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Early specialist palliative care on quality of life for malignant pleural mesothelioma: a randomised controlled trial

Early specialist palliative care on quality of life for malignant pleural mesothelioma: a randomised controlled trial
Early specialist palliative care on quality of life for malignant pleural mesothelioma: a randomised controlled trial
Purpose Malignant pleural mesothelioma (MPM) has a high symptom burden and poor survival. Evidence from other cancer types suggests some benefit in health-related quality of life (HRQoL) with early specialist palliative care (SPC) integrated with oncological services, but the certainty of evidence is low.

Methods We performed a multicentre, randomised, parallel group controlled trial comparing early referral to SPC versus standard care across 19 hospital sites in the UK and one large site in Western Australia. Participants had newly diagnosed MPM; main carers were additionally recruited. Intervention: review by SPC within 3 weeks of allocation and every 4 weeks throughout the study. HRQoL was assessed at baseline and every 4 weeks with the European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire Core 30. Primary outcome: change in EORTC C30 Global Health Status 12 weeks after randomisation.

Results Between April 2014 and October 2016, 174 participants were randomised. There was no significant between group difference in HRQoL score at 12 weeks (mean difference 1.8 (95% CI −4.9 to 8.5; p=0.59)). HRQoL did not differ at 24 weeks (mean difference −2.0 (95% CI −8.6 to 4.6; p=0.54)). There was no difference in depression/anxiety scores at 12 weeks or 24 weeks. In carers, there was no difference in HRQoL or mood at 12 weeks or 24 weeks, although there was a consistent preference for care, favouring the intervention arm.

Conclusion There is no role for routine referral to SPC soon after diagnosis of MPM for patients who are cared for in centres with good access to SPC when required.
0040-6376
354-361
Brims, Fraser
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Gunatilake, Samal
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Lawrie, Iain
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Marshall, Laura
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Fogg, Carole
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Qi, Cathy
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Creech, Lorraine
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Holtom, Nicola
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Killick, Stephanie
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Yung, Bernard
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Cooper, David
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Stadon, Louise
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Cook, Peter
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Fuller, Elizabeth
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Walther, Julie
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Plunkett, Claire
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Bates, Andrew
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Mackinlay, Carolyn
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Tandon, Anil
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Maskell, Nicholas A
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Forbes, Karen
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Rahman, Najib M
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Gerry, Stephen
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Chauhan, Anoop J.
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Brims, Fraser
2e8a75a2-e9ec-4b72-9eb8-f9a42f56ef96
Gunatilake, Samal
a197fae4-7704-4992-b248-f985e4942aec
Lawrie, Iain
7ffef494-cc34-4f87-aacb-5333b2708e9e
Marshall, Laura
881ffcb3-605f-4214-96c2-d572d37db9e3
Fogg, Carole
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Qi, Cathy
becf7b18-4600-4e34-a31c-a2376958d89e
Creech, Lorraine
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Holtom, Nicola
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Killick, Stephanie
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Yung, Bernard
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Cooper, David
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Stadon, Louise
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Cook, Peter
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Fuller, Elizabeth
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Walther, Julie
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Plunkett, Claire
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Bates, Andrew
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Mackinlay, Carolyn
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Tandon, Anil
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Maskell, Nicholas A
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Forbes, Karen
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Rahman, Najib M
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Gerry, Stephen
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Chauhan, Anoop J.
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Brims, Fraser, Gunatilake, Samal, Lawrie, Iain, Marshall, Laura, Fogg, Carole, Qi, Cathy, Creech, Lorraine, Holtom, Nicola, Killick, Stephanie, Yung, Bernard, Cooper, David, Stadon, Louise, Cook, Peter, Fuller, Elizabeth, Walther, Julie, Plunkett, Claire, Bates, Andrew, Mackinlay, Carolyn, Tandon, Anil, Maskell, Nicholas A, Forbes, Karen, Rahman, Najib M, Gerry, Stephen and Chauhan, Anoop J. (2019) Early specialist palliative care on quality of life for malignant pleural mesothelioma: a randomised controlled trial. Thorax, 74 (4), 354-361. (doi:10.1136/thoraxjnl-2018-212380).

Record type: Article

Abstract

Purpose Malignant pleural mesothelioma (MPM) has a high symptom burden and poor survival. Evidence from other cancer types suggests some benefit in health-related quality of life (HRQoL) with early specialist palliative care (SPC) integrated with oncological services, but the certainty of evidence is low.

Methods We performed a multicentre, randomised, parallel group controlled trial comparing early referral to SPC versus standard care across 19 hospital sites in the UK and one large site in Western Australia. Participants had newly diagnosed MPM; main carers were additionally recruited. Intervention: review by SPC within 3 weeks of allocation and every 4 weeks throughout the study. HRQoL was assessed at baseline and every 4 weeks with the European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire Core 30. Primary outcome: change in EORTC C30 Global Health Status 12 weeks after randomisation.

Results Between April 2014 and October 2016, 174 participants were randomised. There was no significant between group difference in HRQoL score at 12 weeks (mean difference 1.8 (95% CI −4.9 to 8.5; p=0.59)). HRQoL did not differ at 24 weeks (mean difference −2.0 (95% CI −8.6 to 4.6; p=0.54)). There was no difference in depression/anxiety scores at 12 weeks or 24 weeks. In carers, there was no difference in HRQoL or mood at 12 weeks or 24 weeks, although there was a consistent preference for care, favouring the intervention arm.

Conclusion There is no role for routine referral to SPC soon after diagnosis of MPM for patients who are cared for in centres with good access to SPC when required.

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More information

Accepted/In Press date: 10 December 2018
e-pub ahead of print date: 19 January 2019
Published date: 14 March 2019

Identifiers

Local EPrints ID: 437113
URI: http://eprints.soton.ac.uk/id/eprint/437113
ISSN: 0040-6376
PURE UUID: 55242784-72e8-498c-be9b-95f75e7a1ee5
ORCID for Carole Fogg: ORCID iD orcid.org/0000-0002-3000-6185

Catalogue record

Date deposited: 17 Jan 2020 17:32
Last modified: 17 Mar 2024 03:56

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Contributors

Author: Fraser Brims
Author: Samal Gunatilake
Author: Iain Lawrie
Author: Laura Marshall
Author: Carole Fogg ORCID iD
Author: Cathy Qi
Author: Lorraine Creech
Author: Nicola Holtom
Author: Stephanie Killick
Author: Bernard Yung
Author: David Cooper
Author: Louise Stadon
Author: Peter Cook
Author: Elizabeth Fuller
Author: Julie Walther
Author: Claire Plunkett
Author: Andrew Bates
Author: Carolyn Mackinlay
Author: Anil Tandon
Author: Nicholas A Maskell
Author: Karen Forbes
Author: Najib M Rahman
Author: Stephen Gerry
Author: Anoop J. Chauhan

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