Malaysian women and family members’ narratives of their breast cancer decision-making experiences

Abstract

Breast cancer is one of the most prevalent cancers among women worldwide. Disharmony and imbalance can be created in the lives of women diagnosed with breast cancer as well as in those of their family members. They may face many decisions related to breast cancer, including on disclosure and treatment, and on their own lifestyle and career. The decision-making experiences might be different across nations. Previous research literature has tended to focus on specific aspects of decision-making regarding breast cancer, but no study has sought to recruit women with all stages of breast cancer (together with their family members) with the aim of providing an understanding of their decisions. Little is understood regarding this issue and how the process takes place among Malaysian women with breast cancer and their family members.

The purpose of this study is to explore the decision-making experiences of Malaysian women and their family members, focusing on the time between first realising that something is abnormal in the breast and the women undergoing their first conventional treatment in hospital.

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ORCID for Susan Duke: orcid.org/0000-0002-4058-8086

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