International transfers of personal data for health research following Schrems II: a problem in need of a solution
International transfers of personal data for health research following Schrems II: a problem in need of a solution
On 16 July 2020, the Court of Justice of the European Union issued their decision in the Schrems II case concerning Facebook’s transfers of personal data from the EU to the US. The decision may have significant effects on the legitimate transfer of personal data for health research purposes from the EU. This article aims: (i) to outline the consequences of the Schrems II decision for the sharing of personal data for health research between the EU and third countries, particularly in the context of the COVID-19 pandemic; and, (ii) to consider certain options available to address the consequences of the decision and to facilitate international data exchange for health research moving forward.
1502-1509
Hallinan, Dara
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Bernier, Alexander
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Cambon-Thomsen, Anne
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Crawley, Francis
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Dimitrova, Diana
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Bauzer Medeiros, Claudia
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Nilsonne, Gustav
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Parker, Simon
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Pickering, Brian
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Rennes, Stéphanie
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October 2021
Hallinan, Dara
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Bernier, Alexander
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Cambon-Thomsen, Anne
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Crawley, Francis
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Dimitrova, Diana
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Bauzer Medeiros, Claudia
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Nilsonne, Gustav
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Parker, Simon
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Pickering, Brian
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Rennes, Stéphanie
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Hallinan, Dara, Bernier, Alexander, Cambon-Thomsen, Anne, Crawley, Francis, Dimitrova, Diana, Bauzer Medeiros, Claudia, Nilsonne, Gustav, Parker, Simon, Pickering, Brian and Rennes, Stéphanie
(2021)
International transfers of personal data for health research following Schrems II: a problem in need of a solution.
European Journal of Human Genetics, 29 (10), .
(doi:10.1038/s41431-021-00893-y).
Abstract
On 16 July 2020, the Court of Justice of the European Union issued their decision in the Schrems II case concerning Facebook’s transfers of personal data from the EU to the US. The decision may have significant effects on the legitimate transfer of personal data for health research purposes from the EU. This article aims: (i) to outline the consequences of the Schrems II decision for the sharing of personal data for health research between the EU and third countries, particularly in the context of the COVID-19 pandemic; and, (ii) to consider certain options available to address the consequences of the decision and to facilitate international data exchange for health research moving forward.
Text
s41431-021-00893-y
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Submitted date: 2020
Accepted/In Press date: 6 April 2021
e-pub ahead of print date: 6 May 2021
Published date: October 2021
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Funding Information:
Funding This work has partly been produced by AB with the support of the following grants. EUCANCan: ‘EUCANCan: a federated network of aligned and interoperable infrastructures for the homogeneous analysis, management and sharing of genomic oncology data for Personalized Medicine’ CIHR 160202/Eur. Comm. (2019-2023). EuCanSHare: ‘EuCanSHare: An EU-Canada joint infrastructure for next-generation multi Study Heart research’ FRSQ 278114/CIHR 16033/Eur. Comm. (2018-2024). Canada Foundation for Innovation Cyberinfrastructure Initiative, the Ontario Research Fund, BC Knowledge Development Fund and the Ministère de l'Économie, de la Science et l’Innovation for ‘The Cancer Genome Collaboratory’ project. This work has partly been produced by AC-T with the support of the RDA Europe Ambassador programme. It has received funding from the European Union’s Horizon 2020 (H2020) research and innovation programme via the RDA EU 4.0 project (ref. GA no. 777388). This work has partly been produced by CBM whose work was partially supported by the following grants. FAPESP Research Innovation and Dissemination Centre CNPq 305110/2016-0 and 428459/2018-8. Open Access funding enabled and organized by Projekt DEAL.
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© 2021, The Author(s).
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Local EPrints ID: 443772
URI: http://eprints.soton.ac.uk/id/eprint/443772
ISSN: 1018-4813
PURE UUID: 01c5ebfe-06eb-4b2e-981e-bc29deb3b01b
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Date deposited: 11 Sep 2020 16:30
Last modified: 17 Mar 2024 03:23
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Contributors
Author:
Dara Hallinan
Author:
Alexander Bernier
Author:
Anne Cambon-Thomsen
Author:
Francis Crawley
Author:
Diana Dimitrova
Author:
Claudia Bauzer Medeiros
Author:
Gustav Nilsonne
Author:
Simon Parker
Author:
Stéphanie Rennes
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