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“Whose agenda? Who knows best? Whose voice?”: Co-creating a technology research roadmap with autism stakeholders

“Whose agenda? Who knows best? Whose voice?”: Co-creating a technology research roadmap with autism stakeholders
“Whose agenda? Who knows best? Whose voice?”: Co-creating a technology research roadmap with autism stakeholders
Technologies play vital roles in the learning and participation of autistic people and yet have mostly been conceptualised according to a medical model of disability. In this stakeholder review, the comments of 240 participants from a two-year seminar series focusing on autism and technology were analysed to co-construct an understanding of how research could develop more inclusively. Our socio-cultural analysis shows that stakeholders were very positive about the roles that technologies can play in many areas of life, but that these technologies need to be developed and evaluated according to the needs and preferences of autistic people and their families. We propose an inclusive common social framework for research based on the core themes of social inclusion, perspectives, and participation and agency. Such a framework requires the field to recognise that some current practices are exclusionary and that a commitment to action is needed in order to make positive changes.
Autism, Technology, co-construction, participatory research, stakeholders
0968-7599
201-234
Parsons, Sarah
5af3382f-cda3-489c-a336-9604f3c04d7d
Yuill, Nicola
283a73fb-b03e-4185-9acd-85fdc7992743
Good, Judith
3955a47e-da9e-414d-9f85-971386208259
Brosnan, Mark
752fa25f-332e-47d4-9f9f-76862509e2cb
Parsons, Sarah
5af3382f-cda3-489c-a336-9604f3c04d7d
Yuill, Nicola
283a73fb-b03e-4185-9acd-85fdc7992743
Good, Judith
3955a47e-da9e-414d-9f85-971386208259
Brosnan, Mark
752fa25f-332e-47d4-9f9f-76862509e2cb

Parsons, Sarah, Yuill, Nicola, Good, Judith and Brosnan, Mark (2020) “Whose agenda? Who knows best? Whose voice?”: Co-creating a technology research roadmap with autism stakeholders. Disability & Society, 35 (2), 201-234. (doi:10.1080/09687599.2019.1624152).

Record type: Article

Abstract

Technologies play vital roles in the learning and participation of autistic people and yet have mostly been conceptualised according to a medical model of disability. In this stakeholder review, the comments of 240 participants from a two-year seminar series focusing on autism and technology were analysed to co-construct an understanding of how research could develop more inclusively. Our socio-cultural analysis shows that stakeholders were very positive about the roles that technologies can play in many areas of life, but that these technologies need to be developed and evaluated according to the needs and preferences of autistic people and their families. We propose an inclusive common social framework for research based on the core themes of social inclusion, perspectives, and participation and agency. Such a framework requires the field to recognise that some current practices are exclusionary and that a commitment to action is needed in order to make positive changes.

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Parsons et al (in press) Co-creating a roadmap Disab & Soc Author Accepted - Accepted Manuscript
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Parsons et al (2019) Whose agenda - whose voice Disab & Soc PUBLISHED - Version of Record
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Accepted/In Press date: 23 May 2019
e-pub ahead of print date: 19 June 2019
Published date: 7 February 2020
Additional Information: Funding Information: The seminar series ?Innovative Technologies for Autism: Critical Reflections on Digital Bubbles? was a collaboration between the Universities of Southampton, Sussex, and Bath in the United Kingdom. The authors would like to thank everyone who took part in the seminar series as well as those who provided invaluable support behind the scenes. The data upon which this article is based are available from the first author. The seminar series was funded by the Economic and Social Research Council [ES/M002624/1]. Publisher Copyright: © 2019, © 2019 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
Keywords: Autism, Technology, co-construction, participatory research, stakeholders

Identifiers

Local EPrints ID: 431241
URI: http://eprints.soton.ac.uk/id/eprint/431241
ISSN: 0968-7599
PURE UUID: 120da658-81a7-4182-a1b5-f4b399e3bd0a
ORCID for Sarah Parsons: ORCID iD orcid.org/0000-0002-2542-4745

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Date deposited: 28 May 2019 16:30
Last modified: 16 Mar 2024 07:53

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Author: Sarah Parsons ORCID iD
Author: Nicola Yuill
Author: Judith Good
Author: Mark Brosnan

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