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Psychosocial adjustment of in-home caregivers of family members with dementia and Parkinson’s disease: a comparative study

Psychosocial adjustment of in-home caregivers of family members with dementia and Parkinson’s disease: a comparative study
Psychosocial adjustment of in-home caregivers of family members with dementia and Parkinson’s disease: a comparative study
Neurodegenerative diseases such as Parkinson’s and dementia are highly prevalent worldwide. People who suffer from these disorders often receive in-home care and assistance from family members, who must dedicate a considerable amount of time to the care recipient. The study of family caregivers’ psychosocial adjustment to the degenerative processes of both conditions is of interest due to the implications for the quality of life of both the care receiver and the caregiver, as well as other family members. This study compares the psychosocial adjustment of family members who care for people with dementia and Parkinson’s disease and identifies the main sociodemographic variables that affect the processes of adjustment to both conditions. To this end, the Psychosocial Adjustment to Illness Scale (PAIS-SR) and a sociodemographic form were administered to 157 family caregivers in Navarre, Spain. The results show that adjustment to the disease in family caregivers of people with Parkinson’s disease and dementia is, in general, satisfactory and related to variables such as place of residence, income, and employment status. The illness itself (Parkinson’s or dementia), however, is found to be the most influential variable in the level of psychosocial adjustment.
2090-8083
Lopes-Dos Santos, Cristina
d6617017-1b88-4924-a65d-e349500d2ff5
Navarta-Sánchez, María Victoria
14de8949-7408-4702-bd0e-131fd3018f53
José A., Moler
f02ac2da-d540-4459-a49c-094acce216e3
García-Lautre, Ignacio
4c79a732-26a8-4f6c-b53c-ac0e6e8f5b81
Anaut-Bravo, Sagrario
a801fdea-64da-47f7-951f-d68f1b1aa22b
Portillo Vega, Maria Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Lopes-Dos Santos, Cristina
d6617017-1b88-4924-a65d-e349500d2ff5
Navarta-Sánchez, María Victoria
14de8949-7408-4702-bd0e-131fd3018f53
José A., Moler
f02ac2da-d540-4459-a49c-094acce216e3
García-Lautre, Ignacio
4c79a732-26a8-4f6c-b53c-ac0e6e8f5b81
Anaut-Bravo, Sagrario
a801fdea-64da-47f7-951f-d68f1b1aa22b
Portillo Vega, Maria Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c

Lopes-Dos Santos, Cristina, Navarta-Sánchez, María Victoria, José A., Moler, García-Lautre, Ignacio, Anaut-Bravo, Sagrario and Portillo Vega, Maria Carmen (2020) Psychosocial adjustment of in-home caregivers of family members with dementia and Parkinson’s disease: a comparative study. Parkinson's Disease, 2020, [2086834]. (doi:10.1155/2020/2086834).

Record type: Article

Abstract

Neurodegenerative diseases such as Parkinson’s and dementia are highly prevalent worldwide. People who suffer from these disorders often receive in-home care and assistance from family members, who must dedicate a considerable amount of time to the care recipient. The study of family caregivers’ psychosocial adjustment to the degenerative processes of both conditions is of interest due to the implications for the quality of life of both the care receiver and the caregiver, as well as other family members. This study compares the psychosocial adjustment of family members who care for people with dementia and Parkinson’s disease and identifies the main sociodemographic variables that affect the processes of adjustment to both conditions. To this end, the Psychosocial Adjustment to Illness Scale (PAIS-SR) and a sociodemographic form were administered to 157 family caregivers in Navarre, Spain. The results show that adjustment to the disease in family caregivers of people with Parkinson’s disease and dementia is, in general, satisfactory and related to variables such as place of residence, income, and employment status. The illness itself (Parkinson’s or dementia), however, is found to be the most influential variable in the level of psychosocial adjustment.

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More information

Accepted/In Press date: 3 April 2020
e-pub ahead of print date: 28 April 2020
Published date: 28 April 2020
Additional Information: Publisher Copyright: © 2020 María Cristina Lopes Dos Santos et al.

Identifiers

Local EPrints ID: 439695
URI: http://eprints.soton.ac.uk/id/eprint/439695
ISSN: 2090-8083
PURE UUID: db388a99-1048-4486-8403-1dfeb31fa425
ORCID for Maria Carmen Portillo Vega: ORCID iD orcid.org/0000-0003-1583-6612

Catalogue record

Date deposited: 29 Apr 2020 16:36
Last modified: 17 Mar 2024 03:37

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Contributors

Author: Cristina Lopes-Dos Santos
Author: María Victoria Navarta-Sánchez
Author: Moler José A.
Author: Ignacio García-Lautre
Author: Sagrario Anaut-Bravo

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