Peer mentors for people with advanced cancer: lessons learnt from recruiting and training peer mentors for a feasibility randomized controlled trial
Peer mentors for people with advanced cancer: lessons learnt from recruiting and training peer mentors for a feasibility randomized controlled trial
Peer mentors may offer distinctive forms of support to people with advanced cancer. Whilst peer mentor programmes are known, little is understood about recruiting and training peer mentors to support those with advanced cancer. The purpose of this study is to determine the feasibility of recruiting and training peer mentors for a novel peer mentor intervention to promote well-being in people with advanced cancer. Feasibility study testing proactive introduction to a trained peer mentor for 12 weeks in the context of a randomized controlled two-arm trial and nested qualitative process evaluation was used. Peer mentors have/had cancer, recruited via an open call. Two-day training included a new bespoke module on coping with cancer. Descriptive recruitment and training data were captured, supplemented by qualitative interviews, analysed thematically. Forty-eight people expressed interest, mostly female (69%), with breast cancer (32%), and recruited via social media (49%). Twelve people completed training, with attrition often due to availability or mentors’ own health; many had advanced cancer themselves. They wanted to ‘give something back’, but also formed supportive bonds with fellow mentors. It is feasible to recruit and train people with lived experience of cancer to be peer mentors, but those with particular characteristics may predominate. Broad social media based recruitment may have merit in widening the pool of potential peer mentors.
Cancer, Feasibility study, Palliative care, Peer Mentor, Recruitment, Volunteer
Walshe, Catherine
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Roberts, Diane
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Calman, Lynn
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Appleton, Lynda
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Croft, Robert
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Perez Algorta, Guillermo
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Skevington, Suzanne
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Lloyd-williams, Mari
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Grande, Gunn
7335911a-ee7f-44cd-924e-c8b3c903fe6c
Walshe, Catherine
2917881f-9a21-4b0d-9453-b112c0041e35
Roberts, Diane
69d9278a-f158-4870-903a-970977b40b7c
Calman, Lynn
9ae254eb-74a7-4906-9eb4-62ad99f058c1
Appleton, Lynda
971b9244-aa8e-4d81-9f95-18ed4fe755f5
Croft, Robert
8626ef24-3a9c-421f-bc06-bc8439bb648e
Perez Algorta, Guillermo
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Skevington, Suzanne
4664c3cc-a15c-4af9-8dbb-14e92f3cb4ff
Lloyd-williams, Mari
80771f88-6f66-4130-a93c-cf5746db30d9
Grande, Gunn
7335911a-ee7f-44cd-924e-c8b3c903fe6c
Walshe, Catherine, Roberts, Diane, Calman, Lynn, Appleton, Lynda, Croft, Robert, Perez Algorta, Guillermo, Skevington, Suzanne, Lloyd-williams, Mari and Grande, Gunn
(2020)
Peer mentors for people with advanced cancer: lessons learnt from recruiting and training peer mentors for a feasibility randomized controlled trial.
Journal of Cancer Education.
(doi:10.1007/s13187-020-01692-7).
Abstract
Peer mentors may offer distinctive forms of support to people with advanced cancer. Whilst peer mentor programmes are known, little is understood about recruiting and training peer mentors to support those with advanced cancer. The purpose of this study is to determine the feasibility of recruiting and training peer mentors for a novel peer mentor intervention to promote well-being in people with advanced cancer. Feasibility study testing proactive introduction to a trained peer mentor for 12 weeks in the context of a randomized controlled two-arm trial and nested qualitative process evaluation was used. Peer mentors have/had cancer, recruited via an open call. Two-day training included a new bespoke module on coping with cancer. Descriptive recruitment and training data were captured, supplemented by qualitative interviews, analysed thematically. Forty-eight people expressed interest, mostly female (69%), with breast cancer (32%), and recruited via social media (49%). Twelve people completed training, with attrition often due to availability or mentors’ own health; many had advanced cancer themselves. They wanted to ‘give something back’, but also formed supportive bonds with fellow mentors. It is feasible to recruit and train people with lived experience of cancer to be peer mentors, but those with particular characteristics may predominate. Broad social media based recruitment may have merit in widening the pool of potential peer mentors.
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Walshe_et_al-2020-Journal_of_Cancer_Education (1)
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Accepted/In Press date: 2020
e-pub ahead of print date: 28 January 2020
Additional Information:
Funding Information:
This paper presents independent research funded by the National Institute for Health Research (NIHR) under its Research for Patient Benefit (RfPB) Programme (Grant Reference Number PB-PG-0614-34,070). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. The study was sponsored by Lancaster University.
Publisher Copyright:
© 2020, The Author(s).
Keywords:
Cancer, Feasibility study, Palliative care, Peer Mentor, Recruitment, Volunteer
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Local EPrints ID: 438070
URI: http://eprints.soton.ac.uk/id/eprint/438070
ISSN: 0885-8195
PURE UUID: b08dfe68-d74d-4fd0-a233-2eb9c11eba5f
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Date deposited: 27 Feb 2020 17:31
Last modified: 17 Mar 2024 03:27
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Contributors
Author:
Catherine Walshe
Author:
Diane Roberts
Author:
Lynda Appleton
Author:
Robert Croft
Author:
Guillermo Perez Algorta
Author:
Suzanne Skevington
Author:
Mari Lloyd-williams
Author:
Gunn Grande
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