Online paediatric chronic pain management: assessing the needs of UK adolescents, and parents, using a cross-sectional survey
Online paediatric chronic pain management: assessing the needs of UK adolescents, and parents, using a cross-sectional survey
Background: Adolescent chronic pain is prevalent, and interdisciplinary treatment is recommended. Although it is well known that technology is a key part of adolescents’ daily lives, there have not been any online, interdisciplinary interventions developed for adolescents with chronic pain in a UK healthcare context. Little is known about how adolescents currently use online resources to manage chronic pain, or what guidance they seek. Methods: Ninety-five participants from the community answered this mixed-methods, online survey (adolescent n = 54, parent n = 41), which assessed the needs of UK-based adolescents for a new online chronic pain management resource. Results: Findings indicated that, at the time of the survey, adolescents frequently used social media platforms, such as Instagram, for chronic pain management. Desired techniques for a new interdisciplinary resource for adolescents included ‘advice on explaining chronic pain to others’ (86.7% of adolescents) and sleep hygiene (82.2% of adolescents), though access to a range of pain management techniques was desired. Qualitative results indicated endorsement of a new programme by adolescents and parents. Conclusions: Adolescents and parents had a positive outlook towards the development of a UK-specific online resource to help manage chronic pain. Such an intervention should aim to be made accessible via the National Health Service. Adolescent use of social media platforms to seek support for chronic pain requires further exploration in future research.
Chronic pain, adolescent health, health psychology, online intervention, paediatric pain, persistent pain
312-325
Hurley-Wallace, Anna
7942e783-3a78-4fd2-8794-ac62ccf96d84
Schoth, Daniel
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Lilley, Suzanne
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Williams, Glyn
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Liossi, Christina
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21 July 2020
Hurley-Wallace, Anna
7942e783-3a78-4fd2-8794-ac62ccf96d84
Schoth, Daniel
73f3036e-b8cb-40b2-9466-e8e0f341fdd5
Lilley, Suzanne
c90a0140-d6a3-4274-9d47-b9d3efbe6fa5
Williams, Glyn
abdc5e32-4fed-4531-b25b-2d593176e72c
Liossi, Christina
fd401ad6-581a-4a31-a60b-f8671ffd3558
Hurley-Wallace, Anna, Schoth, Daniel, Lilley, Suzanne, Williams, Glyn and Liossi, Christina
(2020)
Online paediatric chronic pain management: assessing the needs of UK adolescents, and parents, using a cross-sectional survey.
British Journal of Pain, 15 (3), .
(doi:10.1177/2049463720940341).
Abstract
Background: Adolescent chronic pain is prevalent, and interdisciplinary treatment is recommended. Although it is well known that technology is a key part of adolescents’ daily lives, there have not been any online, interdisciplinary interventions developed for adolescents with chronic pain in a UK healthcare context. Little is known about how adolescents currently use online resources to manage chronic pain, or what guidance they seek. Methods: Ninety-five participants from the community answered this mixed-methods, online survey (adolescent n = 54, parent n = 41), which assessed the needs of UK-based adolescents for a new online chronic pain management resource. Results: Findings indicated that, at the time of the survey, adolescents frequently used social media platforms, such as Instagram, for chronic pain management. Desired techniques for a new interdisciplinary resource for adolescents included ‘advice on explaining chronic pain to others’ (86.7% of adolescents) and sleep hygiene (82.2% of adolescents), though access to a range of pain management techniques was desired. Qualitative results indicated endorsement of a new programme by adolescents and parents. Conclusions: Adolescents and parents had a positive outlook towards the development of a UK-specific online resource to help manage chronic pain. Such an intervention should aim to be made accessible via the National Health Service. Adolescent use of social media platforms to seek support for chronic pain requires further exploration in future research.
Text
Online paediatric chronic pain management REVISED 11-06-20 - Copy
- Accepted Manuscript
More information
Accepted/In Press date: 16 June 2020
e-pub ahead of print date: 21 July 2020
Published date: 21 July 2020
Additional Information:
Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship and/or publication of this article: This work was supported by funding from UoS, through a Jubilee PhD studentship to A.H.W.
Publisher Copyright:
© The British Pain Society 2020.
Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.
Keywords:
Chronic pain, adolescent health, health psychology, online intervention, paediatric pain, persistent pain
Identifiers
Local EPrints ID: 441728
URI: http://eprints.soton.ac.uk/id/eprint/441728
ISSN: 2049-4637
PURE UUID: 02920705-1295-4a10-a0c0-b46aa0ad24de
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Date deposited: 25 Jun 2020 16:37
Last modified: 10 Apr 2024 04:06
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Author:
Anna Hurley-Wallace
Author:
Suzanne Lilley
Author:
Glyn Williams
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