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How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study

How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study
Aims
Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self‐care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives.

Methods and results
We used a sequential exploratory mixed‐methods design to investigate the interaction between symptoms and BoT in CHF patients.

Conclusions
If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self‐care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience.
Burden of treatment, Chronic heart failure, Mixed methods, Self-care, Study design, Symptom burden
4472-4477
Austin, Rosalynn C.
4bc7fd45-753b-4a78-a9d7-85fce9280c93
Schoonhoven, Lisette
46a2705b-c657-409b-b9da-329d5b1b02de
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Kalra, Paul R.
7a4ef3d4-0168-4e03-83c4-4769c62805f4
May, Carl R.
17697f8d-98f6-40d3-9cc0-022f04009ae4
Austin, Rosalynn C.
4bc7fd45-753b-4a78-a9d7-85fce9280c93
Schoonhoven, Lisette
46a2705b-c657-409b-b9da-329d5b1b02de
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Kalra, Paul R.
7a4ef3d4-0168-4e03-83c4-4769c62805f4
May, Carl R.
17697f8d-98f6-40d3-9cc0-022f04009ae4

Austin, Rosalynn C., Schoonhoven, Lisette, Richardson, Alison, Kalra, Paul R. and May, Carl R. (2020) How do SYMPtoms and management tasks in chronic heart failure imPACT a person's life (SYMPACT)? Protocol for a mixed‐methods study. ESC Heart Failure, 7 (6), 4472-4477. (doi:10.1002/ehf2.13010).

Record type: Article

Abstract

Aims
Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self‐care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives.

Methods and results
We used a sequential exploratory mixed‐methods design to investigate the interaction between symptoms and BoT in CHF patients.

Conclusions
If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self‐care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience.

Text
How SYMptoms and management tasks in chronic heart failure imPACT on a person’s life (SYMPACT) Protocol for a Mixed Methods Study - Accepted Manuscript
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More information

Accepted/In Press date: 27 August 2020
e-pub ahead of print date: 17 September 2020
Published date: December 2020
Additional Information: Funding Information: This work was completed as a part of a fully funded Clinical Academic Doctoral Fellowship at the University of Southampton, Portsmouth Hospitals University NHS Trust, and the National Institute for Health Research (NIHR) Applied Research Collaboration (ARC) Wessex. This article is independent research funded in part by the NIHR ARC Wessex. The views expressed in this publication are those of the author(s) and not necessarily those of the National Institute for Health Research, NHS or the Department of Health and Social Care. Publisher Copyright: © 2020 The Authors. ESC Heart Failure published by John Wiley & Sons Ltd on behalf of the European Society of Cardiology
Keywords: Burden of treatment, Chronic heart failure, Mixed methods, Self-care, Study design, Symptom burden

Identifiers

Local EPrints ID: 444295
URI: http://eprints.soton.ac.uk/id/eprint/444295
PURE UUID: ede49f3c-d786-453a-991c-94247254056e
ORCID for Rosalynn C. Austin: ORCID iD orcid.org/0000-0001-8274-4836
ORCID for Lisette Schoonhoven: ORCID iD orcid.org/0000-0002-7129-3766
ORCID for Alison Richardson: ORCID iD orcid.org/0000-0003-3127-5755
ORCID for Carl R. May: ORCID iD orcid.org/0000-0002-0451-2690

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Date deposited: 09 Oct 2020 16:34
Last modified: 26 Nov 2022 02:52

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Contributors

Author: Rosalynn C. Austin ORCID iD
Author: Paul R. Kalra
Author: Carl R. May ORCID iD

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