Resolving stakeholder tussles in healthcare systems: ethical challenges to data protection
Resolving stakeholder tussles in healthcare systems: ethical challenges to data protection
For cross-border collaborative healthcare delivery, data protection legislation seems to be increasingly obstructive. In extreme cases, this may compromise the quality of care a patient receives and at the same time prevent clinicians practicing and developing their medical skills to their full potential. A dilemma develops whereby the fundamental rights of patient and clinician are constrained by the very legal instruments designed to make delivery of healthcare easier. The contention between patient and clinician expectations, or tussles, may pose a threat to future healthcare delivery. Compromising healthcare delivery in this way has wider implications for community trust. The concept of tussles in technology infrastructures suggests an actor-network approach involving the patient and clinician relationship within the context of community response to their interactions to offer an innovative perspective on the problem of tussles in healthcare. In this paper, we develop such an approach and discuss an initial validation based on cross-border healthcare scenarios illustrating the contention between fundamental ethical rights and actor-network compliance.
190-201
Pickering, Brian
225088d0-729e-4f17-afe2-1ad1193ccae6
Faiella, Giuliana
2d72fcb7-c481-47a2-a3da-3f60dc6ad0f4
Clemente, Fabrizio
085e4b7c-96a7-4a76-9c4c-6a1154ce8e0b
16 October 2019
Pickering, Brian
225088d0-729e-4f17-afe2-1ad1193ccae6
Faiella, Giuliana
2d72fcb7-c481-47a2-a3da-3f60dc6ad0f4
Clemente, Fabrizio
085e4b7c-96a7-4a76-9c4c-6a1154ce8e0b
Pickering, Brian, Faiella, Giuliana and Clemente, Fabrizio
(2019)
Resolving stakeholder tussles in healthcare systems: ethical challenges to data protection.
Attiogbe, Christian, Ferrarotti, Flavio and Maabout, Sofian
(eds.)
In MEDI 2019: New Trends in Model and Data Engineering: Communications in Computer and Information Science.
vol. 1085,
Springer.
.
(doi:10.1007/978-3-030-32213-7_15).
Record type:
Conference or Workshop Item
(Paper)
Abstract
For cross-border collaborative healthcare delivery, data protection legislation seems to be increasingly obstructive. In extreme cases, this may compromise the quality of care a patient receives and at the same time prevent clinicians practicing and developing their medical skills to their full potential. A dilemma develops whereby the fundamental rights of patient and clinician are constrained by the very legal instruments designed to make delivery of healthcare easier. The contention between patient and clinician expectations, or tussles, may pose a threat to future healthcare delivery. Compromising healthcare delivery in this way has wider implications for community trust. The concept of tussles in technology infrastructures suggests an actor-network approach involving the patient and clinician relationship within the context of community response to their interactions to offer an innovative perspective on the problem of tussles in healthcare. In this paper, we develop such an approach and discuss an initial validation based on cross-border healthcare scenarios illustrating the contention between fundamental ethical rights and actor-network compliance.
Text
Resolving stakeholder tussles in healthcare systems Ethical challenges to data protection
- Accepted Manuscript
More information
Published date: 16 October 2019
Identifiers
Local EPrints ID: 436197
URI: http://eprints.soton.ac.uk/id/eprint/436197
PURE UUID: 1254d1ad-43af-45cb-8c22-367a74e3bf4d
Catalogue record
Date deposited: 03 Dec 2019 17:30
Last modified: 17 Mar 2024 05:05
Export record
Altmetrics
Contributors
Author:
Giuliana Faiella
Author:
Fabrizio Clemente
Editor:
Christian Attiogbe
Editor:
Flavio Ferrarotti
Editor:
Sofian Maabout
Download statistics
Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.
View more statistics
