The University of Southampton
University of Southampton Institutional Repository
Warning ePrints Soton is experiencing an issue with some file downloads not being available. We are working hard to fix this. Please bear with us.

Psychosocial needs of adolescents and young adults with eczema: a secondary analysis of qualitative data to inform a behaviour change intervention

Psychosocial needs of adolescents and young adults with eczema: a secondary analysis of qualitative data to inform a behaviour change intervention
Psychosocial needs of adolescents and young adults with eczema: a secondary analysis of qualitative data to inform a behaviour change intervention
Objectives
This study aimed to explore adolescents and young adults’ experiences of symptoms related to their eczema in order to determine their psychosocial needs.

Design
A secondary qualitative analysis of two data sources collected through semi‐structured interviews for two different projects, SKINS project and Eczema Care Online project.

Methods
In total, there were 28 transcripts with adolescents and young adults with eczema having a mean age of 19.5 years available to analyse. Interview data were collected from face‐to‐face interviews that were recorded and transcribed. Inductive thematic analysis explored data about symptoms and organized according to psychosocial needs.

Results
Adolescents and young adults with eczema experience both visible symptoms (such as flaky, dry, and inflamed skin) and invisible symptoms (such as itch, pain, exhaustion, and mental distress) that elicit different psychosocial needs. These psychosocial needs are to (i) be understood; (ii) be perceived as normal; and (iii) receive emotional support. Interviewees described a struggle between wanting their peers and family to understand but take their eczema seriously whilst not wanting to stand out and instead to be perceived as ‘normal’, which they would define as being perceived as other adolescents. This has implications on behaviours, such as seeking support, avoiding going out, hiding their skin, as well as emotional implications, such as social isolation and feeling anxious and low.

Conclusions
Having a better understanding of young people’s experiences and psychosocial needs will provide a framework on how best to support adolescents and young adults when managing symptoms related to eczema.
adolescents and young adults, eczema, psychosocial needs, qualitative, symptom management
1359-107X
Ghio, Daniela
68e87380-d790-4f20-b24d-d3ac0ca5765d
Greenwell, Kate
4bac64bd-059f-4d7d-90d3-5c0bccb7ffb2
Muller, Ingrid
2569bf42-51bd-40da-bbfd-dd4dbbd62cad
Roberts, Amanda
f5809cd3-5555-41b9-8a04-7ab12849efe5
McNiven, Abigail
1260bf26-d82d-4e04-9a73-835be4e84536
Santer, Miriam
3ce7e832-31eb-4d27-9876-3a1cd7f381dc
Ghio, Daniela
68e87380-d790-4f20-b24d-d3ac0ca5765d
Greenwell, Kate
4bac64bd-059f-4d7d-90d3-5c0bccb7ffb2
Muller, Ingrid
2569bf42-51bd-40da-bbfd-dd4dbbd62cad
Roberts, Amanda
f5809cd3-5555-41b9-8a04-7ab12849efe5
McNiven, Abigail
1260bf26-d82d-4e04-9a73-835be4e84536
Santer, Miriam
3ce7e832-31eb-4d27-9876-3a1cd7f381dc

Ghio, Daniela, Greenwell, Kate, Muller, Ingrid, Roberts, Amanda, McNiven, Abigail and Santer, Miriam (2020) Psychosocial needs of adolescents and young adults with eczema: a secondary analysis of qualitative data to inform a behaviour change intervention. British Journal of Health Psychology. (doi:10.1111/bjhp.12467).

Record type: Article

Abstract

Objectives
This study aimed to explore adolescents and young adults’ experiences of symptoms related to their eczema in order to determine their psychosocial needs.

Design
A secondary qualitative analysis of two data sources collected through semi‐structured interviews for two different projects, SKINS project and Eczema Care Online project.

Methods
In total, there were 28 transcripts with adolescents and young adults with eczema having a mean age of 19.5 years available to analyse. Interview data were collected from face‐to‐face interviews that were recorded and transcribed. Inductive thematic analysis explored data about symptoms and organized according to psychosocial needs.

Results
Adolescents and young adults with eczema experience both visible symptoms (such as flaky, dry, and inflamed skin) and invisible symptoms (such as itch, pain, exhaustion, and mental distress) that elicit different psychosocial needs. These psychosocial needs are to (i) be understood; (ii) be perceived as normal; and (iii) receive emotional support. Interviewees described a struggle between wanting their peers and family to understand but take their eczema seriously whilst not wanting to stand out and instead to be perceived as ‘normal’, which they would define as being perceived as other adolescents. This has implications on behaviours, such as seeking support, avoiding going out, hiding their skin, as well as emotional implications, such as social isolation and feeling anxious and low.

Conclusions
Having a better understanding of young people’s experiences and psychosocial needs will provide a framework on how best to support adolescents and young adults when managing symptoms related to eczema.

Text
bjhp.12467 - Version of Record
Available under License Creative Commons Attribution.
Download (367kB)

More information

Accepted/In Press date: 27 July 2020
e-pub ahead of print date: 26 August 2020
Additional Information: Funding Sources: This publication presents independent research funded by the National Institute for Health Research (NIHR) Programme Grants for Applied Research (RP-PG-0216-20007). Data collection for Healthtalk.org was funded by National Institute for Health Research under its Research for Patient Benefit scheme (PB-PG-0213-30006). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care.
Keywords: adolescents and young adults, eczema, psychosocial needs, qualitative, symptom management

Identifiers

Local EPrints ID: 443444
URI: http://eprints.soton.ac.uk/id/eprint/443444
ISSN: 1359-107X
PURE UUID: 3d59858e-80dc-44b0-9c64-261fc6956fd4
ORCID for Kate Greenwell: ORCID iD orcid.org/0000-0002-3662-1488
ORCID for Ingrid Muller: ORCID iD orcid.org/0000-0001-9341-6133
ORCID for Miriam Santer: ORCID iD orcid.org/0000-0001-7264-5260

Catalogue record

Date deposited: 26 Aug 2020 16:31
Last modified: 09 Jan 2022 03:56

Export record

Altmetrics

Contributors

Author: Daniela Ghio
Author: Kate Greenwell ORCID iD
Author: Ingrid Muller ORCID iD
Author: Amanda Roberts
Author: Abigail McNiven
Author: Miriam Santer ORCID iD

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×