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Findings from a pilot randomised trial of a social network self-management intervention in COPD

Findings from a pilot randomised trial of a social network self-management intervention in COPD
Findings from a pilot randomised trial of a social network self-management intervention in COPD
Background
Self-Management Support (SMS), refers to the actions taken by individuals to recognise and manage their own health. It is increasingly recognised that individuals with chronic obstructive pulmonary disease (COPD) require additional support with their Self-management. Emerging evidence suggests that the use of a social network intervention can improve health outcomes and increase quality of life. In order to understand the potential benefits of SMS in COPD, the GENIE (Generating Engagement in Network Support) SMS tool was implemented and evaluated in a COPD primary care context. The GENIE intervention is a social networking tool that consists of 3 parts; a concentric circle modelling to map existing social networks; a questions sections to elicit preferences for activities; a map of selected resources is then produced, aligned with the user’s interests and suggestions for connections to existing network members and to new resources.

Methods
A pilot, parallel, single blind, block randomised controlled trial. Patients with COPD ranging from mild-very severe were recruited. Participants provided written consent and were then randomised to either the intervention or usual care. The primary aim was to understand the clinical benefit through the analysis of health status, symptom burden and quality of life. The secondary outcome measure was health utilisation. NHS cost differences were reported between groups using the GENIE intervention over usual care.

Results
The GENIE pilot results demonstrate maintenance in health status and clinical symptoms with a decrease in anxiety. An overall increase in quality of life was observed, these findings did not reach significance. A cost reduction was demonstrated in inpatient stay with no difference in primary care costs. Overall a cost reduction in NHS service utilisation was indicated in the intervention group.

Conclusion
This pilot study indicated that using a social network intervention can encourage the development of new social connections and extend existing support networks for COPD patients. Increasing network support in this population is of benefit to both patients and NHS providers in terms of cost reductions and enhancing wellbeing. This broadens the understanding of possible new approaches to SMS in community COPD patients, which could now be investigated in a larger population over a longer period.
Chronic Obstructive Pulmonary Disease (COPD), Self-management support, Social intervention
1471-2466
Welch, Lindsay
2884956f-21b6-47e7-8321-1409f5346cac
Orlando, Rosanna
cc20c869-ca7f-4518-ad2d-0fa56caa3c86
Lin, Sharon X.
76a1c30c-372c-4b20-b032-fdabcf8de248
Vassilev, Ivaylo
d76a5531-4ddc-4eb2-909b-a2a1068f05f3
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7
Welch, Lindsay
2884956f-21b6-47e7-8321-1409f5346cac
Orlando, Rosanna
cc20c869-ca7f-4518-ad2d-0fa56caa3c86
Lin, Sharon X.
76a1c30c-372c-4b20-b032-fdabcf8de248
Vassilev, Ivaylo
d76a5531-4ddc-4eb2-909b-a2a1068f05f3
Rogers, Anne
105eeebc-1899-4850-950e-385a51738eb7

Welch, Lindsay, Orlando, Rosanna, Lin, Sharon X., Vassilev, Ivaylo and Rogers, Anne (2020) Findings from a pilot randomised trial of a social network self-management intervention in COPD. BMC Pulmonary Medicine, 20 (1), [162]. (doi:10.1186/s12890-020-1130-1).

Record type: Article

Abstract

Background
Self-Management Support (SMS), refers to the actions taken by individuals to recognise and manage their own health. It is increasingly recognised that individuals with chronic obstructive pulmonary disease (COPD) require additional support with their Self-management. Emerging evidence suggests that the use of a social network intervention can improve health outcomes and increase quality of life. In order to understand the potential benefits of SMS in COPD, the GENIE (Generating Engagement in Network Support) SMS tool was implemented and evaluated in a COPD primary care context. The GENIE intervention is a social networking tool that consists of 3 parts; a concentric circle modelling to map existing social networks; a questions sections to elicit preferences for activities; a map of selected resources is then produced, aligned with the user’s interests and suggestions for connections to existing network members and to new resources.

Methods
A pilot, parallel, single blind, block randomised controlled trial. Patients with COPD ranging from mild-very severe were recruited. Participants provided written consent and were then randomised to either the intervention or usual care. The primary aim was to understand the clinical benefit through the analysis of health status, symptom burden and quality of life. The secondary outcome measure was health utilisation. NHS cost differences were reported between groups using the GENIE intervention over usual care.

Results
The GENIE pilot results demonstrate maintenance in health status and clinical symptoms with a decrease in anxiety. An overall increase in quality of life was observed, these findings did not reach significance. A cost reduction was demonstrated in inpatient stay with no difference in primary care costs. Overall a cost reduction in NHS service utilisation was indicated in the intervention group.

Conclusion
This pilot study indicated that using a social network intervention can encourage the development of new social connections and extend existing support networks for COPD patients. Increasing network support in this population is of benefit to both patients and NHS providers in terms of cost reductions and enhancing wellbeing. This broadens the understanding of possible new approaches to SMS in community COPD patients, which could now be investigated in a larger population over a longer period.

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More information

Accepted/In Press date: 2 April 2020
e-pub ahead of print date: 8 June 2020
Published date: 8 June 2020
Keywords: Chronic Obstructive Pulmonary Disease (COPD), Self-management support, Social intervention

Identifiers

Local EPrints ID: 441775
URI: http://eprints.soton.ac.uk/id/eprint/441775
ISSN: 1471-2466
PURE UUID: d06af851-1353-4d85-aea4-06e53b603155
ORCID for Lindsay Welch: ORCID iD orcid.org/0000-0001-5564-2252
ORCID for Rosanna Orlando: ORCID iD orcid.org/0000-0002-7097-5431
ORCID for Ivaylo Vassilev: ORCID iD orcid.org/0000-0002-2206-8247

Catalogue record

Date deposited: 26 Jun 2020 16:41
Last modified: 28 Apr 2022 02:31

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Contributors

Author: Lindsay Welch ORCID iD
Author: Rosanna Orlando ORCID iD
Author: Sharon X. Lin
Author: Ivaylo Vassilev ORCID iD
Author: Anne Rogers

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