London, where age and sex-adjusted prevalence rates of MND in 2016 were calculated.

Participants: prevalent MND cases in Greater London, using anonymised data extracted from the Association’s database.

Exposure: demographic and socioeconomic characteristics

Primary and secondary outcome measures: receiving a Motor Neurone Disease Association grant, and the amount of money received.

Results: 396 individuals with amyotrophic lateral sclerosis were detected, the age-specific and sex-specific prevalence of MND was 4.02 per 100 000 inhabitants, higher among men (5.13 per 100 000) than women (3.01 per 100 000). Men were statistically significantly 40% less likely to receive a grant compared with women; among grant recipients, the younger the age of the participant, the higher the size of the grant received. The Index of Multiple Deprivation was not associated with either receiving a grant nor the amount of money received, among recipients.

Conclusion: financial support by the Motor Neurone Disease Association is provided across individuals and across boroughs regardless of their socioeconomic circumstances. Differences that benefits women and younger patients were detected.
epidemiology, motor neurone disease, social medicine
2044-6055
1-9
Gkiouleka, Anna
c25d5cda-ba9d-4b16-8292-9f4d45f9683a
Manning, Alison
dee9bfd7-a787-4eb4-9ae1-6a2040a5c1b8
Smith, Dianna
e859097c-f9f5-4fd0-8b07-59218648e726
Malaspina, Andrea
ee322234-33f5-412d-92b5-7ef653a3c69e
Gallo, Valentina
a60f6400-d194-441d-8d96-a201e46c60af
Gkiouleka, Anna
c25d5cda-ba9d-4b16-8292-9f4d45f9683a
Manning, Alison
dee9bfd7-a787-4eb4-9ae1-6a2040a5c1b8
Smith, Dianna
e859097c-f9f5-4fd0-8b07-59218648e726
Malaspina, Andrea
ee322234-33f5-412d-92b5-7ef653a3c69e
Gallo, Valentina
a60f6400-d194-441d-8d96-a201e46c60af

Gkiouleka, Anna, Manning, Alison, Smith, Dianna, Malaspina, Andrea and Gallo, Valentina (2019) Charity financial support to motor neurone disease (MND) patients in Greater London: the impact of patients’ socio-economic status – a cross-sectional study. BMJ Open, 9 (2), 1-9. (doi:10.1136/bmjopen-2018-022462).

Record type: Article

Abstract

Objective: there is an immense socioeconomic burden for both the patients with motor neuron disease (MND) and their families. The aim of this study is to evaluate the extent to which the provision offered by the Motor Neurone Disease Association is distributed among patients with MND living in the ethnically and socially diverse area of Greater London, according to the patients’ socioeconomic situation and needs.

Setting: Greater London, where age and sex-adjusted prevalence rates of MND in 2016 were calculated.

Participants: prevalent MND cases in Greater London, using anonymised data extracted from the Association’s database.

Exposure: demographic and socioeconomic characteristics

Primary and secondary outcome measures: receiving a Motor Neurone Disease Association grant, and the amount of money received.

Results: 396 individuals with amyotrophic lateral sclerosis were detected, the age-specific and sex-specific prevalence of MND was 4.02 per 100 000 inhabitants, higher among men (5.13 per 100 000) than women (3.01 per 100 000). Men were statistically significantly 40% less likely to receive a grant compared with women; among grant recipients, the younger the age of the participant, the higher the size of the grant received. The Index of Multiple Deprivation was not associated with either receiving a grant nor the amount of money received, among recipients.

Conclusion: financial support by the Motor Neurone Disease Association is provided across individuals and across boroughs regardless of their socioeconomic circumstances. Differences that benefits women and younger patients were detected.

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More information

Accepted/In Press date: 26 October 2018
Published date: 1 February 2019
Keywords: epidemiology, motor neurone disease, social medicine

Identifiers

Local EPrints ID: 428491
URI: https://eprints.soton.ac.uk/id/eprint/428491
ISSN: 2044-6055
PURE UUID: 95dde0cb-1e7a-4c0b-a361-3e2333c55931
ORCID for Dianna Smith: ORCID iD orcid.org/0000-0002-0650-6606

Catalogue record

Date deposited: 28 Feb 2019 17:30
Last modified: 19 Jul 2019 00:34

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