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Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies

Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies
Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies
Background
The number of qualitative studies on eczema has increased rapidly in recent years. Systematically reviewing these can provide greater understandings of people’s perceptions of eczema and eczema treatments.

Objectives
We sought to systematically review and thematically synthesise qualitative studies exploring views and experiences of people with eczema and parents/carers of children with eczema.

Methods
We searched MEDLINE, PsycINFO, CINAHL and EMBASE from the earliest date available to February 2019. We selected papers focusing on views and experiences of eczema, eczema treatments, and barriers/facilitators to eczema self‐management. We excluded papers focusing on health service provision models or health professionals’ views.

Results
We synthesised 39 papers (reporting 32 studies) from 13 countries. We developed four analytical themes: 1) Eczema not viewed as long‐term condition, 2) Significant psychosocial impact not acknowledged by others, 3) Hesitancy (patient/carer uncertainty) about eczema treatments and 4) Insufficient information and advice. Our findings suggest people with eczema and their carers experience frustration at having to manage a condition that is often seen by others as mundane but has significant psychosocial impact and is difficult to manage due to concerns about, and burden of, treatment. This frustration can be exacerbated by experiences of conflicting and/or insufficient information and advice from health professionals, family and others.

Conclusions
Effective self‐management of eczema could be supported by addressing beliefs and concerns about treatments; seeking positive ways to promote a ‘control not cure’ message; acknowledging psychosocial impacts of eczema and treatment burden; and providing clear consistent advice or signposting towards reliable information.
0007-0963
Teasdale, Emma
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Muller, Ingrid
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Sivyer, Katy
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Ghio, Daniela
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Greenwell, Kate
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Wilczynska, Sylvia
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Roberts, Amanda
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Ridd, Matthew J.
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Francis, Nick
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Yardley, Lucy
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Thomas, Kim
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Santer, Miriam
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Teasdale, Emma
f156de5f-e83e-40c0-aafa-0c95dd17aa80
Muller, Ingrid
2569bf42-51bd-40da-bbfd-dd4dbbd62cad
Sivyer, Katy
c9831d57-7d6b-4bb6-bb3c-770ea7f9b116
Ghio, Daniela
68e87380-d790-4f20-b24d-d3ac0ca5765d
Greenwell, Kate
4bac64bd-059f-4d7d-90d3-5c0bccb7ffb2
Wilczynska, Sylvia
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Roberts, Amanda
c4a5d206-49c3-4a07-8cfd-5bccf8c93b3b
Ridd, Matthew J.
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Francis, Nick
9b610883-605c-4fee-871d-defaa86ccf8e
Yardley, Lucy
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Thomas, Kim
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Santer, Miriam
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Teasdale, Emma, Muller, Ingrid, Sivyer, Katy, Ghio, Daniela, Greenwell, Kate, Wilczynska, Sylvia, Roberts, Amanda, Ridd, Matthew J., Francis, Nick, Yardley, Lucy, Thomas, Kim and Santer, Miriam (2020) Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies. British Journal of Dermatology. (doi:10.1111/bjd.19299).

Record type: Article

Abstract

Background
The number of qualitative studies on eczema has increased rapidly in recent years. Systematically reviewing these can provide greater understandings of people’s perceptions of eczema and eczema treatments.

Objectives
We sought to systematically review and thematically synthesise qualitative studies exploring views and experiences of people with eczema and parents/carers of children with eczema.

Methods
We searched MEDLINE, PsycINFO, CINAHL and EMBASE from the earliest date available to February 2019. We selected papers focusing on views and experiences of eczema, eczema treatments, and barriers/facilitators to eczema self‐management. We excluded papers focusing on health service provision models or health professionals’ views.

Results
We synthesised 39 papers (reporting 32 studies) from 13 countries. We developed four analytical themes: 1) Eczema not viewed as long‐term condition, 2) Significant psychosocial impact not acknowledged by others, 3) Hesitancy (patient/carer uncertainty) about eczema treatments and 4) Insufficient information and advice. Our findings suggest people with eczema and their carers experience frustration at having to manage a condition that is often seen by others as mundane but has significant psychosocial impact and is difficult to manage due to concerns about, and burden of, treatment. This frustration can be exacerbated by experiences of conflicting and/or insufficient information and advice from health professionals, family and others.

Conclusions
Effective self‐management of eczema could be supported by addressing beliefs and concerns about treatments; seeking positive ways to promote a ‘control not cure’ message; acknowledging psychosocial impacts of eczema and treatment burden; and providing clear consistent advice or signposting towards reliable information.

Text
Revised ECO Qual SR_BJD 03.05.20­_accepted manuscript - Accepted Manuscript
Restricted to Repository staff only until 12 June 2021.
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More information

Accepted/In Press date: 3 June 2020
e-pub ahead of print date: 12 June 2020

Identifiers

Local EPrints ID: 441718
URI: http://eprints.soton.ac.uk/id/eprint/441718
ISSN: 0007-0963
PURE UUID: 0dd65ddb-5ccb-4ff7-98ed-1ee34aaded9c
ORCID for Katy Sivyer: ORCID iD orcid.org/0000-0003-4349-0102
ORCID for Kate Greenwell: ORCID iD orcid.org/0000-0002-3662-1488
ORCID for Nick Francis: ORCID iD orcid.org/0000-0001-8939-7312
ORCID for Lucy Yardley: ORCID iD orcid.org/0000-0002-3853-883X
ORCID for Miriam Santer: ORCID iD orcid.org/0000-0001-7264-5260

Catalogue record

Date deposited: 24 Jun 2020 16:49
Last modified: 29 Jul 2020 01:53

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