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Building relationships in inclusive research in diverse contexts

Building relationships in inclusive research in diverse contexts
Building relationships in inclusive research in diverse contexts
This article explores relationships between academics and people with intellectual disabilities collaborating in inclusive research. The authors present and reflect upon narrative accounts from Norway and England from both sides of the relationship. Each relationship is examined, including how it was initiated, established, developed and sustained, what worked well, what the obstacles were and how any conflicts were approached. The concept of being an ‘alongsider’, working alongside each other (and alongside participants with intellectual disabilities) is used. The paper shows variety in how alongsider relationships are initiated and fostered over time. Mostly, partnerships were initiated informally, based on pre-existing relationships as friends or through support worker-client relationship or earlier research cooperation, although one was initiated through a formal selection process. The paper concludes that when building relationships over time, the personal dimension is important, including sharing an interest, mutual respect and liking each other, while funding and tight timelines can interfere.
intellectual disabilities, inclusive research, alongsider research, research relationships
1501-7419
1-11
Nind, Melanie
b1e294c7-0014-483e-9320-e2a0346dffef
Chalachanová, Anna
b828ecec-aa73-4d1d-ae34-81e1450f2c06
Østby, May
a84b6bf2-b9a9-43cf-9393-698c21127cb7
Tilley, Liz
673f8a2b-ae17-4b94-937a-944d1287cec6
Walmsley, Jan
438e7d05-a4cd-4301-8475-de4c7ababe26
Westergård, Britt-Evy
51386421-24a7-42b2-979d-fdfa34f4c973
Power, Michelle
53df73b6-9b8a-4b2b-ac90-4c7a25210459
Power, Andrew
b3a1ee09-e381-413a-88ac-7cb3e13b3acc
Nind, Melanie
b1e294c7-0014-483e-9320-e2a0346dffef
Chalachanová, Anna
b828ecec-aa73-4d1d-ae34-81e1450f2c06
Østby, May
a84b6bf2-b9a9-43cf-9393-698c21127cb7
Tilley, Liz
673f8a2b-ae17-4b94-937a-944d1287cec6
Walmsley, Jan
438e7d05-a4cd-4301-8475-de4c7ababe26
Westergård, Britt-Evy
51386421-24a7-42b2-979d-fdfa34f4c973
Power, Michelle
53df73b6-9b8a-4b2b-ac90-4c7a25210459
Power, Andrew
b3a1ee09-e381-413a-88ac-7cb3e13b3acc

Nind, Melanie, Chalachanová, Anna, Østby, May, Tilley, Liz, Walmsley, Jan, Westergård, Britt-Evy, Power, Michelle and Power, Andrew (2020) Building relationships in inclusive research in diverse contexts. Scandinavian Journal of Disability Research, 22 (1), 1-11. (doi:10.16993/sjdr.681). (In Press)

Record type: Article

Abstract

This article explores relationships between academics and people with intellectual disabilities collaborating in inclusive research. The authors present and reflect upon narrative accounts from Norway and England from both sides of the relationship. Each relationship is examined, including how it was initiated, established, developed and sustained, what worked well, what the obstacles were and how any conflicts were approached. The concept of being an ‘alongsider’, working alongside each other (and alongside participants with intellectual disabilities) is used. The paper shows variety in how alongsider relationships are initiated and fostered over time. Mostly, partnerships were initiated informally, based on pre-existing relationships as friends or through support worker-client relationship or earlier research cooperation, although one was initiated through a formal selection process. The paper concludes that when building relationships over time, the personal dimension is important, including sharing an interest, mutual respect and liking each other, while funding and tight timelines can interfere.

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More information

Accepted/In Press date: 20 April 2020
Keywords: intellectual disabilities, inclusive research, alongsider research, research relationships

Identifiers

Local EPrints ID: 440660
URI: http://eprints.soton.ac.uk/id/eprint/440660
ISSN: 1501-7419
PURE UUID: 5985d2a5-e640-4fb9-948d-59fac98c11b4
ORCID for Melanie Nind: ORCID iD orcid.org/0000-0003-4070-7513
ORCID for Andrew Power: ORCID iD orcid.org/0000-0002-3887-1050

Catalogue record

Date deposited: 13 May 2020 16:33
Last modified: 05 Aug 2020 01:38

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