The University of Southampton
University of Southampton Institutional Repository

Development of feeding information for infants with CHD

Development of feeding information for infants with CHD
Development of feeding information for infants with CHD
Introduction:
Infants with CHD often experience growth failure. Ensuring optimal growth before surgery is associated with improved outcomes and has emerged as a significant cause of parental stress. Parents have reported a perceived lack of accessible feeding information for infants with CHD. To address this gap, the aim of this study was to develop feeding information to better support parents.

Materials and methods:
A search for existing material on six electronic databases and an internet search for unpublished (grey) literature on feeding information for infants with CHD were carried out. Following the development of feeding information, semi-structured interview(s) with parents/health-care professionals were completed, focusing on whether the information was easy to understand, relevant, provided sufficient information around feeding/feeding difficulties, and whether there were any information gaps. Iterative changes were made to the information following each interview. The process was completed until thematic saturation was achieved.

Results:
A total of 23 unique articles were identified of which 5 studies were included. From the grey literature, four web pages were reviewed. A total of 22 parents and 25 health-care professionals were interviewed. All parents/health-care professionals felt that the feeding information developed provided sufficient information; however, many wanted information on how to introduce complementary food, particularly if weaning was delayed.

Conclusions:
This study describes the development of feeding information for infants with CHD. From parent interviews, gaps identified focused on the introduction of complementary foods and uncertainty regarding the feeding journey beyond surgery.
1047-9511
1165-1171
Marino, Luise V.
c479400f-9424-4879-9ca6-d81e6351de26
Johnson, Mark J.
ce07b5dd-b12b-47df-a5df-cd3b9447c9ed
Davies, Natalie J.
f1c73b0e-6a7f-446c-854d-bd52250d3220
Kidd, Catherine
a4a51072-5032-4eeb-938f-6f77d5f78bcd
Richens, Trevor
22f3d9d8-5adb-4a80-baf4-eddaadadcc4c
Bharucha, Tara
d8f5d152-31e0-49e7-99ac-5fdead9afef8
Darlington, Anne-sophie
472fcfc9-160b-4344-8113-8dd8760ff962
Marino, Luise V.
c479400f-9424-4879-9ca6-d81e6351de26
Johnson, Mark J.
ce07b5dd-b12b-47df-a5df-cd3b9447c9ed
Davies, Natalie J.
f1c73b0e-6a7f-446c-854d-bd52250d3220
Kidd, Catherine
a4a51072-5032-4eeb-938f-6f77d5f78bcd
Richens, Trevor
22f3d9d8-5adb-4a80-baf4-eddaadadcc4c
Bharucha, Tara
d8f5d152-31e0-49e7-99ac-5fdead9afef8
Darlington, Anne-sophie
472fcfc9-160b-4344-8113-8dd8760ff962

Marino, Luise V., Johnson, Mark J., Davies, Natalie J., Kidd, Catherine, Richens, Trevor, Bharucha, Tara and Darlington, Anne-sophie (2019) Development of feeding information for infants with CHD. Cardiology in the Young, 29 (09), 1165-1171. (doi:10.1017/S1047951119001665).

Record type: Article

Abstract

Introduction:
Infants with CHD often experience growth failure. Ensuring optimal growth before surgery is associated with improved outcomes and has emerged as a significant cause of parental stress. Parents have reported a perceived lack of accessible feeding information for infants with CHD. To address this gap, the aim of this study was to develop feeding information to better support parents.

Materials and methods:
A search for existing material on six electronic databases and an internet search for unpublished (grey) literature on feeding information for infants with CHD were carried out. Following the development of feeding information, semi-structured interview(s) with parents/health-care professionals were completed, focusing on whether the information was easy to understand, relevant, provided sufficient information around feeding/feeding difficulties, and whether there were any information gaps. Iterative changes were made to the information following each interview. The process was completed until thematic saturation was achieved.

Results:
A total of 23 unique articles were identified of which 5 studies were included. From the grey literature, four web pages were reviewed. A total of 22 parents and 25 health-care professionals were interviewed. All parents/health-care professionals felt that the feeding information developed provided sufficient information; however, many wanted information on how to introduce complementary food, particularly if weaning was delayed.

Conclusions:
This study describes the development of feeding information for infants with CHD. From parent interviews, gaps identified focused on the introduction of complementary foods and uncertainty regarding the feeding journey beyond surgery.

Text
Development of feeding information for infants with congenital heart disease - Accepted Manuscript
Download (146kB)
Text
Development of feeding information for infants with chd - Version of Record
Available under License Creative Commons Attribution.
Download (283kB)

More information

Accepted/In Press date: 18 June 2019
e-pub ahead of print date: 5 August 2019
Published date: 1 September 2019

Identifiers

Local EPrints ID: 434528
URI: http://eprints.soton.ac.uk/id/eprint/434528
ISSN: 1047-9511
PURE UUID: f09e7fa4-5fab-47a4-8097-62189015d8a7
ORCID for Mark J. Johnson: ORCID iD orcid.org/0000-0003-1829-9912

Catalogue record

Date deposited: 27 Sep 2019 16:30
Last modified: 08 Oct 2019 00:23

Export record

Altmetrics

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×