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Current transition management of adolescents and young adults with allergy and asthma: a European survey

Current transition management of adolescents and young adults with allergy and asthma: a European survey
Current transition management of adolescents and young adults with allergy and asthma: a European survey

Background: Transition from parent-delivered to self-management is a vulnerable time for adolescents and young adults (AYA) with allergy and asthma. There is currently no European guideline available for healthcare professionals (HCPs) on transition of these patients and local/national protocols are also mostly lacking.

Methods: European HCPs working with AYA with allergy and asthma were invited to complete an online survey assessing challenges of working with these patients, current transition practices and access to specific healthcare resources.

Results: A total of 1179 responses from 41 European countries were collected. Most HCPs (86%) reported a lack of a transition guideline and a lack of a transition process (20% paediatric HCPs, 50% of adult HCPs, 56% HCP seeing all ages). Nearly half (48%) acknowledged a lack of an established feedback system between paediatric and adult medical services. Many respondents never routinely asked about mental health issues such as self-harm or depression and are not confident in asking about self-harm (66.6%), sexuality (64%) and depression (43.6%). The majority of HCPs (76%) had not received specific training in the care of AYA although 87% agreed that transition was important for AYA with allergy and asthma.

Conclusion: Although there was agreement that transition is important for AYA with allergy and asthma, there are crucial limitations and variations in the current provision of transition services across Europe. Standardisation of AYA management and specific training are required. This should improve management and continuity of care during adolescence and into adulthood to achieve the best healthcare outcomes.

Adolescent, Allergy, Healthcare professional, Transition, Young adult
2045-7022
Khaleva, Ekaterina
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Vazquez-Ortiz, Marta
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Comberiati, Pasquale
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DunnGalvin, Audrey
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Pite, Helena
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Blumchen, Katharina
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Garriga-Baraut, Teresa
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Hox, Valerie
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Santos, Alexandra F
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Gore, Claudia
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Knibb, Rebecca C
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Alviani, Cherry
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Mortz, Charlotte G
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Angier, Elizabeth
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Duca, Bettina
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Jensen, Britt
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Sanchez-Garcia, Silvia
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Gowland, M Hazel
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Timmermans, Frans
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Pfaar, Oliver
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Roberts, Graham
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Khaleva, Ekaterina
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Vazquez-Ortiz, Marta
890eb8f6-2903-44dd-b494-36af021f7708
Comberiati, Pasquale
753e1130-8357-4921-ab16-604a73976555
DunnGalvin, Audrey
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Pite, Helena
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Blumchen, Katharina
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Garriga-Baraut, Teresa
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Hox, Valerie
c0ace48c-85f8-4a18-a1b7-c3c40b7f5ec0
Santos, Alexandra F
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Gore, Claudia
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Knibb, Rebecca C
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Alviani, Cherry
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Mortz, Charlotte G
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Angier, Elizabeth
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Duca, Bettina
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Jensen, Britt
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Sanchez-Garcia, Silvia
636b5e5c-c19f-401e-a637-a4e5882a5c6a
Gowland, M Hazel
72a62d3c-fe49-4b92-9776-ff235a7c5db3
Timmermans, Frans
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Pfaar, Oliver
4f28a125-c84f-4a5f-9112-1e8b62e4365e
Roberts, Graham
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Khaleva, Ekaterina, Vazquez-Ortiz, Marta, Comberiati, Pasquale, DunnGalvin, Audrey, Pite, Helena, Blumchen, Katharina, Garriga-Baraut, Teresa, Hox, Valerie, Santos, Alexandra F, Gore, Claudia, Knibb, Rebecca C, Alviani, Cherry, Mortz, Charlotte G, Angier, Elizabeth, Duca, Bettina, Jensen, Britt, Sanchez-Garcia, Silvia, Gowland, M Hazel, Timmermans, Frans, Pfaar, Oliver and Roberts, Graham (2020) Current transition management of adolescents and young adults with allergy and asthma: a European survey. Clinical and Translational Allergy, 10 (1), [40]. (doi:10.1186/s13601-020-00340-z).

Record type: Review

Abstract

Background: Transition from parent-delivered to self-management is a vulnerable time for adolescents and young adults (AYA) with allergy and asthma. There is currently no European guideline available for healthcare professionals (HCPs) on transition of these patients and local/national protocols are also mostly lacking.

Methods: European HCPs working with AYA with allergy and asthma were invited to complete an online survey assessing challenges of working with these patients, current transition practices and access to specific healthcare resources.

Results: A total of 1179 responses from 41 European countries were collected. Most HCPs (86%) reported a lack of a transition guideline and a lack of a transition process (20% paediatric HCPs, 50% of adult HCPs, 56% HCP seeing all ages). Nearly half (48%) acknowledged a lack of an established feedback system between paediatric and adult medical services. Many respondents never routinely asked about mental health issues such as self-harm or depression and are not confident in asking about self-harm (66.6%), sexuality (64%) and depression (43.6%). The majority of HCPs (76%) had not received specific training in the care of AYA although 87% agreed that transition was important for AYA with allergy and asthma.

Conclusion: Although there was agreement that transition is important for AYA with allergy and asthma, there are crucial limitations and variations in the current provision of transition services across Europe. Standardisation of AYA management and specific training are required. This should improve management and continuity of care during adolescence and into adulthood to achieve the best healthcare outcomes.

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s13601-020-00340-z - Version of Record
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Accepted/In Press date: 30 May 2020
e-pub ahead of print date: 7 October 2020
Additional Information: © The Author(s) 2020.
Keywords: Adolescent, Allergy, Healthcare professional, Transition, Young adult

Identifiers

Local EPrints ID: 444645
URI: http://eprints.soton.ac.uk/id/eprint/444645
ISSN: 2045-7022
PURE UUID: d4a40a00-1c9f-401d-b8de-c7e9a40f72d6
ORCID for Graham Roberts: ORCID iD orcid.org/0000-0003-2252-1248

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Date deposited: 28 Oct 2020 17:31
Last modified: 15 Apr 2021 01:40

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Contributors

Author: Ekaterina Khaleva
Author: Marta Vazquez-Ortiz
Author: Pasquale Comberiati
Author: Audrey DunnGalvin
Author: Helena Pite
Author: Katharina Blumchen
Author: Teresa Garriga-Baraut
Author: Valerie Hox
Author: Alexandra F Santos
Author: Claudia Gore
Author: Rebecca C Knibb
Author: Cherry Alviani
Author: Charlotte G Mortz
Author: Elizabeth Angier
Author: Bettina Duca
Author: Britt Jensen
Author: Silvia Sanchez-Garcia
Author: M Hazel Gowland
Author: Frans Timmermans
Author: Oliver Pfaar
Author: Graham Roberts ORCID iD

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