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Mediating engagement in a social network intervention for people living with a long-term condition: a qualitative study of the role of facilitation

Mediating engagement in a social network intervention for people living with a long-term condition: a qualitative study of the role of facilitation
Mediating engagement in a social network intervention for people living with a long-term condition: a qualitative study of the role of facilitation

Background: Successful facilitation of patient-centred interventions for self-management support has traditionally focussed on individual behaviour change. A social network approach to self-management support implicates the need for facilitation that includes an orientation to connecting to and mobilizing support and resources from other people and the local environment. Objective: To identify the facilitation processes through which engagement with a social network approach to self-management is achieved. Method: Thematic analysis was used to analyse data from a longitudinal study design using quasi-ethnographic methods comprising non-participant observation, video and qualitative interviews involving 30 participants living with a long-term condition recruited from a marginalized community. Results: Findings centred on three themes about the social network approach facilitation processes: reversing the focus on the self by bringing others into view; visualization and reflection as a mediator of positive disruption and linking to new connections; personalized matching of valued activities as a means of realizing preference elicitation. Discussion and conclusions: Engagement processes with a social network approach illuminated the relevance of cognizance of an individual's immediate social context and forefronting social participation with others as the bases of self-management support of a long-term condition. This differs from traditional guided facilitation of health behaviour interventions that frame health as a matter of personal choice and individual responsibility.

patient facilitation, self-management support, social context, social network intervention, social participation
1369-6513
681-690
James, Elizabeth
b7e90b5a-da45-4459-ae84-150adc07e988
Kennedy, Anne
e059c1c7-d6d0-41c8-95e1-95e5273b07f8
Vassilev, Ivaylo
d76a5531-4ddc-4eb2-909b-a2a1068f05f3
Ellis, Jaimie
eb60a3a4-281b-4895-9583-4d5cf1e65b4d
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7
James, Elizabeth
b7e90b5a-da45-4459-ae84-150adc07e988
Kennedy, Anne
e059c1c7-d6d0-41c8-95e1-95e5273b07f8
Vassilev, Ivaylo
d76a5531-4ddc-4eb2-909b-a2a1068f05f3
Ellis, Jaimie
eb60a3a4-281b-4895-9583-4d5cf1e65b4d
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7

James, Elizabeth, Kennedy, Anne, Vassilev, Ivaylo, Ellis, Jaimie and Rogers, Anne (2020) Mediating engagement in a social network intervention for people living with a long-term condition: a qualitative study of the role of facilitation. Health Expectations, 23 (3), 681-690. (doi:10.1111/hex.13048).

Record type: Article

Abstract

Background: Successful facilitation of patient-centred interventions for self-management support has traditionally focussed on individual behaviour change. A social network approach to self-management support implicates the need for facilitation that includes an orientation to connecting to and mobilizing support and resources from other people and the local environment. Objective: To identify the facilitation processes through which engagement with a social network approach to self-management is achieved. Method: Thematic analysis was used to analyse data from a longitudinal study design using quasi-ethnographic methods comprising non-participant observation, video and qualitative interviews involving 30 participants living with a long-term condition recruited from a marginalized community. Results: Findings centred on three themes about the social network approach facilitation processes: reversing the focus on the self by bringing others into view; visualization and reflection as a mediator of positive disruption and linking to new connections; personalized matching of valued activities as a means of realizing preference elicitation. Discussion and conclusions: Engagement processes with a social network approach illuminated the relevance of cognizance of an individual's immediate social context and forefronting social participation with others as the bases of self-management support of a long-term condition. This differs from traditional guided facilitation of health behaviour interventions that frame health as a matter of personal choice and individual responsibility.

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Mediating engagement in a SNI_Elizabeth James - Accepted Manuscript
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Accepted/In Press date: 19 February 2020
e-pub ahead of print date: 11 March 2020
Published date: 1 June 2020
Additional Information: Funding Information: The research was funded by the Health Foundation and the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Wessex. The views expressed in this article are those of the authors and not necessarily those of the National Institute for Health Research or the Department of Health and Social Care. The authors wish to thank the participants who kindly gave their time and contributed to intervention delivery and interviews; recruiters and facilitators from the lay health workforce on the IoW; and Sandy Ciccognani, the PPI champion. Publisher Copyright: © 2020 The Authors Health Expectations published by John Wiley & Sons Ltd
Keywords: patient facilitation, self-management support, social context, social network intervention, social participation

Identifiers

Local EPrints ID: 438416
URI: http://eprints.soton.ac.uk/id/eprint/438416
ISSN: 1369-6513
PURE UUID: 1edaba56-a940-4e4c-90ee-39ccba418138
ORCID for Elizabeth James: ORCID iD orcid.org/0000-0001-9355-0295
ORCID for Anne Kennedy: ORCID iD orcid.org/0000-0003-4570-9104
ORCID for Ivaylo Vassilev: ORCID iD orcid.org/0000-0002-2206-8247
ORCID for Jaimie Ellis: ORCID iD orcid.org/0000-0003-0068-3318

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Date deposited: 09 Mar 2020 17:33
Last modified: 17 Mar 2024 03:32

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Contributors

Author: Elizabeth James ORCID iD
Author: Anne Kennedy ORCID iD
Author: Ivaylo Vassilev ORCID iD
Author: Jaimie Ellis ORCID iD
Author: Anne Rogers

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