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Goals for living with a chronic condition: the relevance of temporalities, dispositions, and resources

Goals for living with a chronic condition: the relevance of temporalities, dispositions, and resources
Goals for living with a chronic condition: the relevance of temporalities, dispositions, and resources
Introduction: premised on the idea that setting goals motivates action and allocation of resources toward a desired future state, goal-setting has become a key component of self-management support. The notions that underpin goal-setting situate self-management firmly within the control and responsibility of individuals. Yet, we argue that goals are not solely individual pursuits to be achieved if individuals have the right knowledge and enough motivation; rather, they are social products, influenced by individual and collective subjectivities, which are structured over time.

Objective: drawing primarily on Bourdieu's concept of habitus, along with capital and field, we examine how goals are constructed in self-management support encounters.

Method: seventeen patient-professional dyads comprising 15 patients and 11 health professionals were interviewed on up to three occasions. In total 64 semi-structured interviews were conducted between 2015 and 2017 in Sydney, Australia.

Results: goals were manifested through patient participants' expressions of goal agency (as self-owned wants and opportunities; responsibilities to self and others; or necessities); goal-oriented dispositions (determined; responsible; or powerless); temporal orientations (past, present or future); and access to resources to support self-management. These characteristics were grouped into three typologies: ‘Goals as opportunities'; ‘From goals to responsibilities’; and ‘Necessities when living precariously’.

Conclusions: the way goals were constructed was structured over time by present experiences superimposed on past experiences and access to resources. These findings help broaden understandings of the tensions between patient and professionals’ goals for living well with chronic conditions and draw attention to the need for structural change to support people to live well with their chronic conditions.
0277-9536
13-20
Franklin, Marika
4bf9b9a6-88a0-4113-a349-6c12606b642e
Lewis, Sophie
e033d675-061d-4ad4-a57a-95b4ccf4edcd
Willis, Karen
0c02e3e5-6e24-4a75-8a2d-3168eb86b390
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7
Venville, Annie
ebd92c61-f485-4689-a4dd-c3328c115eaa
Smith, Lorraine
415a2f5e-6bce-4beb-b55d-1e14bc645ce5
Franklin, Marika
4bf9b9a6-88a0-4113-a349-6c12606b642e
Lewis, Sophie
e033d675-061d-4ad4-a57a-95b4ccf4edcd
Willis, Karen
0c02e3e5-6e24-4a75-8a2d-3168eb86b390
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7
Venville, Annie
ebd92c61-f485-4689-a4dd-c3328c115eaa
Smith, Lorraine
415a2f5e-6bce-4beb-b55d-1e14bc645ce5

Franklin, Marika, Lewis, Sophie, Willis, Karen, Rogers, Anne, Venville, Annie and Smith, Lorraine (2019) Goals for living with a chronic condition: the relevance of temporalities, dispositions, and resources. Social Science & Medicine, 233, 13-20. (doi:10.1016/j.socscimed.2019.05.031).

Record type: Article

Abstract

Introduction: premised on the idea that setting goals motivates action and allocation of resources toward a desired future state, goal-setting has become a key component of self-management support. The notions that underpin goal-setting situate self-management firmly within the control and responsibility of individuals. Yet, we argue that goals are not solely individual pursuits to be achieved if individuals have the right knowledge and enough motivation; rather, they are social products, influenced by individual and collective subjectivities, which are structured over time.

Objective: drawing primarily on Bourdieu's concept of habitus, along with capital and field, we examine how goals are constructed in self-management support encounters.

Method: seventeen patient-professional dyads comprising 15 patients and 11 health professionals were interviewed on up to three occasions. In total 64 semi-structured interviews were conducted between 2015 and 2017 in Sydney, Australia.

Results: goals were manifested through patient participants' expressions of goal agency (as self-owned wants and opportunities; responsibilities to self and others; or necessities); goal-oriented dispositions (determined; responsible; or powerless); temporal orientations (past, present or future); and access to resources to support self-management. These characteristics were grouped into three typologies: ‘Goals as opportunities'; ‘From goals to responsibilities’; and ‘Necessities when living precariously’.

Conclusions: the way goals were constructed was structured over time by present experiences superimposed on past experiences and access to resources. These findings help broaden understandings of the tensions between patient and professionals’ goals for living well with chronic conditions and draw attention to the need for structural change to support people to live well with their chronic conditions.

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More information

Accepted/In Press date: 19 May 2019
e-pub ahead of print date: 24 May 2019
Published date: July 2019

Identifiers

Local EPrints ID: 434191
URI: http://eprints.soton.ac.uk/id/eprint/434191
ISSN: 0277-9536
PURE UUID: 62c398ed-2fd5-473e-b3b1-992bcf8e39bd

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Date deposited: 13 Sep 2019 16:30
Last modified: 16 Mar 2024 02:13

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Contributors

Author: Marika Franklin
Author: Sophie Lewis
Author: Karen Willis
Author: Anne Rogers
Author: Annie Venville
Author: Lorraine Smith

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