Collaborative design of a decision aid for stroke survivors with multimorbidity: a qualitative study in the UK engaging key stakeholders

Abstract

Objectives: Effective secondary stroke prevention strategies are sub-optimally used. Novel development of interventions to enable healthcare professionals and stroke survivors to manage risk factors for stroke recurrence are required. We sought to engage key stakeholders in the design and evaluation of an intervention informed by a Learning Health System approach, to improve risk factor management and secondary prevention for stroke survivors with multimorbidity.

Design: Qualitative, including focus groups, semi-structured interviews and usability evaluations. Data was audio-recorded, transcribed and coded thematically.

Participants: Stroke survivors, carers, health and social care professionals, commissioners, policy makers and researchers.

Setting: Stroke survivors were recruited from the South London Stroke Register; health and social care professionals through South London general practices and King’s College London (KCL) networks; carers, commissioners, policy-makers and researchers through KCL networks.

Results: 53 stakeholders in total participated in focus groups, interviews and usability evaluations. Thirty-seven participated in focus groups and interviews, including stroke survivors and carers (N=11), health and social care professionals (N=16), commissioners and policy-makers (N=6) and researchers (N=4). Sixteen participated in usability evaluations, including stroke survivors (N=8) and general practitioners (GPs; N=8). Eight themes informed the collaborative design of DOTT (Deciding on Treatments Together), a decision aid integrated with the electronic health record system, to be used in primary care during clinical consultations between the healthcare professional and stroke survivor. DOTT aims to facilitate shared decision making on personalised treatments leading to improved treatment adherence and risk control. DOTT was found acceptable and usable among stroke survivors and GPs during a series of evaluations.

Conclusions: Adopting a user-centred data-driven design approach informed an intervention that is acceptable to users and has the potential to improve patient outcomes. A future feasibility study and subsequent clinical trial will provide evidence of the effectiveness of DOTT in reducing risk of stroke recurrence.

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Identifiers

ORCID for Euan Sadler: orcid.org/0000-0003-3827-224X

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