A blueprint for a social data foundation: Accelerating trustworthy and collaborative data sharing for health and social care transformation
A blueprint for a social data foundation: Accelerating trustworthy and collaborative data sharing for health and social care transformation
  This report provides a vision to improve public health and patient care through responsible data access, collaboration and (re-)usage across academia, the public sector and industry by removing barriers and accelerating existing processes whilst maintaining the highest standards for data governance and security. At the centre of this aspiration lies the establishment of a Social Data Foundation (“the Data Foundation”) – an innovative trustworthy and scalable data-driven health and social care ecosystem overseen by independent data stewards – created to support multi-party data sharing whilst respecting societal values endorsed by the community
  
  
  
    University of Southampton
   
  
    
      Boniface, Michael
      
        f30bfd7d-20ed-451b-b405-34e3e22fdfba
      
     
  
    
      Carmichael, Laura
      
        3f71fb73-581b-43c3-a261-a6627994c96e
      
     
  
    
      Hall, Wendy
      
        11f7f8db-854c-4481-b1ae-721a51d8790c
      
     
  
    
      Pickering, Brian
      
        225088d0-729e-4f17-afe2-1ad1193ccae6
      
     
  
    
      Stalla-Bourdillon, Sophie
      
        c189651b-9ed3-49f6-bf37-25a47c487164
      
     
  
    
      Taylor, Steve
      
        9ee68548-2096-4d91-a122-bbde65f91efb
      
     
  
  
   
  
  
    
      19 November 2020
    
    
  
  
    
      Boniface, Michael
      
        f30bfd7d-20ed-451b-b405-34e3e22fdfba
      
     
  
    
      Carmichael, Laura
      
        3f71fb73-581b-43c3-a261-a6627994c96e
      
     
  
    
      Hall, Wendy
      
        11f7f8db-854c-4481-b1ae-721a51d8790c
      
     
  
    
      Pickering, Brian
      
        225088d0-729e-4f17-afe2-1ad1193ccae6
      
     
  
    
      Stalla-Bourdillon, Sophie
      
        c189651b-9ed3-49f6-bf37-25a47c487164
      
     
  
    
      Taylor, Steve
      
        9ee68548-2096-4d91-a122-bbde65f91efb
      
     
  
       
    
 
  
    
      
  
  
  
  
  
  
    Boniface, Michael, Carmichael, Laura, Hall, Wendy, Pickering, Brian, Stalla-Bourdillon, Sophie and Taylor, Steve
  
  
  
  
   
    (2020)
  
  
    
    A blueprint for a social data foundation: Accelerating trustworthy and collaborative data sharing for health and social care transformation
  
  
  
    (Web Science Institute White Papers, 4)
  
  
  
  
    
      
        
   
  
    Southampton.
   
        
      
    
  
  University of Southampton 
  46pp.
  (doi:10.5258/SOTON/WSI-WP004).
  
  
  
  
   
  
    
      Record type:
      Monograph
      
      (Project Report)
      
    
   
    
    
      
        
          Abstract
          This report provides a vision to improve public health and patient care through responsible data access, collaboration and (re-)usage across academia, the public sector and industry by removing barriers and accelerating existing processes whilst maintaining the highest standards for data governance and security. At the centre of this aspiration lies the establishment of a Social Data Foundation (“the Data Foundation”) – an innovative trustworthy and scalable data-driven health and social care ecosystem overseen by independent data stewards – created to support multi-party data sharing whilst respecting societal values endorsed by the community
         
      
      
        
          
            
  
    Text
 WSI white paper 4 social data foundations
    
   
  
  
    
  
 
          
            
          
            
           
            
           
        
        
       
    
   
  
  
  More information
  
    
      Published date: 19 November 2020
 
    
  
  
    
  
    
  
    
  
    
  
    
     
    
  
    
  
    
  
    
  
  
        Identifiers
        Local EPrints ID: 445371
        URI: http://eprints.soton.ac.uk/id/eprint/445371
        
          
        
        
        
        
          PURE UUID: 01a0f835-f746-4c4b-8b36-b591fd628050
        
  
    
        
          
            
              
            
          
        
    
        
          
            
              
            
          
        
    
        
          
            
              
            
          
        
    
        
          
            
              
            
          
        
    
        
          
            
              
            
          
        
    
        
          
            
              
            
          
        
    
  
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  Date deposited: 04 Dec 2020 17:31
  Last modified: 03 Apr 2025 01:48
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