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How SYMptoms and management tasks in chronic heart failure imPACT on a person’s life (SYMPACT)? Protocol for a Mixed Methods Study

How SYMptoms and management tasks in chronic heart failure imPACT on a person’s life (SYMPACT)? Protocol for a Mixed Methods Study
How SYMptoms and management tasks in chronic heart failure imPACT on a person’s life (SYMPACT)? Protocol for a Mixed Methods Study

Aims

Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self‐care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives.
Methods and results

We used a sequential exploratory mixed‐methods design to investigate the interaction between symptoms and BoT in CHF patients.
Conclusions

If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self‐care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience.
Burden of treatment, Chronic heart failure, Mixed methods, Self-care, Study design, Symptom burden
4472-4477
Austin, Rosalynn Clara
4bc7fd45-753b-4a78-a9d7-85fce9280c93
Schoonhoven, Lisette
46a2705b-c657-409b-b9da-329d5b1b02de
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Kalra, Paul R.
7a4ef3d4-0168-4e03-83c4-4769c62805f4
May, Carl
17697f8d-98f6-40d3-9cc0-022f04009ae4
Austin, Rosalynn Clara
4bc7fd45-753b-4a78-a9d7-85fce9280c93
Schoonhoven, Lisette
46a2705b-c657-409b-b9da-329d5b1b02de
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
Kalra, Paul R.
7a4ef3d4-0168-4e03-83c4-4769c62805f4
May, Carl
17697f8d-98f6-40d3-9cc0-022f04009ae4

Austin, Rosalynn Clara, Schoonhoven, Lisette, Richardson, Alison, Kalra, Paul R. and May, Carl (2020) How SYMptoms and management tasks in chronic heart failure imPACT on a person’s life (SYMPACT)? Protocol for a Mixed Methods Study. ESC Heart Failure, 7 (6), 4472-4477. (doi:10.1002/ehf2.13010).

Record type: Article

Abstract


Aims

Patients with chronic heart failure (CHF) struggle to follow self‐care plans, which may lead to worsening illness and poor quality of life. Burden of treatment (BoT) describes this workload and its impact on patients' lives. Suggesting the balance between a patient's treatment workload and their capability to manage it is crucial. If BoT is reduced, self‐care engagement and quality of life may improve. This article describes the SYMPACT study design and methods used to explore how symptoms and management tasks impact CHF patients' lives.
Methods and results

We used a sequential exploratory mixed‐methods design to investigate the interaction between symptoms and BoT in CHF patients.
Conclusions

If symptoms and BoT are intrinsically linked, then the high level of symptoms experienced by CHF patients may lead to increased treatment burden, which likely decreases patients' engagement with self‐care plans. SYMPACT may identify modifiable factors to improve CHF patients' experience.

Text
How SYMptoms and management tasks in chronic heart failure imPACT on a person’s life (SYMPACT) Protocol for a Mixed Methods Study - Accepted Manuscript
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More information

Accepted/In Press date: 28 August 2020
e-pub ahead of print date: 17 September 2020
Keywords: Burden of treatment, Chronic heart failure, Mixed methods, Self-care, Study design, Symptom burden

Identifiers

Local EPrints ID: 444295
URI: http://eprints.soton.ac.uk/id/eprint/444295
PURE UUID: ede49f3c-d786-453a-991c-94247254056e
ORCID for Rosalynn Clara Austin: ORCID iD orcid.org/0000-0001-8274-4836
ORCID for Lisette Schoonhoven: ORCID iD orcid.org/0000-0002-7129-3766
ORCID for Alison Richardson: ORCID iD orcid.org/0000-0003-3127-5755
ORCID for Carl May: ORCID iD orcid.org/0000-0002-0451-2690

Catalogue record

Date deposited: 09 Oct 2020 16:34
Last modified: 28 Apr 2022 02:18

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Contributors

Author: Rosalynn Clara Austin ORCID iD
Author: Paul R. Kalra
Author: Carl May ORCID iD

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