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A blueprint for a social data foundation: Accelerating trustworthy and collaborative data sharing for health and social care transformation

A blueprint for a social data foundation: Accelerating trustworthy and collaborative data sharing for health and social care transformation
A blueprint for a social data foundation: Accelerating trustworthy and collaborative data sharing for health and social care transformation
This report provides a vision to improve public health and patient care through responsible data access, collaboration and (re-)usage across academia, the public sector and industry by removing barriers and accelerating existing processes whilst maintaining the highest standards for data governance and security. At the centre of this aspiration lies the establishment of a Social Data Foundation (“the Data Foundation”) – an innovative trustworthy and scalable data-driven health and social care ecosystem overseen by independent data stewards – created to support multi-party data sharing whilst respecting societal values endorsed by the community
4
University of Southampton
Boniface, Michael
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Carmichael, Laura
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Hall, Wendy
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Pickering, Brian
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Stalla-Bourdillon, Sophie
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Taylor, Steve
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Boniface, Michael
f30bfd7d-20ed-451b-b405-34e3e22fdfba
Carmichael, Laura
3f71fb73-581b-43c3-a261-a6627994c96e
Hall, Wendy
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Pickering, Brian
225088d0-729e-4f17-afe2-1ad1193ccae6
Stalla-Bourdillon, Sophie
c189651b-9ed3-49f6-bf37-25a47c487164
Taylor, Steve
9ee68548-2096-4d91-a122-bbde65f91efb

Boniface, Michael, Carmichael, Laura, Hall, Wendy, Pickering, Brian, Stalla-Bourdillon, Sophie and Taylor, Steve (2020) A blueprint for a social data foundation: Accelerating trustworthy and collaborative data sharing for health and social care transformation (Web Science Institute White Papers, , (doi:10.5258/SOTON/WSI-WP004), 4) Southampton. University of Southampton 46pp.

Record type: Monograph (Project Report)

Abstract

This report provides a vision to improve public health and patient care through responsible data access, collaboration and (re-)usage across academia, the public sector and industry by removing barriers and accelerating existing processes whilst maintaining the highest standards for data governance and security. At the centre of this aspiration lies the establishment of a Social Data Foundation (“the Data Foundation”) – an innovative trustworthy and scalable data-driven health and social care ecosystem overseen by independent data stewards – created to support multi-party data sharing whilst respecting societal values endorsed by the community

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WSI white paper 4 social data foundations
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Published date: 19 November 2020

Identifiers

Local EPrints ID: 445371
URI: http://eprints.soton.ac.uk/id/eprint/445371
PURE UUID: 01a0f835-f746-4c4b-8b36-b591fd628050
ORCID for Michael Boniface: ORCID iD orcid.org/0000-0002-9281-6095
ORCID for Laura Carmichael: ORCID iD orcid.org/0000-0001-9391-1310
ORCID for Wendy Hall: ORCID iD orcid.org/0000-0003-4327-7811
ORCID for Brian Pickering: ORCID iD orcid.org/0000-0002-6815-2938
ORCID for Steve Taylor: ORCID iD orcid.org/0000-0002-9937-1762

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Date deposited: 04 Dec 2020 17:31
Last modified: 15 Sep 2021 02:03

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Contributors

Author: Wendy Hall ORCID iD
Author: Brian Pickering ORCID iD
Author: Steve Taylor ORCID iD

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