The University of Southampton
University of Southampton Institutional Repository

Parental perceptions and understanding of information provision, management options and factors influencing the decision-making process in the treatment of children with glue ear

Parental perceptions and understanding of information provision, management options and factors influencing the decision-making process in the treatment of children with glue ear
Parental perceptions and understanding of information provision, management options and factors influencing the decision-making process in the treatment of children with glue ear
Objectives Otitis media with effusion (OME) is a common cause of hearing loss and possible developmental delay in children, and there are a range of ?preference sensitive? treatment options. We aimed to evaluate the attitudes and beliefs of parents of affected children to treatment options including watchful-waiting, hearing aids, grommets, and, oral steroids with the intention of developing our understanding of decision-making and the factors influencing it, sources of parental information, and satisfaction with information provision. Design We recruited a convenience sample of twelve parents of eleven children with OME at a single ENT department of a teaching hospital into a qualitative research study. The children of the parents interviewed had already been recruited into the Oral Steroids for the Resolution of Otitis Media with effusion In Children (OSTRICH) study. Semi structured interviews were audio recorded, transcribed and then coded using an inductive, thematic approach. Results Parents were satisfied with the verbal provision of information during the treatment consultation, although many were keen to receive supplementary printed information. Discussion with family and friends helped the decision-making process, whereas insufficient information and a paternalistic approach were viewed as obstacles. Parents were particularly influenced by the following: the immediacy of the treatment option effect, perceived efficacy, perceived risks and adverse effects, social implications (especially with hearing aids) and past personal and informant experience. Conclusions Parents appreciate clinicians tailoring information provision to parents' information needs and preferred format. Clinicians should also elicit parental attitudes towards the different management options for OME and the factors influencing their decisions, in order to optimise shared-decision making and ultimately provide a better standard of clinical care.
Information provision, Parental decision-making, Glue ear, Otitis media with effusion
0165-5876
6-12
Gkiousias, Vasileios
8ee6a81c-577a-4ca4-9d9a-d2062851b2ae
Butler, Christopher Collett
d2f9102c-54c2-4570-be4e-32324c8c8f1d
Shepherd, Victoria
b0622fcc-79c1-4a83-8457-ec5ae3911bb3
Kilgour, James Michael
5a679f68-42bd-4b2f-b6d2-3a0cf8a59c00
Waldron, Cherry-Ann
74f893bb-7b67-4f67-b598-7d598cfd4085
Thomas-Jones, Emma
ea15d5ac-8232-4823-ab40-17bec0968520
Francis, Nicholas
9b610883-605c-4fee-871d-defaa86ccf8e
Gkiousias, Vasileios
8ee6a81c-577a-4ca4-9d9a-d2062851b2ae
Butler, Christopher Collett
d2f9102c-54c2-4570-be4e-32324c8c8f1d
Shepherd, Victoria
b0622fcc-79c1-4a83-8457-ec5ae3911bb3
Kilgour, James Michael
5a679f68-42bd-4b2f-b6d2-3a0cf8a59c00
Waldron, Cherry-Ann
74f893bb-7b67-4f67-b598-7d598cfd4085
Thomas-Jones, Emma
ea15d5ac-8232-4823-ab40-17bec0968520
Francis, Nicholas
9b610883-605c-4fee-871d-defaa86ccf8e

Gkiousias, Vasileios, Butler, Christopher Collett, Shepherd, Victoria, Kilgour, James Michael, Waldron, Cherry-Ann, Thomas-Jones, Emma and Francis, Nicholas (2016) Parental perceptions and understanding of information provision, management options and factors influencing the decision-making process in the treatment of children with glue ear. International Journal of Pediatric Otorhinolaryngology, 89, 6-12. (doi:10.1016/j.ijporl.2016.07.021).

Record type: Article

Abstract

Objectives Otitis media with effusion (OME) is a common cause of hearing loss and possible developmental delay in children, and there are a range of ?preference sensitive? treatment options. We aimed to evaluate the attitudes and beliefs of parents of affected children to treatment options including watchful-waiting, hearing aids, grommets, and, oral steroids with the intention of developing our understanding of decision-making and the factors influencing it, sources of parental information, and satisfaction with information provision. Design We recruited a convenience sample of twelve parents of eleven children with OME at a single ENT department of a teaching hospital into a qualitative research study. The children of the parents interviewed had already been recruited into the Oral Steroids for the Resolution of Otitis Media with effusion In Children (OSTRICH) study. Semi structured interviews were audio recorded, transcribed and then coded using an inductive, thematic approach. Results Parents were satisfied with the verbal provision of information during the treatment consultation, although many were keen to receive supplementary printed information. Discussion with family and friends helped the decision-making process, whereas insufficient information and a paternalistic approach were viewed as obstacles. Parents were particularly influenced by the following: the immediacy of the treatment option effect, perceived efficacy, perceived risks and adverse effects, social implications (especially with hearing aids) and past personal and informant experience. Conclusions Parents appreciate clinicians tailoring information provision to parents' information needs and preferred format. Clinicians should also elicit parental attitudes towards the different management options for OME and the factors influencing their decisions, in order to optimise shared-decision making and ultimately provide a better standard of clinical care.

Full text not available from this repository.

More information

Accepted/In Press date: 21 July 2016
e-pub ahead of print date: 25 July 2016
Published date: 1 October 2016
Keywords: Information provision, Parental decision-making, Glue ear, Otitis media with effusion

Identifiers

Local EPrints ID: 435848
URI: http://eprints.soton.ac.uk/id/eprint/435848
ISSN: 0165-5876
PURE UUID: 5f47b2e2-92ba-42f4-b51a-0fd6d8fb6ed5
ORCID for Nicholas Francis: ORCID iD orcid.org/0000-0001-8939-7312

Catalogue record

Date deposited: 21 Nov 2019 17:30
Last modified: 10 Dec 2019 01:20

Export record

Altmetrics

Contributors

Author: Vasileios Gkiousias
Author: Christopher Collett Butler
Author: Victoria Shepherd
Author: James Michael Kilgour
Author: Cherry-Ann Waldron
Author: Emma Thomas-Jones

University divisions

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×