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Attitudes, knowledge and beliefs about dementia: focus group discussions with Pakistani adults in Karachi and Lahore

Attitudes, knowledge and beliefs about dementia: focus group discussions with Pakistani adults in Karachi and Lahore
Attitudes, knowledge and beliefs about dementia: focus group discussions with Pakistani adults in Karachi and Lahore
Pakistan is a lower middle-income country, which to date has had very little research and policy making to address the challenge of dementia. This study aims to explore the perceptions of dementia in a group of Pakistani adults. A series of Focus Group Discussions were completed during 2017 with men and women in two metropolitan centres in Pakistan (Lahore and Karachi) (n=40). Two vignettes, depicting someone with mild dementia and someone with severe dementia, were used to facilitate discussions. An induction led thematic analysis was completed. Five themes were identified, reflecting (i) dementia awareness, (ii) responsibility, (iii) barriers to healthcare, (iv) identified support needs, and (v) religion. Most participants had little awareness and knowledge about dementia, commonly understood to be a disease of forgetting or just normal aging. Thus, there is an urgent need of a nation-wide campaign to raise dementia awareness in Pakistan, though this needs to be accompanied by improved, accessible health and social care services.
Awareness, stigma, cognitive impairment, lower-middle income, religion
0144-686X
2558-2573
Farina, Nicolas
0b8e0c3e-5aa2-4d88-ace9-3745937c73ac
Zaidi, Asghar
c0e9133f-e3da-47ed-8cd6-2473386bddf4
Willis, Rosalind
dd2e5e10-58bf-44ca-9c04-f355f3af26ba
Balouch, Sara
d833ba85-7f11-4297-acf2-88c1b78a86cf
Farina, Nicolas
0b8e0c3e-5aa2-4d88-ace9-3745937c73ac
Zaidi, Asghar
c0e9133f-e3da-47ed-8cd6-2473386bddf4
Willis, Rosalind
dd2e5e10-58bf-44ca-9c04-f355f3af26ba
Balouch, Sara
d833ba85-7f11-4297-acf2-88c1b78a86cf

Farina, Nicolas, Zaidi, Asghar, Willis, Rosalind and Balouch, Sara (2020) Attitudes, knowledge and beliefs about dementia: focus group discussions with Pakistani adults in Karachi and Lahore. Ageing & Society, 40 (12), 2558-2573. (doi:10.1017/S0144686X19000862).

Record type: Article

Abstract

Pakistan is a lower middle-income country, which to date has had very little research and policy making to address the challenge of dementia. This study aims to explore the perceptions of dementia in a group of Pakistani adults. A series of Focus Group Discussions were completed during 2017 with men and women in two metropolitan centres in Pakistan (Lahore and Karachi) (n=40). Two vignettes, depicting someone with mild dementia and someone with severe dementia, were used to facilitate discussions. An induction led thematic analysis was completed. Five themes were identified, reflecting (i) dementia awareness, (ii) responsibility, (iii) barriers to healthcare, (iv) identified support needs, and (v) religion. Most participants had little awareness and knowledge about dementia, commonly understood to be a disease of forgetting or just normal aging. Thus, there is an urgent need of a nation-wide campaign to raise dementia awareness in Pakistan, though this needs to be accompanied by improved, accessible health and social care services.

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AC - Farina et al (2019) Ageing and Society - Accepted Manuscript
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More information

Accepted/In Press date: 10 June 2019
e-pub ahead of print date: 18 July 2019
Published date: 1 December 2020
Keywords: Awareness, stigma, cognitive impairment, lower-middle income, religion

Identifiers

Local EPrints ID: 432564
URI: http://eprints.soton.ac.uk/id/eprint/432564
ISSN: 0144-686X
PURE UUID: faf9f850-89af-4440-b1b6-0a0f61c8891b
ORCID for Rosalind Willis: ORCID iD orcid.org/0000-0001-6687-5799

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Date deposited: 18 Jul 2019 16:30
Last modified: 28 Apr 2022 02:04

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Contributors

Author: Nicolas Farina
Author: Asghar Zaidi
Author: Rosalind Willis ORCID iD
Author: Sara Balouch

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