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Psychosocial adjustment to illness scale in family caregivers of patients with Parkinson’s Disease: Spanish validation study

Psychosocial adjustment to illness scale in family caregivers of patients with Parkinson’s Disease: Spanish validation study
Psychosocial adjustment to illness scale in family caregivers of patients with Parkinson’s Disease: Spanish validation study
Psychosocial adjustment to a complex and disabling long‐term condition like Parkinson´s disease is a complex, dynamic, cyclical and interactive process. Family caregivers, face multiple challenges that require a significant effort in terms of psychosocial adjustment, which must be considered by healthcare professionals in order to provide a holistic care. The patients’ self‐report version of the Psychosocial Adjustment to Illness Scale (PAIS‐SR), which has been validated in Spain for use in Parkinson's disease, is designed to evaluate the psychosocial adjustment of patients. Our purpose was to validate the Spanish PAIS‐SR version for caregivers of patients with Parkinson's disease. An open, national cross‐sectional study with one point‐in‐time evaluation and retest was carried out in 450 family caregivers of patients with Parkinson's disease. Data were collected in Spain from April 2016 to September 2017. The psychometric analysis performed showed that the Spanish version of the PAIS‐SR for caregivers presents adequate indicators of reliability, internal and external validity, and is structured according to the seven‐domain model proposed by the author of the instrument.
PAIS-SR, Parkinson's disease, family caregivers, psychometric properties, psychosocial adjustment, validation study
0966-0410
Ambrosio, Leire
a968da8b-afdb-4ed5-bcf2-7742110a048d
Navarta‐sánchez, Mª Victoria
5d227f61-ce12-4718-978d-fcdfebc02013
Portillo, Mª Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Martin‐lanas, Raquel
b9c4aee0-c3ff-472d-8e0b-ffd8773a2dd7
Recio, Miriam
63208cf1-b07e-462c-8d4e-af574cc97893
Riverol, Mario
5d901d0b-90aa-4b57-8ddd-d0d842ece8a4
Ambrosio, Leire
a968da8b-afdb-4ed5-bcf2-7742110a048d
Navarta‐sánchez, Mª Victoria
5d227f61-ce12-4718-978d-fcdfebc02013
Portillo, Mª Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Martin‐lanas, Raquel
b9c4aee0-c3ff-472d-8e0b-ffd8773a2dd7
Recio, Miriam
63208cf1-b07e-462c-8d4e-af574cc97893
Riverol, Mario
5d901d0b-90aa-4b57-8ddd-d0d842ece8a4

Ambrosio, Leire, Navarta‐sánchez, Mª Victoria, Portillo, Mª Carmen, Martin‐lanas, Raquel, Recio, Miriam and Riverol, Mario (2020) Psychosocial adjustment to illness scale in family caregivers of patients with Parkinson’s Disease: Spanish validation study. Health & Social Care in the Community. (doi:10.1111/hsc.13137).

Record type: Article

Abstract

Psychosocial adjustment to a complex and disabling long‐term condition like Parkinson´s disease is a complex, dynamic, cyclical and interactive process. Family caregivers, face multiple challenges that require a significant effort in terms of psychosocial adjustment, which must be considered by healthcare professionals in order to provide a holistic care. The patients’ self‐report version of the Psychosocial Adjustment to Illness Scale (PAIS‐SR), which has been validated in Spain for use in Parkinson's disease, is designed to evaluate the psychosocial adjustment of patients. Our purpose was to validate the Spanish PAIS‐SR version for caregivers of patients with Parkinson's disease. An open, national cross‐sectional study with one point‐in‐time evaluation and retest was carried out in 450 family caregivers of patients with Parkinson's disease. Data were collected in Spain from April 2016 to September 2017. The psychometric analysis performed showed that the Spanish version of the PAIS‐SR for caregivers presents adequate indicators of reliability, internal and external validity, and is structured according to the seven‐domain model proposed by the author of the instrument.

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Psychosocial Adjustment to Illness Scale in family caregivers of patients with Parkinson Disease Spanish validation study - Accepted Manuscript
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More information

Accepted/In Press date: 21 July 2020
e-pub ahead of print date: 11 August 2020
Published date: 11 August 2020
Keywords: PAIS-SR, Parkinson's disease, family caregivers, psychometric properties, psychosocial adjustment, validation study

Identifiers

Local EPrints ID: 443836
URI: http://eprints.soton.ac.uk/id/eprint/443836
ISSN: 0966-0410
PURE UUID: 82ef1634-8fc4-45f3-97e4-407400524422
ORCID for Mª Carmen Portillo: ORCID iD orcid.org/0000-0003-1583-6612

Catalogue record

Date deposited: 14 Sep 2020 16:36
Last modified: 23 Jul 2022 04:57

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Contributors

Author: Leire Ambrosio
Author: Mª Victoria Navarta‐sánchez
Author: Raquel Martin‐lanas
Author: Miriam Recio
Author: Mario Riverol

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